Skip to main content Accessibility help
×
Hostname: page-component-848d4c4894-4rdrl Total loading time: 0 Render date: 2024-06-21T21:27:46.591Z Has data issue: false hasContentIssue false

7.2 - Where should a child (in the USA) die?

Published online by Cambridge University Press:  18 August 2009

William A. Silverman
Affiliation:
M.D., Professor of Pediatrics (retired) Columbia University College of Physicians & Surgeons, New York 10032, USA
Lorry R. Frankel
Affiliation:
Stanford University, California
Amnon Goldworth
Affiliation:
Stanford University, California
Mary V. Rorty
Affiliation:
Stanford University, California
William A. Silverman
Affiliation:
Columbia University, New York
Get access

Summary

The most important feature of [western political] culture is a belief in individual human dignity; that people have the moral right – and the moral responsibility – to confront the most fundamental questions about the meaning and value of their own lives for themselves, answering to their own consciousness and convictions … Making a person die in a way that others approve, but that affronts his own dignity, is a serious, unjustified, unnecessary form of tyranny.

Ronald Dworkin (1993)

American physicians and parents reading Roger Burne's moving account of the life and death of young William in Britain will be startled, I suspect, by the striking difference expected had a real-life drama of similar circumstances been enacted in the USA. When the parents and William said, in essence, “Enough!,” the unwritten moral code of professional behavior in Britain sanctioned their doctors' humane self-restraint, as well as the positive action taken by the doctors to make the necessary arrangements for the child to die at home. Moreover, the importance of family's private domain stands out prominently in the story from Burne's side of the Atlantic. The most crucial decisions taken by William's family took place on their own “turf.” Unlike too many situations in the USA, the family's deliberations in Britain did not take place in a court of law; and not in a hospital surrounded by well-meaning experts, who are, nonetheless, strangers.

Type
Chapter
Information
Ethical Dilemmas in Pediatrics
Cases and Commentaries
, pp. 162 - 165
Publisher: Cambridge University Press
Print publication year: 2005

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×