Skip to main content Accessibility help
×
×
Home

Stakeholder Meeting: Integrated Knowledge Translation Approach to Address the Caregiver Support Gap

  • Jayna M. Holroyd-Leduc (a1), Jacqueline McMillan (a2), Nathalie Jette (a3), Suzette C. Brémault-Phillips (a4), Wendy Duggleby (a5), Heather M. Hanson (a6) and Jasneet Parmar (a7)...

Abstract

Family caregivers are an integral and increasingly overburdened part of the health care system. There is a gap between what research evidence shows is beneficial to caregivers and what is actually provided. Using an integrated knowledge translation approach, a stakeholder meeting was held among researchers, family caregivers, caregiver associations, clinicians, health care administrators, and policy makers. The objectives of the meeting were to review current research evidence and conduct multi-stakeholder dialogue on the potential gaps, facilitators, and barriers to the provision of caregiver supports. A two-day meeting was attended by 123 individuals. Three target populations of family caregivers were identified for discussion: caregivers of seniors with dementia, caregivers in end-of-life care, and caregivers of frail seniors with complex health needs. The results of this meeting can and are being used to inform the development of implementation research endeavours and policies targeted at providing evidence-informed caregiver supports.

Les aidants familiaux sont une partie intégrante et de plus en plus débordée du système de soins de santé. Il y a un écart entre ce que les données de recherche démontrent être bénéfique pour les soignants et ce qui est réellement fourni. À l’aide d’une approche basée sur l’application intégrée des connaissances (AC), une réunion des intervenants a inclus des chercheurs, des aidants familiaux, des associations de soignants, des cliniciens, des administrateurs de soins de santé et des décideurs. Les objectifs de la réunion étaient d’examiner les données issues des recherches en cours et de tenir un dialogue entre les intervenants multiples sur les lacunes, les facilitateurs et les obstacles à la fourniture d’un soutien aux aidants naturels. Cent vingt-trois individus ont participé à cette réunion. Trois populations cibles des aidants familiaux ont été identifiées pour discussion: soignants d’aînés atteints de démence, soignants en fin de vie et soignants d’aînés ayant des besoins de santé complexes. Les résultats de cette réunion sont et seront utilisés pour éclairer le développement des efforts visant à mettre en œuvre à la fois des recherches et des politiques afin de fournir un soutien aux aidants familiaux en se basant sur les preuves.

Copyright

Corresponding author

La correspondance et les demandes de tirés-à-part doivent être adressées à : / Correspondence and requests for offprints should be sent to: Dr. Jayna Holroyd-Leduc Foothills Medical Center, South Tower Room 1104, 1403-29th St NW Calgary, AB T2N 2T9 (jayna.holroyd-leduc@albertahealthservices.ca)

Footnotes

Hide All
* Funding and Ethics: This project was funded by a Canadian Institutes of Health Research (CIHR) planning grant and by contributions from the Alberta Health Services Seniors Health Strategic Clinical Network, Covenant Health, the Alberta Caregiver Association, and the Alzheimer’s Society of Alberta and Northwest Territories. N. Jette is the holder of a Canada Research Chair Tier 2 in Neurological Health Services Research. Ethics approval was obtained from the University of Alberta Research Ethics Board.

Footnotes

References

Hide All
Bass, D. M., McClendon, M. J., Brennan, P. F., & McCarthy, C. (1998). The buffering effect of a computer support network on caregiver strain. Journal of Aging and Health, 10(1), 2043.
Bauer, M., Fitzgerald, L., Haesler, E., & Manfrin, M. (2009). Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence. Journal of Clinical Nursing, 18, 25392546.
Baumgarten, M., Lebel, P., Laprise, H., Leclerc, C., & Quinn, C. (2002). Adult day care for the frail elderly: Outcomes, satisfaction and cost. Journal of Aging and Health, 14(2), 237259.
Beauchamp, N., Irvine, A. B., Seeley, J., & Johnson, B. (2005). Worksite-based internet multimedia program for family caregivers of persons with dementia. The Gerontologist, 45(6), 793801.
Bee, P., Barnes, P., & Luker, K. A. (2008). A systematic review of informal caregivers’ needs in providing home-based end-of-life care to people with cancer. Journal of Clinical Nursing, 18, 13791393.
Brémault-Phillips, S., Parmar, J., Johnson, M., Tian, V., Mann, A., Huhn, A., & Sacrey, LA. (2016). The voices of family caregivers of seniors with chronic conditions: A window into their experience. SpringerPlus, 5(1), 111.
Candy, B., Jones, L., Drake, R., Leurent, B., & King, M. (2011). Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database of Systematic Reviews, I6, CD007617.
Casper, G., Calvitti, A., Brennan, P. F., & Overholt, J. L. (1995). ComputerLink: The impact of a computer network on Alzheimer’s caregivers’ decision-making confidence and skill. Medinfo, 8, 1546.
Eisdorfer, C., Lowenstein, D. A., Rubert, M. P., Arguelles, S., Mitrani, V. B., & Szapocznik, J. (2003). The effect of a family therapy and technology-based intervention on caregiver depression. The Gerontologist, 43(4), 521531.
Graham, I. D., Logan, J., Harrison, M. B., Straus, S. E., Tetroe, J., Caswell, W., & Robinson, N. (2006). Lost in knowledge translation: Time for a map? Journal of Continuing Education in the Health Professions, 26(1), 1324.
Godwin, K., Mills, W. L., Anderson, J. A., & Kunik, M. E. (2013). Technology-driven interventions for caregivers of persons with dementia: A systematic review. American Journal of Alzheimer’s Disease and Other Dementias, 28(3), 216222.
Harding, R., List, S., Epiphaniou, E., & Jones, H. (2012). How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliative Medicine, 26(7), 722.
Lopez-Hartmann, M., Wens, J., Verhoeven, V., & Remmen, R. (2012). The effect of caregiver support interventions for informal caregivers of community-dwelling frail elderly: A systematic review. International Journal of Integrated Care, 12, e133.
Mahoney, D., Tarlow, B. J., & Jones, R. N. (2003). Effects of an automated telephone support system on caregiver burden and anxiety: Findings from the REACH for TLC intervention study. The Gerontologist, 43(4), 556567.
Marziali, E., & Donahue, P. (2006). Caring for others: Internet video conferencing group intervention for family caregivers of older adults with neurodegenerative disease. The Gerontologist, 46(3), 398403.
Mason, A., Weatherly, H., Spilsbury, K., Golder, S., Arksey, H., Adamson, J., & Drummond, M. (2007). The effectiveness and cost-effectiveness of respite for caregivers of frail older people. Journal of the American Geriatrics Society, 55(2), 290299.
McMillan, S. C., Small, B. J., Weitzner, M., Schonwetter, R., Tittle, M., Moody, L., & Haley, W. E. (2006). Impact of coping skills intervention with family caregivers of hospice patients with cancer. Cancer, 106(1), 214222.
Melis, R. J., van Eijken, M. I., van Achterberg, T., Teerenstra, S., Vernooij-Dassen, M. J., van de Lisdonk, E. H., & Rikkert, M. G. O. (2009). The effect on caregiver burden of a problem-based home visiting programme for frail older people. Age and Ageing, 38(5), 542547.
Powell, J., Chiu, T., & Eysenbach, G. (2008). A systematic review of networked technologies supporting carers of people with dementia. Journal of Telemedicine and Telecare, 14(3), 154156.
Smith, T., & Toseland, R. W. (2006). The effectiveness of a telephone support program for caregivers of frail older adults. The Gerontologist, 46(5), 620629.
Stajduhar, K., Funk, I., Toye, C., Grande, G., Aoun, S., & Todd, C. (2010). Part 1: Home-based family caregiving at the end of life: A comprehensive review of published quantitative research (1998–2008). Palliative Medicine, 24, 573–93.
Toseland, R., McCallion, P., Smith, T., & Banks, S. (2004). Supporting caregivers of frail older adults in an HMO setting. American Journal of Orthopsychiatry, 74(3), 349364.
World Health Organization (WHO) and Alzheimer’s Disease International. (2012). Dementia: A public health priority. Geneva, Switzerland: WHO.
Yin, T., Zhou, Q., & Bashford, C. (2002). Burden on family members: Caring for frail elderly: A meta-analysis of interventions. Nursing Research, 51(3), 199208.
You, E C., Dunt, D., Doyle, C., & Hsueh, A. (2012). Effects of case management in community aged care on client and carer outcomes: A systematic review of randomized trials and comparative observational studies. BMC Health Services Research, 12, 395.
Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

Canadian Journal on Aging / La Revue canadienne du vieillissement
  • ISSN: 0714-9808
  • EISSN: 1710-1107
  • URL: /core/journals/canadian-journal-on-aging-la-revue-canadienne-du-vieillissement
Please enter your name
Please enter a valid email address
Who would you like to send this to? *
×

Keywords

Metrics

Altmetric attention score

Full text views

Total number of HTML views: 0
Total number of PDF views: 0 *
Loading metrics...

Abstract views

Total abstract views: 0 *
Loading metrics...

* Views captured on Cambridge Core between <date>. This data will be updated every 24 hours.

Usage data cannot currently be displayed