Skip to main content Accessibility help
×
Hostname: page-component-77c89778f8-9q27g Total loading time: 0 Render date: 2024-07-17T23:28:59.292Z Has data issue: false hasContentIssue false

47 - Psychosocial factors associated with childhood bereavement and grief

from Part VI - Medical, social, and legal issues

Published online by Cambridge University Press:  03 February 2010

Lori S. Wiener
Affiliation:
HIV and AIDS Malignancy Branch, National Cancer Institute, NIH, Bethesda, MD
Steven L. Zeichner
Affiliation:
National Cancer Institute, Bethesda, Maryland
Jennifer S. Read
Affiliation:
National Cancer Institute, Bethesda, Maryland
Get access

Summary

While recentadvances in the treatment of HIV disease have resulted in dramatic reductions in morbidity and mortality in the USA [1], in many countries in the Far East and parts of Africa, the aftermath of high AIDS-related mortality has moved the HIV/AIDS epidemic beyond a health crisis. Disruptions to work patterns caused by absenteeism due to illness and funerals, the lack of physical space in morgues and burial grounds, reach deep into everyday life, and are a constant reminder of the fatal nature of this disease [2]. Populations are trying to exist in a state of daily and ongoing loss.

The number of individuals who have lost friends, parents, children, and other family members remains vast. For each individual infected with the disease, many more are affected by the loss associated with HIV/AIDS, including children, parents, siblings, and caregivers. Individuals vary greatly in ways that they cope with loss and death, depending on their attachment to the deceased, their past experiences of death, and their developmental stage.

Bereavement is one of the most frequent and potent life stressors occurring to individuals infected with or affected by HIV [3]. Bereavement related to HIV differs from grief related to other chronic illnesses mainly in that those affected by the epidemic are typically exposed to multiple losses over a relatively short period of time, decreasing the likelihood that there will be adequate time to process and mourn the loss prior to the next death.

Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 2005

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Deeks, S. G., Smith, M., Holodniy, M. & Kahn, J. O.Human Immunodeficiency Virus-1 protease inhibitors. A review for clinicians. J. Am. Med. Assoc. 277 2 (1997), 145–53CrossRefGoogle ScholarPubMed
Macintyre, K., Brown, L. & Sosler, S.It's not what you know, but who you knew”: examining the relationship between behavior change and Acquired Immune Deficiency Syndrome mortality in Africa. Acquired Immune Deficiency Syndrome Educ. Prev. 13 2 (2001), 160–74Google Scholar
Goodkin, K., Blaney, N. T., Tuttle, R.. Bereavement and Human Immunodeficiency Virus Infection. Int. Rev. Psychiatry 8 (1996), 201–16CrossRefGoogle Scholar
Dane, B. Children, Human Immunodeficiency Virus infection, and Acquired Immune Deficiency Syndrome. In C. A. Corr & D. M. Corr (eds.), Handbook of Childhood Death and Bereavement. New York: Springer Publishing Company (1996), pp. 51–70
Doka, K. Disenfranchised Grief. In K. L. Doka (ed.), Disenfranchised Grief: Recognizing Hidden Sorrow. Lexington, MA: Lexington Books (1989), pp. 3–11
Ingram, K., Jones, D. & Smith, N.Adjustment among people who have experienced Acquired Immune Deficiency Syndrome-related multiple loss: the role of unsupportive social interactions, social support, and coping. Omega 43 4 (2001), 287–309Google Scholar
Elia, N. Grief and loss in Acquired Immune Deficiency Syndrome work. In M. Winiarski (ed.), Human Immunodeficiency Virus Mental Health Care for the 21st Century. New York: New York University Press (1997), pp. 67–81
Scherr, L. & Green, J. Dying, bereavement and loss. In J. Green & A. McCreaner (eds.), Counseling in Human Immunodeficiency Virus Infection and Acquired Immune Deficiency Syndrome, 2nd edn. Oxford: Blackwell Science (1996), pp. 179–94
The Working Committee on Human Immunodeficiency Virus C, and Families. Families in Crisis. New York: Federation of Protestant Welfare Agencies (1997)
Fitzgerald H. The Grieving Child: A Parent's Guide. New York: Simon & Schuster (1992)
Pennells, S. & Smith, S. The Forgotten Mourners. Bristol, PA: Jessica Kingsley Publishers (1995)
O'Donnell, M. Human Immunodeficiency Virus/Acquired Immune Deficiency Syndrome: Loss, Grief, Challenge, and Hope. Washington, Dendritic Cells: Taylor & Francis (1996)
Prevention CfDendritic Cellsa.Human Immunodeficiency Virus/Acquired Immune Deficiency Syndrome Surveillance Report 7 1 (2001)
McKelvy, C. Counseling children who have a parent with Acquired Immune Deficiency Syndrome or who have lost a parent to Acquired Immune Deficiency Syndrome. In M. Shernoff (ed.), The Second Decade of Acquired Immune Deficiency Syndrome: A Mental Health Practice Handbook. New York: The Hatheleigh Company Limited (1995), pp. 137–59
Stahlman, S. Children and the death of a sibling. In D. Corr (ed.), Handbook of Childhood Death and Bereavement. New York: Springer Publishing Company (1996), pp. 149–64
Fanos, J. & Wiener, L.Tomorrow's survivors: siblings of human immunodeficiency virus-infected children. J. Dev. Behav. Pediatr. 15 3 (1994), S43–8Google ScholarPubMed
Siegel, K. & Freund, B. Parental loss and latency age children. In C. Levine (ed.), Acquired Immune Deficiency Syndrome and the New Orphans. Westport, Computed Tomography: Auburn House (1994), pp. 43–58
Silverman, P. R. & Worden, J. W.Children's reactions in the early months after the death of a parent. Am. J. Orthopsychiatry 62 1 (1992), 93–104CrossRefGoogle ScholarPubMed
Reese, M. Growing up: the impact of loss and change. In D. Belle (ed.), Lives in Stress: Women and Depression. Beverly Hills, CA: Sage (1982). pp. 65–88
Silverman, P., Nickman, S. & Worden, J. Detachment revisited: the child's reconstruction of a dead parent. In K. Doka (ed.), Children Morning Mourning Children. Washington, Dendritic Cells: Hospice Foundation of America (1995), pp. 131–48
Kubler-Ross, E. On Death and Dying. New York: Macmillan Publishing Co. (1969)
Worden, J. W. Grief Counseling and Grief Therapy: A Handbook for the Mental Health Practitioner. New York: Springer (1982)
Wiener, L., Fair, C. & Pizzo, P. Care for the child with Human Immunodeficiency Virus infection and Acquired Immune Deficiency Syndrome. In A. Armstrong-Dailey & S. Goltzer (eds.), Hospice Care for Children. New York: Oxford University Press (2001), pp. 113–36
Kaplan, D. M., Grobstein, R.. & Smith, A.Predicting the impact of severe illness in families. Health Soc. Work 1 3 (1976), 71–82CrossRefGoogle ScholarPubMed
Tietz, W., McSherry, L. & Britt, B.Family sequelae after a child's death due to cancer. Am. J. Psychother. 31 3 (1977), 417–25CrossRefGoogle Scholar
Binger, C. M., Ablin, A. R., Feuerstein, R. C., Kushner, J. H., Zoger, S. & Mikkelsen, C.Childhood leukemia. Emotional impact on patient and family. New Engl. J. Med. 280 8 (1969), 414–8CrossRefGoogle ScholarPubMed
Fry, P. S. Grandparents' reactions to the death of a grandchild: an exploratory factor analytic study. In B. de Vries (ed.), Kinship Bereavement in Later Life. New York: Baywood Publishing Company (1997), pp. 119–40
Wiener, L. Helping a parent with Human Immunodeficiency Virus tell his or her children. In B. Thompson (ed.), Human Immunodeficiency Virus and Social Work: A Practitioner's Guide. Binghamton, NY: Haworth Press (1998), pp. 327–38
Taylor-Brown, S. & Wiener, L.Making videotapes of Human Immunodeficiency Virus-infected women for their children. Families Soc. 74 8 (1993), 468–80Google Scholar
Wiener, L., Septimus, A. & Grady, C. Psychological support and ethical issues for the child and family. In C. Wilfert (ed.), Pediatric Acquired Immune Deficiency Syndrome: The Challenge of Human Immunodeficiency Virus Infection in Infants, Children, and Adolescents, 3rd edn. Philadelphia: Lippincott, Williams & Wilkins (1998), pp. 703–27
Rondo, T.The increasing prevalence of complicated mourning: the onslaught is just beginning. Omega 26 (1992), 43–59Google Scholar
Kastenbaum, R. Death and Bereavement. Springfield, Interleukin: Charles C. Thomas (1969)
Mallinson, R. K.The lived experience of Acquired Immune Deficiency Syndrome-related multiple losses by Human Immunodeficiency Virus-negative gay men. J. Assoc. Nurses Acquired Immune Deficiency Syndrome Care 10 5 (1999), 22–31Google Scholar
Lewert, G. Children and Acquired Immune Deficiency Syndrome. In H. Land (ed.), Acquired Immune Deficiency Syndrome: A Complete Guide to Psychosocial Intervention. Milwaukee: Family Service America, Inc. (1992), pp. 153–68
Demmer, C.Dealing with Acquired Immune Deficiency Syndrome-related loss and grief in a time of treatment advances. Am. J. Hosp. Palliat. Care 18 1 (2001), 35–41CrossRefGoogle Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×