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4.3 - Topical discussion

Published online by Cambridge University Press:  18 August 2009

Lorry R. Frankel
Affiliation:
M.D. Department of Pediatrics, Division of Gastroenterology, Lucile Packard Children's Hospital, Palo Alto, California 94304, USA
Amnon Goldworth
Affiliation:
Ph.D., Senior Medical Ethicist Lucile Packard Children's Hospital, Palo Alto, California 94304, USA
Mary V. Rorty
Affiliation:
Ph.D. Stanford University Center for Biomedical Ethics, 701 Welch Road, Suite 1105, Palo Alto, California 94304, USA
William A. Silverman
Affiliation:
M.D., Professor of Pediatrics (retired) Columbia University College of Physicians & Surgeons, New York 10032, USA
Lorry R. Frankel
Affiliation:
Stanford University, California
Amnon Goldworth
Affiliation:
Stanford University, California
Mary V. Rorty
Affiliation:
Stanford University, California
William A. Silverman
Affiliation:
Columbia University, New York
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Summary

Futility

Despite wide recognition that it cannot be meaningfully and univocally defined, the term “futility” is sometimes invoked in medical cases where there is reason to doubt (1) the medical efficacy of the treatment (“it won't work”), or (2) whether it will improve quality of life (“it's not worth it”). Its ordinary-language connotations make it very difficult to convert the term into a technical term with a specific and limited meaning, but since its first introduction in 1987 in connection with CPR it has been used with increasing frequency as a shorthand for a variety of scientific and subjective reasons for not offering, or for suggesting withdrawal of, medical therapies.

The court cases related to futility are of two kinds. In the first kind, if the family or surrogates wish to withhold or withdraw life-sustaining treatments, they may do so (with evidence of patient preferences, as in the Quinlan case of 1976), including withdrawal of medical nutrition and hydration (if the state allows it, as in the Cruzan case of 1990). In the other kind of case, surrogates wish to institute or continue care that the team or facility considers ineffective or inadvisable. If the team are unable to reconcile themselves to offering life-sustaining treatment, they must transfer the patient to an alternative physician or facility which will provide the care (as happened with Baby Ryan Nguyen in 1994) or, if that facility is not equipped for emergency care, must continue to provide the care themselves (as occurred in the Baby K case).

Type
Chapter
Information
Ethical Dilemmas in Pediatrics
Cases and Commentaries
, pp. 108 - 112
Publisher: Cambridge University Press
Print publication year: 2005

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References

Bradlyn, A. S., Varni, J. W., and Hinds, P. S. Assessing health-related quality of life in end-of-life care for children and adolescents. In When Children Die, ed. , M. J. Field and , R. E. Behrman (Washington, DC: National Academies Press, 2003), pp. 476–508Google Scholar
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Cantor, N. L.Twenty-five years after Quinlan: a review of the jurisprudence of death and dying. Journal of Law, Medicine and Ethics 29 (2001), 182–196CrossRefGoogle ScholarPubMed
Caplan, A.Odds and ends: trust and the debate over medical futility. Annals of Internal Medicine 125 (1996), 688–689CrossRefGoogle ScholarPubMed
Drane, J. F. The quality of life concept and the best interest standard. In Clinical Bioethics: Theory and Practice in Medical Ethical Decision-Making (Kansas City, MO: Sheed and Ward, 1994)
Lantos, J. D., Singer, P. A., Walker, R. M., et al.The illusion of futility in clinical practice. American Journal of Medicine 87 (1989), 81–84CrossRefGoogle ScholarPubMed
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Schneiderman, L. J., Jecker, N. S., and Jonsen, A. R.Medical futility: response to critiques. Annals of Internal Medicine 125 (1996), 669–674CrossRefGoogle ScholarPubMed
Youngner, S. J.Who defines futility?JAMA 260 (1988), 2094–2095CrossRefGoogle ScholarPubMed

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  • Topical discussion
    • By Lorry R. Frankel, M.D. Department of Pediatrics, Division of Gastroenterology, Lucile Packard Children's Hospital, Palo Alto, California 94304, USA, Amnon Goldworth, Ph.D., Senior Medical Ethicist Lucile Packard Children's Hospital, Palo Alto, California 94304, USA, Mary V. Rorty, Ph.D. Stanford University Center for Biomedical Ethics, 701 Welch Road, Suite 1105, Palo Alto, California 94304, USA, William A. Silverman, M.D., Professor of Pediatrics (retired) Columbia University College of Physicians & Surgeons, New York 10032, USA
  • Edited by Lorry R. Frankel, Stanford University, California, Amnon Goldworth, Stanford University, California, Mary V. Rorty, Stanford University, California, William A. Silverman, Columbia University, New York
  • Book: Ethical Dilemmas in Pediatrics
  • Online publication: 18 August 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511545504.016
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To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

  • Topical discussion
    • By Lorry R. Frankel, M.D. Department of Pediatrics, Division of Gastroenterology, Lucile Packard Children's Hospital, Palo Alto, California 94304, USA, Amnon Goldworth, Ph.D., Senior Medical Ethicist Lucile Packard Children's Hospital, Palo Alto, California 94304, USA, Mary V. Rorty, Ph.D. Stanford University Center for Biomedical Ethics, 701 Welch Road, Suite 1105, Palo Alto, California 94304, USA, William A. Silverman, M.D., Professor of Pediatrics (retired) Columbia University College of Physicians & Surgeons, New York 10032, USA
  • Edited by Lorry R. Frankel, Stanford University, California, Amnon Goldworth, Stanford University, California, Mary V. Rorty, Stanford University, California, William A. Silverman, Columbia University, New York
  • Book: Ethical Dilemmas in Pediatrics
  • Online publication: 18 August 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511545504.016
Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

  • Topical discussion
    • By Lorry R. Frankel, M.D. Department of Pediatrics, Division of Gastroenterology, Lucile Packard Children's Hospital, Palo Alto, California 94304, USA, Amnon Goldworth, Ph.D., Senior Medical Ethicist Lucile Packard Children's Hospital, Palo Alto, California 94304, USA, Mary V. Rorty, Ph.D. Stanford University Center for Biomedical Ethics, 701 Welch Road, Suite 1105, Palo Alto, California 94304, USA, William A. Silverman, M.D., Professor of Pediatrics (retired) Columbia University College of Physicians & Surgeons, New York 10032, USA
  • Edited by Lorry R. Frankel, Stanford University, California, Amnon Goldworth, Stanford University, California, Mary V. Rorty, Stanford University, California, William A. Silverman, Columbia University, New York
  • Book: Ethical Dilemmas in Pediatrics
  • Online publication: 18 August 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511545504.016
Available formats
×