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Chapter 54 - Congenital Anomaly Registers: The European Experience

from Section III: - The Future

Published online by Cambridge University Press:  21 October 2019

Mark D. Kilby
Affiliation:
University of Birmingham
Anthony Johnson
Affiliation:
University of Texas Medical School at Houston
Dick Oepkes
Affiliation:
Leids Universitair Medisch Centrum
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Summary

The importance of the accurate recording and monitoring of the occurrence of disease is well recognized. There is a long history of the establishment of disease registers and this is also the case for congenital anomaly registers. This chapter provides an overview of 2 congenital anomaly register networks, focusing on factors that lead to the successful operating of a register and the main uses of their data.

Type
Chapter
Information
Fetal Therapy
Scientific Basis and Critical Appraisal of Clinical Benefits
, pp. 570 - 579
Publisher: Cambridge University Press
Print publication year: 2020

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