Skip to main content Accessibility help
×
Home

Who's the Family in Family Caregiving?*

  • Norah Keating (a1), Karen Kerr (a1), Sharon Warren (a1), Michael Grace (a1) and Dana Wertenberger (a1)...

Abstract

Despite a recognition of the importance of families in providing informal care to frail seniors, there is no consensus as to who constitutes the caregiving family. The authors discuss the current ideology about the caregiving family and the state of knowledge about its composition and propose that the caregiving family has actual and potential elements. Based on the assumption that the concept of “who's the family” is socially constructed, the authors argue that it is essential to understand “who's the family” from the perspective of primary caregivers in order to evaluate the nature of family support. This paper challenges the notion that the cargiving family is equivalent to the kin family. It is argued that the status quo in which a simplistic view of family caregiving is used to justify pressure on families to provide more care is not sustainable.

En dépit de la reconnaissance du rôle d'information de la famille auprès des personnes âgées fragiles, il n'existe aucune entente sur la composition des familles assurant la prestation de soins. Les auteurs discutent de l'idéologie de l'aide aux aines par la famille et le degré de connaissance sur sa composition. Us proposent que ces familles présentent des caractéristiques actuelles et potentielles. En se fondant sur l'hypothèse que le concept de «la composition de la famille» est le résultat d'une construction sociale, les auteurs démontrent qu'il est essentiel de comprendre «la composition de la famille» selon l'optique des principaux prestateurs de soins afin d'évaluer la nature de l'appui familial. L'ouvrage remet en question la notion que la famille assurant la prestation de soins se compose des proches parents. Les auteurs soutiennent que le statu quo, où une perception simpliste de la famille offrant des soins est utilisée afin d'exercer des pressions sur les familles pour fournir plus de soins, n'a pas d'avenir.

Copyright

References

Hide All
Abel, E.K. (1991). Who cares for the elderly? Public Policy and the experiences of adult daughters. Philadelphia: Temple University Press.
Alberta Committee on Long Term Care for Senior Citizens (1988). A new vision for long term care: meeting the need. Edmonton: Queen's Printer for Alberta.
Aronson, J. (1985). Family care of the elderly: Underlying assumptions and their consequences. Canadian Journal on Aging, 4(3), 115125.
Aronson, J. (1990). Old women's experiences of needing care: Choice or compulsion? Canadian Journal on Aging, 9(3), 234247.
Baillie, V., Norbeck, J.S., & Barnes, L.E. (1988). Stress, social support and psychological distress of family caregivers of the elderly. Nursing Research, 37(4), 217222.
Barer, B.M., & Johnson, C.L. (1990). A critique of the caregiving literature. The Gerontologist, 30(1), 2629.
Birkel, R.C., & Jones, C.J. (1989). A comparison of the caregiving networks of dependent elderly individuals who are lucid and those who are demented. The Gerontologist, 29(1), 114119.
Blieszner, R., & Alley, J.M. (1990). Family caregiving for the elderly: An overview of resources. Family Relations, 39, 97102.
Boss, P., Caron, W., Horbal, J., & Mortimer, J. (1990). Predictors of depression in caregivers of dementia patients: Boundary ambiguity and mastery. Family Process, 29, 245254.
Brody, E.M. (1990). The family at risk. In Light, E. and Lebonitz, B.D. (Eds.), Abheimer's disease treatment and family stress: directions for research (pp. 249). Washington, DC: National Institute of Mental Health.
Brody, E.M., Hoffman, C, Kleban, M.H., & Schoonover, C.B. (1989). Caregiving daughters and their local siblings: Perceptions, strains, and interactions. The Gerontologist, 29(4), 529538.
Brubaker, T.H. (1985). Later Life Families. Beverly Hills: Sage Publications, Inc.
Cantor, M. (1983). Strain among caregivers: A study of the experience in the United States. The Gerontologist, 26, 597604.
Caserta, M.S., Lund, D.A., Wright, S.D., & Redburn, D.E. (1987). Caregivers to dementia patients: The utilization of community services. The Gerontologist, 27(2), 209214.
Chenoweth, B., & Spencer, B. (1986). Dementia: The experience of family caregivers. The Gerontologist, 26(3), 267272.
Cohen, D., & Eisdorfer, C. (1988). Depression in family members caring for a relative with AD. Journal of the American Gerontological Society, 36(10), 885889.
Connidis, I.A. (1989). Family Ties and Aging. Toronto: Butterworths Canada Ltd.
Dressel, P.L., & Clark, A. (1990) A critical look at family care. Journal of Marriage and the Family, 52, 769782.
Dwyer, J.W., & Seccombe, K. (1991). Elder care as family labor: The influence of gender and family position. Journal of Family Issues, 12(2), 229247.
Finch, J. (1987). Family ties. New Society, March, 1618.
Finch, J., & Groves, D. (1980). Community care and the family: A case for equal opportunities? Journal of Social Policy, 9, 487511.
Finch, J., & Mason, J. (1990). Filial obligations and kin support for elderly people. Ageing and Society, 10, 151175.
Fischer, L., Visintainer, P. F., & Shultz, R. (1989). Reliable assessment of cognitive impairment in dementia patients by family caregivers. The Gerontologist, 29(3), 333335.
George, L.K., & Gwyther, L.P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26(3), 253259.
Given, C.W., Collins, C.E., & Given, B.A. (1988). Sources of stress among families caring for relatives with Alzheimer's Disease. Nursing Clinics of North America, 23(1), 6982.
Gottlieb, B.H. (1991). Social support and family care of the elderly. Canadian Journal on Aging, 20(4), 359375.
Gubrium, J. (1988). Family responsibility and caregiving in the qualitative analysis of the Alzheimer's disease experience. Journal of Marriage and the Family, 50, 197207.
Hansson, R.O., Nelson, R.E., Carver, M.D., Nee Smith, D.H., Dowling, E.M., Fletcher, W.L., & Suhr, P. (1990). Adult children with frail elderly parents: When to intervene? Family Relations, 39, 153158.
Horowitz, A. (1985). Family caregiving to the frail elderly. In Eisdorfer, C., Lawton, M. and Maddox, G. (Eds.), Annual Review of Gerontology and Geriatrics, Volume 5 (pp. 194246). New York: Springer.
Johnson, C.L., & Catalano, D. (1983). A longitudinal study of family supports to impaired elderly. The Gerontologist, 23(6), 612618.
Jones, D., & Vetter, N. (1984). A survey of those who care for the elderly at home: Their problems and their needs. Social Science and Medicine, 19(5), 511514.
Keating, N. (1991). Aging in Rural Canada. Toronto: Butterworths Canada Ltd.
Kuhlman, G.J., Wilson, H.S., Hutchinson, S., & Wallhagen, M. (1991). Alzheimer's disease and family caregiving: Critical synthesis of the literature and research agenda. Nursing Research, 40(6), 331337.
Lerner, M., Somers, D., Reid, D., Chiriboga, D., & Tierney, M. (1991). Adult children as caregivers: egocentric biases in judgements of sibling contributions. The Gerontologist, 32(6), 746755.
Litwin, H., & Auslander, G.K. (1990). Evaluating informal support. Evaluation Review, 14(1), 4256.
Matthews, S.H. (1987). Provision of care to old parents: Division of responsibility among adult children. Research on Aging, 9(1), 4560.
Matthews, S.H., & Rosner, T. (1988). Shared filial responsibility: The family as the primary caregiver. Journal of Marriage and the Family, 50, 185195.
McDaniel, S. (1992). Bridges and frontiers: Families, women and work in an aging Canada. Paper presented at the Canadian Association on Gerontology Conference, Edmonton, Alberta, 1992.
McPherson, , (1990). Aging as a Social Process. Toronto: Butterworths Canada, Ltd.
Morgan, D. (1989). Adjusting to widowhood: Do social networks really make it easier? The Gerontologist, 29(1), 101107.
Mui, A. (1992). Caregiver strain among black and white daughter caregivers: A role theory perspective. The Gerontologist, 32(2), 203212.
Myles, J. (1991). Women, the welfare state and care-giving. Canadian Journal on Aging, 10(2), 8285.
Pett, M.A., Caserta, M.S., Hutton, A.P., & Lund, D.A. (1988). Intergenerational conflict: Middle-aged women caring for demented older relatives. American Journal of Orthopsychiatry, 58(3), 405417.
Pruchno, R.A., & Resch, N.L. (1989). Husbands and wives as caregivers: Antecedents of depression and burden. The Gerontologist, 29(2), 159165.
Qureshi, H. (1990). A research note on the hierarchy of obligations among informal carers-A response to Finch and Mason. Aging and Society, 10, 455458.
Qureshi, H., & Walker, A. (1989). The caring relationship: Elderly people and their families. London: Macmillan.
Rank, M. (1992). Combined qualitative and quantitative approaches. In Gilgun, J., Daly, K., & Handel, G. (Eds.), Qualitative methods in family research (pp. 281300). Newbury Park: Sage Publications.
Roberts, R.E.L., Richards, L.N., & Bengtson, V.L. (1991). Intergenerational solidarity in families: Untangling the ties that bind. Family and Marriage Review, 16, 1146.
Schmall, V.L., & Pratt, C.C. (1989). Family caregiving and aging: Strategies for support. In Hugston, G.A., Christopherson, V.A., and Bonjean, M.J. (Eds.), Aging and family therapy: Practitioner perspectives on golden pond (pp. 7187). New York: The Haworth Press, Inc.
Shapiro, E., & Tate, R.B. (1985). Predictors of long term care facility use among the elderly. Canadian Journal on Aging, 4(1), 1119.
Stone, R. (1991). Defining family caregivers of the elderly: Implications for research and public policy. The Gerontologist, 31(6), 724725.
Stone, R., Cafferata, G.L., & Sangl, J. (1987). Caregivers of the frail elderly: A national profile. The Gerontologist, 27(5), 616626.
Storm, C., Storm, T., & Strike-Schurman, J. (1985). Obligations for care: Beliefs in a small Canadian town. Canadian Journal on Aging, 4(2), 7585.
Tennstedt, S.L., McKinley, J.B., & Sullivan, L.M. (1989). Informal care for frail elders: The role of secondary caregivers. The Gerontologist, 29(5), 677683.
Walker, A. (1991). The relationship between family and the state in the care of older people. Canadian Journal on Aging, 10(2), 94112.
Wenger, C. (1987). Dependence, interdependence, and reciprocity after eighty. Journal of Aging Studies, 1(4), 355377.
Willoughby, J., & Keating, N. (1991). Being in control: The process of caring for a relative with Alzheimer's Disease. Qualitative Health Research, 1(1), 2750.
Wilson, S.H. (1989). Family caregivers: The experience of Alzheimer's disease. Applied Nursing Research, 2(1), 4045.

Keywords

Metrics

Full text views

Total number of HTML views: 0
Total number of PDF views: 0 *
Loading metrics...

Abstract views

Total abstract views: 0 *
Loading metrics...

* Views captured on Cambridge Core between <date>. This data will be updated every 24 hours.

Usage data cannot currently be displayed