Skip to main content Accessibility help
×
Hostname: page-component-76fb5796d-25wd4 Total loading time: 0 Render date: 2024-04-28T07:05:35.760Z Has data issue: false hasContentIssue false

Chapter 19 - Ethical Issues in Pediatrics

from Section 2 - Consultation

Published online by Cambridge University Press:  17 February 2022

D. Micah Hester
Affiliation:
University of Arkansas for Medical Sciences, College of Medicine
Toby L. Schonfeld
Affiliation:
National Center for Ethics in Health Care, US Department of Veterans Affairs
Get access

Summary

Concerns about ethics in the care of children have been central to modern bioethics since its inception over 50 years ago. Key milestones in pediatric bioethics include the controversy over the Willowbrook hepatitis experiments in the 1960s, acknowledgment of the importance of “assent” for children participating in research by the National Commission in the 1970s, and the Baby Doe regulations regarding the treatment of neonates in the 1980s. Despite the prominence of pediatric cases and issues, development of bioethical reasoning during the first 30 years was heavily focused on issues surrounding adults with decisional capacity and the principle of respect for autonomy. In fact, most of the groundbreaking judicial opinions about end-of-life decisions prior to the year 2000 focused on protecting the rights of adults to make autonomous decisions about their own medical care (Menikoff, 2002).

Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 2022

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Beauchamp, TL, Childress, JF (2012). Principles of Biomedical Ethics, 7th ed. New York: Oxford University Press.Google Scholar
Buchanan, A, Brock, D (1990). Deciding for Others: The Ethics of Surrogate Decision Making. New York: Oxford University Press.Google Scholar
Diekema, DS (2004). Parental refusals of medical treatments: The harm principle as threshold for state intervention. Theoretical Medicine and Bioethics, 25(4): 243264.CrossRefGoogle ScholarPubMed
Diekema, DS (2020). Adolescent brain development and medical decision-making. Pediatrics, 146(2, Suppl. 1): S18S24.CrossRefGoogle ScholarPubMed
Feinberg, J (1984). Harm to Others: The Moral Limits of the Criminal Law. New York: Oxford University Press.Google Scholar
Katz, AL, Webb, SA, The American Academy of Pediatrics Committee on Bioethics. (2016). Technical report: Informed consent in decision-making in pediatric practice. Pediatrics, 138(2): e20161485.CrossRefGoogle ScholarPubMed
Menikoff, J (2002). Law & Bioethics: An Introduction. Washington, DC: Georgetown University Press.Google Scholar
Nelson, HL, Nelson, JL (1995). The Patient in the Family. New York: Routledge.Google Scholar
Ross, LF (1998). Children, Families, and Health Care Decision Making. New York: Oxford University Press.CrossRefGoogle Scholar
Ross, LF (2019). Better than best (interest standard) in pediatric decision making. Journal of Clinical Ethics, 30(3): 183195.CrossRefGoogle ScholarPubMed
Ross, LF, Blustein, J, Clayton, EW (2009). Adolescent decision making. Cambridge Quarterly of Healthcare Ethics, 18(3): 302322, 18(4): 432–442.CrossRefGoogle Scholar
Salter, E (2012). Deciding for a child: A comprehensive analysis of the best interest standard. Theoretical Medicine and Bioethics, 33(3): 179198.CrossRefGoogle Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×