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Chapter 10 - Confidentiality and Privacy

Traditional Concerns and Digital Challenges

from Section 2 - Consultation

Published online by Cambridge University Press:  17 February 2022

D. Micah Hester
Affiliation:
University of Arkansas for Medical Sciences, College of Medicine
Toby L. Schonfeld
Affiliation:
National Center for Ethics in Health Care, US Department of Veterans Affairs
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Summary

Medicine has had a long-standing tradition requiring that clinicians keep the private concerns of patients in confidence. However, the traditional duties to safeguard health information and respect for privacy rights face new, interesting, and difficult challenges. The scope of health information technology and its ability to store and analyze vast amounts of information have, as is often the case in bioethics, outstripped efforts to keep up both ethically and legally.

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Publisher: Cambridge University Press
Print publication year: 2022

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References

American Academy of Pediatrics (2009). Policy statement – using personal health records to improve the quality of health care for children. Pediatrics, 124(1): 403409.CrossRefGoogle Scholar
American Academy of Pediatrics (2012). Policy statement – standards for health information technology to ensure adolescent privacy. Pediatrics, 130(5): 987990.CrossRefGoogle Scholar
Ancker, JS, Mauer, E, Kalish, RB, Vest, JR, Gossey, JT (2019). Early adopters of patient-generated health data upload in an electronic patient portal. Applied Clinical Informatics, 10(2): 254260.Google Scholar
Bourgeois, FC, DesRoches, CM, Bell, SK (2018). Ethical challenges raised by OpenNotes for pediatric and adolescent patients. Pediatrics, 141(6): e20172745.CrossRefGoogle ScholarPubMed
Cushman, R, Froomkin, AM, Cava, A, Abril, P, Goodman, KW (2010). Ethical, legal and social issues for personal health records and applications. Journal of Biomedical Informatics, 43(5 Suppl.): S51S55.CrossRefGoogle ScholarPubMed
Goodman, KW (2016). Ethics, Medicine and Information Technology: Intelligent Machines and the Transformation of Health Care. Cambridge University Press.Google Scholar
Miklin, DJ, Vangara, SS, Delamater, AM, Goodman, KW (2019). Understanding of and barriers to electronic health record patient portal access in a culturally diverse pediatric population. JMIR Medical Informatics, 7(2): e11570.CrossRefGoogle Scholar
Neuner, J, Fedders, M, Caravella, M, Bradford, L, Schapira, M (2015). Meaningful use and the patient portal: Patient enrollment, use, and satisfaction with patient portals at a later-adopting center. American Journal of Medical Quality, 20(2): 105113.CrossRefGoogle Scholar
Steitz, B, Cronin, RM, Davis, SE, Yan, E, Jackson, GP (2017). Long-term patterns of patient portal use for pediatric patients at an academic medical center. Applied Clinical Informatics, 8(3): 779793.Google ScholarPubMed
US Department of Health and Human Services. (2015). The HIPAA Privacy Rule. www.hhs.gov/hipaa/for-professionals/privacy/index.htmlGoogle Scholar
US Department of Health and Human Services. (2017). Summary of the HIPAA Privacy Rule. www.hhs.gov/hipaa/for-professionals/privacy/laws-regulations/index.htmlGoogle Scholar
Zhao, JY, Song, B, Anand, E, et al.. Barriers, facilitators, and solutions to optimal patient portal and personal health record use: A systematic review of the literature. AMIA Annual Symposium Proceedings: 1913–1922.Google Scholar

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