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  • Print publication year: 2019
  • Online publication date: September 2019

2 - Lack of Autonomy

from Part I - Exploring Problems of Respect for Autonomy in Bioethics, Law and Society


Imagine that a researcher approached you about enrolling your child in a new study he wished to undertake. Your child – who might be as young as 3 1/2 months old – was about to have surgery for congenital heart disease. While your daughter was under anaesthesia, the researcher wanted permission to remove her thymus gland and stitch a full-thickness skin graft from an unrelated adult to her chest. The scientist was curious about the role of the thymus in immune regulation and tissue rejection.