Skip to main content Accessibility help

We use cookies to distinguish you from other users and to provide you with a better experience on our websites. Close this message to accept cookies or find out how to manage your cookie settings.

Close cookie message
×
Hostname: page-component-76fb5796d-r6qrq Total loading time: 0 Render date: 2024-04-27T01:02:07.169Z Has data issue: false hasContentIssue false

Chapter 18 - Patient Involvement in Medical Research

Published online by Cambridge University Press:  04 August 2017

By
Annette Briley  and
Claire Singh
Edited by
P. M. Shaughn O'Brien  and
Fiona Broughton Pipkin
P. M. Shaughn O'Brien
Affiliation:
Keele University School of Medicine
Fiona Broughton Pipkin
Affiliation:
University of Nottingham
Get access

Summary

A summary is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Chapter
Information
Introduction to Research Methodology for Specialists and Trainees , pp. 150 - 158
Publisher: Cambridge University Press
Print publication year: 2017

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

References

De Koning, K, Martin, M. (eds). 1996. Participatory Research in Health: Issues and experiences. Zed Books. London.Google Scholar
Irwin, A. 1995. Citizen Science: A Study of People, Expertise and Sustainable Development. Routledge. London.Google Scholar
McNeill, PM. 1998. Experimentation on Human Beings. In Kuhse, H, Singer, P. (eds). A Companion to Bioethics, pp. 369–78. Blackwell Publishing, Oxford.Google Scholar
Oliver, S, Clarke-Jones, L, Rees, R, et al. 2004. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Heath Technology Assessment 8:1–148.Google Scholar
Boote, J., Telford, R, Cooper, C. 2002. Consumer involvement in health research: A review and research agenda. Health Policy 61(2): 213–36.Google Scholar
Oliver, S, Rees, R, Clarke-Jones, L, et al. 2008. A multidimensional conceptual framework for analyzing public involvement in health services research. Health Expectation 11(1); 72–84.Google Scholar
James Lind Alliance. 2015. Research priorities: top 10s. www.lindalliance.org/top-tens.aspGoogle Scholar
Ipswich Hospitals NHS Trust. 2014. User group tool-kit. Ipswich Hospitals NHS Trust.Google Scholar
Jama, D, Dugdale, G. 2012. Literacy: State of the Nation. A picture of literacy in the UK today, National Literacy Trust.Google Scholar
INVOLVE. 2012. Briefing notes for researchers: involving the public in NHS, public health and social care research. INVOLVE, Eastleigh.Google Scholar
Freedom of Information Act 2000: www.legislation.gov.uk/ukpga/2000/36/pdfs/ukpga_20000036_en.pdfGoogle Scholar
Caldicott Guidelines 2013: www.gov.uk/government/uploads/system/uploads/attachment_data/file/251750/9731-2901141-TSO-Caldicott-Government_Response_ACCESSIBLE.PDFGoogle Scholar
Data Protection Act 1988: www.legislation.gov.uk/ukpga/1998/29/pdfs/ukpga_19980029_en.pdfGoogle Scholar
Hamer, S. 2013. Strategic priorities for the NIHR CRN Clinical Research Nurse Workforce, 2013/2014: www.nihr.ac.uk/Google Scholar
Caldicott Guidelines 2013: www.gov.uk/government/uploads/system/uploads/attachment_data/file/251750/9731-2901141-TSO-Caldicott-Government_Response_ACCESSIBLE.PDFGoogle Scholar
Data Protection Act 1988: www.legislation.gov.uk/ukpga/1998/29/pdfs/ukpga_19980029_en.pdfGoogle Scholar
Hamer, S. 2013. Strategic priorities for the NIHR CRN Clinical Research Nurse Workforce, 2013/2014: www.nihr.ac.uk/Google Scholar

Additional Sources

Caldicott Guidelines 2013: www.gov.uk/government/uploads/system/uploads/attachment_data/file/251750/9731-2901141-TSO-Caldicott-Government_Response_ACCESSIBLE.PDFGoogle Scholar
Data Protection Act 1988: www.legislation.gov.uk/ukpga/1998/29/pdfs/ukpga_19980029_en.pdfGoogle Scholar
Hamer, S. 2013. Strategic priorities for the NIHR CRN Clinical Research Nurse Workforce, 2013/2014: www.nihr.ac.uk/Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×