Objective: Little attention has been paid in research to the
palliative care of those dying with dementia. This literature review
summarizes current research in the social sciences, including medical
sociology on palliative care in the example of dementia.
Methods: A designated set of search words was applied to a
comprehensive set of university-based search engines to ensure that
relevant social science research since 200 was included.
Results: Primary themes discussed in the article include
person-centered care, grief, agitation, aggression, pain management, care
provision, training and education, decision-making, primary settings of
care, and spirituality and dignity. Other key gaps in the literature are
discussed.
Significance of the results: Given the projected increase
within the next 20 years of people dying with dementia (Hanrahan et al.,
2001), palliative care for those dying with
dementia will become more relevant than ever.