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Translation and cross-cultural adaptation of outcome measurements for schizophrenia: EPSILON Study 2

  • Helle Charlotte Knudsen (a1), José Luis Vázquez-Barquero (a2), Birgitte Welcher (a3), Luis Gaite (a2), Thomas Becker (a4), Daniel Chisholm (a5), Mirella Ruggeri (a6), Aart H. Schene (a7) and Graham Thornicroft (a8)...

Abstract

Background

Research on the comparison of mental health services has identified the need for internationally standardised and reliable measurements.

Aims

To describe the strategies adopted in the European Psychiatric Services: Inputs Linked to Outcome Domains and Needs (EPSILON) Study for the translation and cross-cultural adaptation of five European versions of the instruments.

Method

A protocol was developed for translation of the outcome scales, describing each step in the translation procedure. Disputed items were discussed in focus groups, which faced seven tasks: a list of topics to be discussed; choosing where the group should meet; composition of participants; conducting the group; data collection; data completion afterwards; reporting results.

Results

Modifications made to instruments were: changes in the instrument structure, contents and concepts; adjustments to the instrument structure; and modifications to the instrument manual.

Conclusion

Use of focus groups is an adequate method to apply if concepts, constructs and translation issues are to be addressed; otherwise, less time-consuming methods should be considered.

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Copyright

Corresponding author

Dr Helle Charlotte Knudsen, Institute of Preventive Medicine, Copenhagen Hospital Corporation, Copenhagen University Hospital, 1399 Copenhagen K, Denmark. Tel: +45 333 83 888; fax: +45 333 24 240

Footnotes

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Declaration of interest

No conflict of interest. Funding detailed in Acknowledgements.

Footnotes

References

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Translation and cross-cultural adaptation of outcome measurements for schizophrenia: EPSILON Study 2

  • Helle Charlotte Knudsen (a1), José Luis Vázquez-Barquero (a2), Birgitte Welcher (a3), Luis Gaite (a2), Thomas Becker (a4), Daniel Chisholm (a5), Mirella Ruggeri (a6), Aart H. Schene (a7) and Graham Thornicroft (a8)...
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