Smith, R. All changed, changed utterly. Br Med J
1998; 316: 1917–1918.
4. The Report of the Manitoba Pediatric Cardiac Surgery Inquest: An Inquest into twelve deaths at the Winnipeg Health Sciences Centre in 1994. Retrieved October 14, 2013 from http://www.pediatriccardiacinquest.mb.ca/.
Franklin, RC, Beland, MJ, Krogmann, ON. Mapping and coding of nomenclatures for paediatric and congenital heart disease. Cardiol Young
2006; 16: 105–106.
Brown, KL, Crowe, S, Franklin, RC, et al. Trends in 30-day mortality rate and case mix for paediatric cardiac surgery in the UK between 2000 and 2010. Open Heart
2015; 2: e000157.
Jacobs, JP, Mayer, JE Jr, Mavroudis, C, et al. The Society of Thoracic Surgeons Congenital Heart Surgery Database: 2016 Update on Outcomes and Quality. Ann Thorac Surg
2016; 101: 850–862.
Jacobs, JP, O’Brien, SM, Pasquali, SK, et al. The Society of Thoracic Surgeons Congenital Heart Surgery Database Mortality Risk Model: Part 2-clinical application. Ann Thorac Surg.
2015; 100: 1063–1070.
Jacobs, JP, Mayer, JE Jr, Mavroudis, C, et al. The Society of Thoracic Surgeons Congenital Heart Surgery Database: 2017 Update on Outcomes and Quality. Ann Thorac Surg
2017; 103: 699–709.
Greenwood, M. Medical statistics from Graunt to Farr. Cambridge University Press, Cambridge, 1948.
Farr, W. First annual report. Registrar General of England and Wales, London, 1839: 99.
17. Farr W. Sixteenth annual report. Registrar General of England and Wales, London, 1856: 75.
Nightingale, F. Proposals for a Uniform Plan of Hospital Statistics. Fourth International Statistical Congress, London, 1860.
Franklin, RC, Jacobs, JP, Krogmann, ON, et al. Nomenclature for congenital and paediatric cardiac disease: historical perspectives and The International Pediatric and Congenital Cardiac Code. Cardiol Young
2008; 18 (Suppl 2): 70–80.
Franklin, RCG, Anderson, RH, Daniëls, O, et al. The European Paediatric Cardiac Code. Cardiol Young
1999; 9: 633–657.
Association for European Paediatric Cardiology. The European Paediatric Cardiac Code. Cardiol Young
2000; 10 (Suppl 1): 1–146.
Mavroudis, C, Jacobs, JP. Congenital heart surgery nomenclature and database project: overview and minimum dataset. Ann Thorac Surg
2000; 69: S2–S17.
Mavroudis, C, Jacobs, JP. (eds). Congenital Heart Surgery Nomenclature and Database Project. Ann Thorac Surg 2000: 69 Suppl: S1-S372.
Béland, M, Jacobs, JP, Tchervenkov, CI, Franklin, RCG. The International Nomenclature Project for Paediatric and Congenital Heart Disease: Report from the Executive of The International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease. Cardiol Young
2002; 12: 425–430.
Franklin, RCG, Jacobs, JP, Tchervenkov, CI, Béland, MJ. The International Nomenclature Project for Congenital Heart Disease: bidirectional crossmap of the short lists of the European Paediatric Cardiac Code and the International Congenital Heart Surgery Nomenclature Database Project. Cardiol Young
2002; 12: 431–435.
Béland, MJ, Franklin, RCG, Jacobs, JP, et al. Update from The International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease. Cardiol Young
2004; 14: 225–229.
O’Brien, SM, Clarke, DR, Jacobs, JP, et al. An empirically based tool for analyzing mortality associated with congenital heart surgery. J Thorac Cardiovasc Surg
2009; 138: 1139–1153.
Crowe, S, Brown, KL, Pagel, C, et al. Development of a diagnosis- and procedure-based risk model for 30-day outcome after pediatric cardiac surgery. J Thoracic Cardiovasc Surg
2013; 145: 1270–1278.
Rogers, L, Brown, KL, Franklin, RC, et al. Improving risk adjustment for mortality after pediatric cardiac surgery: The UK PRAiS 2 model. Ann Thorac Surg
2017; 104: 211–219.
World Health Organization. Basic Documents, 47th ed. World Health Organization, Geneva, 2009.
Tudorache, T, Falconer, S, Nyulas, C, et al. Supporting the Collaborative Authoring of ICD-11 with WebProtégé. AMIA Annu Symp Proc
2010; 2010: 802–806.
Cronk, CE, Malloy, ME, Pelech, AN, et al. Completeness of state administrative databases for surveillance of congenital heart disease. Birth Defects Res A Clin Mol Teratol
2003; 67: 597–603.
Frohnert, BK, Lussky, RC, Alms, MA, Mendelsohn, NJ, Symonik, DM, Falken, MC. Validity of hospital discharge data for identifying infants with cardiac defects. J Perinatol
2005; 25: 737–742.
Strickland, MJ, Riehle-Colarusso, TJ, Jacobs, JP, et al. The importance of nomenclature for congenital heart disease: implications for research and evaluation. Cardiol Young
2008; 18 (Suppl 2): 92–100.
Pasquali, SK, Peterson, ED, Jacobs, JP, et al. Differential case ascertainment in clinical registry versus administrative data and impact on outcomes assessment for pediatric cardiac operations. Ann Thorac Surg
2013; 95: 197–203.
Pasquali, SK, He, X, Jacobs, JP, et al. Measuring hospital performance in congenital heart surgery: administrative vs. clinical registry data. Ann Thorac Surg
2015; 99: 9332–9338.