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2 - Lack of Autonomy

Debates Concerning Research Involving Children

from Part I - Exploring Problems of Respect for Autonomy in Bioethics, Law and Society

Published online by Cambridge University Press:  20 September 2019

David G. Kirchhoffer
Affiliation:
Australian Catholic University
Bernadette J. Richards
Affiliation:
University of Adelaide
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Summary

Imagine that a researcher approached you about enrolling your child in a new study he wished to undertake. Your child – who might be as young as 3 1/2 months old – was about to have surgery for congenital heart disease. While your daughter was under anaesthesia, the researcher wanted permission to remove her thymus gland and stitch a full-thickness skin graft from an unrelated adult to her chest. The scientist was curious about the role of the thymus in immune regulation and tissue rejection.

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Beyond Autonomy
Limits and Alternatives to Informed Consent in Research Ethics and Law
, pp. 33 - 47
Publisher: Cambridge University Press
Print publication year: 2019

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