Hostname: page-component-848d4c4894-pjpqr Total loading time: 0 Render date: 2024-06-19T13:49:03.115Z Has data issue: false hasContentIssue false

Suicidal Ideation in Canadian Family Caregivers for a Person with Dementia: A Portrait of the Situation

Published online by Cambridge University Press:  06 February 2024

Audrée Teasdale-Dubé*
Affiliation:
Département de Psychologie, Université du Québec à Trois-Rivières, Trois-Rivières, QC, Canada Quebec Network for Research on Aging, Montreal, QC, Canada
Charles Viau-Quesnel
Affiliation:
Quebec Network for Research on Aging, Montreal, QC, Canada Département de Psychoéducation, Université du Québec à Trois-Rivières, Trois-Rivières, QC, Canada Laboratoire Interdisciplinaire de Recherche en Gérontologie, Université du Québec à Trois-Rivières, Trois-Rivières, QC, Canada
Sylvie Lapierre
Affiliation:
Département de Psychologie, Université du Québec à Trois-Rivières, Trois-Rivières, QC, Canada Quebec Network for Research on Aging, Montreal, QC, Canada Laboratoire Interdisciplinaire de Recherche en Gérontologie, Université du Québec à Trois-Rivières, Trois-Rivières, QC, Canada
*
Corresponding author: La correspondance et les demandes de tirésàpart doivent être adressées à : / Correspondence and requests for offprints should be sent to: Audrée Teasdale-Dubé, Département de Psychologie, Université du Québec à Trois-Rivières, Trois-Rivières, QC, Canada (audree.teasdale-dube@uqtr.ca).

Abstract

This study aimed to explore the prevalence of suicidal thoughts and potential associations (i.e., strength and direction) with caregiver characteristics or factors. A targeted survey was distributed to dementia caregivers aged 55+ years. Questions concerning psychological distress, suicidal thoughts while caregiving and antecedents of suicidal behaviours were administered. A sample of 71 French-speaking Canadian caregivers completed the survey between May and October 2019. Among them, 52.1 per cent (n = 37) reported suicidal ideation while providing care to a relative or a friend living with dementia. Caregivers who presented suicidal ideation reported more abusive behaviour toward the care recipient. Caregivers who reported suicidal thoughts were significantly more distressed than caregivers without them on measures of burden, depression, and anxiety. Suicidal thoughts in caregivers are important evaluation targets, primarily for the prevention of suicide, but also because caregivers who report suicidal thoughts also present a heightened risk for abusing the care recipient.

Résumé

Résumé

Cette étude visait à explorer la prévalence des pensées suicidaires et leurs associations potentielles (notamment dans l’intensité et l’orientation) avec les caractéristiques ou les facteurs des proches aidants. Une enquête ciblée a été distribuée aux proches aidants de personnes atteintes de démence âgées de plus de 55 ans. Des questions concernant la détresse psychologique, les pensées suicidaires pendant la prestation de soins et les antécédents de comportements suicidaires ont été posées. Un échantillon de 71 proches aidants canadiens francophones a répondu à l’enquête entre mai et octobre 2019. Parmi eux, 52,1 per cent (n = 37) ont déclaré avoir eu des idées suicidaires alors qu’ils prodiguaient des soins à un.e parent.e ou un.e ami.e atteint.e de démence. Les proches aidants qui ont déclaré avoir des idées suicidaires ont rapporté plus de comportements abusifs envers le bénéficiaire des soins. Par rapport aux proches aidants qui n’avaient pas d’idées suicidaires, ceux qui en avaient manifestaient un niveau de détresse significativement plus élevé, d’après les paramètres du fardeau, de la dépression et de l’anxiété. Les pensées suicidaires chez les proches aidants sont des cibles d’évaluation importantes, principalement pour la prévention du suicide, mais aussi parce que les proches aidants qui font état de pensées suicidaires présentent également un risque accru de maltraitance à l’égard du bénéficiaire des soins.

Type
Article
Copyright
© Canadian Association on Gerontology 2024

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. JAMA, 311(10), 10521060.Google Scholar
Aging Clinical Research Center. (n.d.). Geriatric depression scale. Retrieved January 2020 from http://www.stanford.edu/~yesavage/GDS.html.Google Scholar
Beck, A. T., Kovacs, M., & Weissman, A. (1979). Assessment of suicidal intention: the Scale for Suicide Ideation. Journal of Consulting and Clinical Psychology, 47(2), 343. https://doi.org/10.1037/0022-006X.47.2.343Google Scholar
Beck, A. T., Steer, R. A., & Ranieri, W. F. (1988). Scale for suicide ideation: Psychometric properties of a self‐report version. Journal of Clinical Psychology, 44(4), 499505.Google Scholar
Beghi, M., Butera, E., Cerri, C. G., Cornaggia, C. M., Febbo, F., Mollica, A., Berardino, G., Piscitelli, D., Resta, E., & Logroscino, G. (2021). Suicidal behaviour in older age: A systematic review of risk factors associated to suicide attempts and completed suicides. Neuroscience & Biobehavioral Reviews 127, 193211.Google Scholar
Blais, M. R., Vallerand, R. J., Pelletier, L. G., & Brière, N. M. (1989). L’échelle de satisfaction de vie : Validation canadienne-française du “Satisfaction With Life Scale”. Canadian Journal of Behavioural Science, 21(2), 210223.Google Scholar
Broady, T. R., Saich, F., & Hinton, T. (2018). Caring for a family member or friend with dementia at the end of life: A scoping review and implications for palliative care practice. Palliative Medicine, 32(3), 643656. https://doi.org/10.1177/0269216317748844Google Scholar
Brodaty, H., Woodward, M., Boundy, K., Ames, D., Balshaw, R., & Group, P. S. (2014). Prevalence and predictors of burden in caregivers of people with dementia. The American Journal of Geriatric Psychiatry, 22(8), 756765.CrossRefGoogle ScholarPubMed
Calasanti, T., & Bowen, M. E. (2006). Spousal caregiving and crossing gender boundaries: Maintaining gendered identities. Journal of Aging Studies, 20(3), 253263.CrossRefGoogle Scholar
Cheng, S.-T. (2017). Dementia caregiver burden: A research update and critical analysis. Current Psychiatry Reports, 19(9), 64. https://doi.org/10.1007/s11920-017-0818-2CrossRefGoogle ScholarPubMed
Corna, L. M., Cairney, J., & Streiner, D. L. (2010). Suicide ideation in older adults: relationship to mental health problems and service use. The Gerontologist, 50(6), 785797.Google Scholar
D’Ath, P., Katona, P., Mullan, E., Evans, S., & Katona, C. (1994). Screening, detection and management of depression in elderly primary care attenders. I: The acceptability and performance of the 15 item Geriatric Depression Scale (GDS15) and the development of short versions. Family Practice, 11(3), 260266.Google Scholar
Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49(1), 7175. https://doi.org/10.1207/s15327752jpa4901_13Google Scholar
Dong, X. Q. (2015). Elder abuse: Systematic review and implications for practice. Journal of the American Geriatrics Society, 63(6), 12141238.CrossRefGoogle ScholarPubMed
Éthier, S., Beaulieu, M., Perroux, M., Andrianova, A., Fortier, M., Boisclair, F., & Guay, M.-C. (2020). Favoriser la bientraitance pour que proche aidance ne rime plus avec maltraitance.Google Scholar
Fässberg, M. M., Cheung, G., Canetto, S. S., Erlangsen, A., Lapierre, S., Lindner, R., et al. (2016). A systematic review of physical illness, functional disability, and suicidal behaviour among older adults. Aging & Mental Health, 20(2), 166194.Google Scholar
Fredriksen-Goldsen, K. I., & Hooyman, N. R. (2005). Caregiving research, services, and policies in historically marginalized communities: Where do we go from here? Journal of Gay & Lesbian Social Services: Issues in Practice, Policy & Research, 18(3–4), 129145. https://doi.org/10.1300/J041v18n03_08CrossRefGoogle Scholar
Gauthier, J., & Bouchard, S. (1993). Adaptation canadienne-française de la forme révisée du State-Trait Anxiety Inventory de Spielberger. Canadian Journal of Behavioural Science, 25(4), 559578.Google Scholar
Givens, J. L., Mezzacappa, C., Heeren, T., Yaffe, K., & Fredman, L. (2014). Depressive symptoms among dementia caregivers: role of mediating factors. American Journal of Geriatric Psychiatry, 22(5), 481488. https://doi.org/10.1016/j.jagp.2012.08.010Google Scholar
Hébert, R., Bravo, G., & Girouard, D. (1993). Fidélité de la traduction française de trois instruments d’évaluation des aidants naturels de malades déments. Canadian Journal on Aging / La Revue canadienne du vieillissement, 12(3), 324337. https://doi.org/10.1017/S0714980800013726CrossRefGoogle Scholar
Hinton, L., Zweifach, M., Tang, L., Unützer, J. r., & Oishi, S. (2006). Gender disparities in the treatment of late-life depression: Qualitative and quantitative findings from the IMPACT trial. The American Journal of Geriatric Psychiatry, 14(10), 884892. https://doi.org/10.1097/01.JGP.0000219282.32915.a4Google Scholar
Joling, K. J., O’Dwyer, S. T., Hertogh, C. M. P. M., & van Hout, H. P. J. (2018). The occurrence and persistence of thoughts of suicide, self‐harm and death in family caregivers of people with dementia: A longitudinal data analysis over 2 years. International Journal of Geriatric Psychiatry, 33(2), 263270. https://doi.org/10.1002/gps.4708CrossRefGoogle ScholarPubMed
Joling, K. J., van Marwijk, H. W. J., Veldhuijzen, A. E., van der Horst, H. E., Scheltens, P., Smit, F. et al. (2015). The two-year incidence of depression and anxiety disorders in spousal caregivers of persons with dementia: Who is at the greatest risk? The American Journal of Geriatric Psychiatry, 23(3), 293303. https://doi.org/10.1016/j.jagp.2014.05.005Google Scholar
Krause, N. (1990). Measuring social support among older adults. The International Journal of Aging, 30(1), 3753.Google Scholar
Lapierre, S., Desjardins, S., Préville, M., Berbiche, D., & Marcoux, L. (2015). Wish to die and physical illness in older adults. Psychology, 5(2), 125137.Google Scholar
Luoma, J. B., Martin, C. E., & Pearson, J. L. (2002). Contact with mental health and primary care providers before suicide: A review of the evidence. American Journal of Psychiatry, 159(6), 909916. https://doi.org/10.1176/appi.ajp.159.6.909Google Scholar
Matsuda, O. (2007). An assessment of the attitudes of potential caregivers toward the abuse of elderly persons with and without dementia. International Psychogeriatrics, 19(5), 892901. https://doi.org/10.1017/S1041610206004789Google Scholar
Mc Donnell, E., & Ryan, A. (2013). Male caregiving in dementia: A review and commentary. Dementia, 12(2), 238250.Google Scholar
McClure, J. R., Criqui, M. H., Macera, C. A., Ji, M., Nievergelt, C. M., & Zisook, S. (2015). Prevalence of suicidal ideation and other suicide warning signs in veterans attending an urgent care psychiatric clinic. Comprehensive Psychiatry, 60, 149155. https://doi.org/10.1016/j.comppsych.2014.09.010Google Scholar
McDowell, I. & Newell, C. (1996). Measuring health: A guide to rating scales and questionnaires (2nd ed.). Oxford University Press.Google Scholar
O’Connor, D. L. (2007). Self-identifying as a caregiver: Exploring the positioning process. Journal of Aging Studies, 21(2), 165174. https://doi.org/10.1016/j.jaging.2006.06.002Google Scholar
O’Dwyer, S. T., Janssens, A., Sansom, A., Biddle, L., Mars, B., Slater, T., et al. (2021). Suicidality in family caregivers of people with long-term illnesses and disabilities: A scoping review. Comprehensive Psychiatry, 110, 152261.Google Scholar
O’Dwyer, S. T., Moyle, W., & Van Wyk, S. (2013). Suicidal ideation and resilience in family carers of people with dementia: A pilot qualitative study. Aging & Mental Health, 17(6), 753760.CrossRefGoogle ScholarPubMed
O’Dwyer, S. T., Moyle, W., Zimmer-Gembeck, M., & De Leo, D. (2016). Suicidal ideation in family carers of people with dementia. Aging & Mental Health, 20(2), 222230.CrossRefGoogle ScholarPubMed
O’Dwyer, S. T., Moyle, W., Zimmer‐Gembeck, M., & De Leo, D. (2013). Suicidal ideation in family carers of people with dementia: A pilot study. International Journal of Geriatric Psychiatry, 28(11), 11821188.Google Scholar
Park, B., Kim, S. Y., Shin, J. Y., Sanson-Fisher, R. W., Shin, D. W., Cho, J., et al. (2013). Suicidal ideation and suicide attempts in anxious or depressed family caregivers of patients with cancer: A nationwide survey in Korea. PLoS One, 8(4), e60230. https://doi.org/10.1371/journal.pone.0060230Google Scholar
Pinquart, M., & Sorensen, S. (2011). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychological Aging, 26(1), 114. https://doi.org/10.1037/a0021863Google Scholar
Schoenmakers, B., Buntinx, F., & Delepeleire, J. (2010). Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas, 66(2), 191200. https://doi.org/10.1016/j.maturitas.2010.02.009Google Scholar
Solimando, L., Fasulo, M., Cavallero, S., Veronese, N., Smith, L., Vernuccio, L., et al. (2022). Suicide risk in caregivers of people with dementia: A systematic review and meta-analysis. Aging Clinical and Experimental Research, 34(10), 22552260.CrossRefGoogle ScholarPubMed
Sörensen, S., Duberstein, P., Gill, D., & Pinquart, M. (2006). Dementia care: Mental health effects, intervention strategies, and clinical implications. Lancet Neurology, 5(11), 961973. https://doi.org/10.1016/S1474-4422(06)70599-3CrossRefGoogle ScholarPubMed
Spielberger, C. D., & Gorsuch, R. L. (1983). Manual for the state-trait anxiety inventory (Form Y) : (“self-evaluation questionnaire”). Consulting Psychologists Press, Inc.Google Scholar
Stansfeld, S., Smuk, M., Onwumere, J., Clark, C., Pike, C., McManus, S., et al. (2014). Stressors and common mental disorder in informal carers – An analysis of the English Adult Psychiatric Morbidity Survey 2007. Social Science & Medicine, 120, 190198. https://doi.org/10.1016/j.socscimed.2014.09.025Google Scholar
Teasdale-Dubé, A., & Viau-Quesnel, C. (2022). Suicidal ideation among older family caregivers for a person with dementia. Clinical Gerontologist, 5, 114. https://doi.org/10.1080/07317115.2021.2019864Google Scholar
Vaidyanathan, S., Rupesh, E., Subramanyam, A., Trivedi, S., Pinto, C., & Kamath, R. (2018). Disability and caregiver burden: Relation to elder abuse [Original Article]. Journal of Geriatric Mental Health, 5(1), 3034. https://doi.org/10.4103/jgmh.jgmh_8_17Google Scholar
Vasiliadis, H. M., Gagne, S., & Preville, M. (2012). Gender differences in determinants of suicidal ideation in French-speaking community living elderly in Canada. International Psychogeriatric, 24(12), 20192026. https://doi.org/10.1017/S1041610212001251CrossRefGoogle ScholarPubMed
Wiktorsson, S., Berg, A. I., Wilhelmson, K., Mellqvist Fässberg, M., Van Orden, K., Duberstein, P., et al. (2016). Assessing the role of physical illness in young old and older old suicide attempters. International Journal of Geriatric Psychiatry, 31(7), 771774.Google Scholar
Wonde, M., Mulat, H., Birhanu, A., Biru, A., Kassew, T., & Shumet, S. (2019). The magnitude of suicidal ideation, attempts and associated factors of HIV positive youth attending ART follow ups at St. Paul’s hospital Millennium Medical College and St. Peter’s specialized hospital, Addis Ababa, Ethiopia, 2018. PLoS One, 14(11), e0224371. https://doi.org/10.1371/journal.pone.0224371Google Scholar
Yesavage, J. A., & Sheikh, J. I. (1986). Geriatric depression scale (GDS) recent evidence and development of a shorter version. Clinical Gerontologist, 5(1–2), 165173.Google Scholar
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of impaired elderly: Correlates of feeling of burden. The Gerontologist, 20(6), 649655.Google Scholar