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Positive Aspects in Caregiving: An Overlooked Variable in Research*

Published online by Cambridge University Press:  29 November 2010

C. A. Cohen
Affiliation:
Sunnybrook Health Science Centre
D. Pushkar Gold
Affiliation:
Concordia University
K. I. Shulman
Affiliation:
Sunnybrook Health Science Centre
C. A. Zucchero
Affiliation:
Sunnybrook Health Science Centre

Abstract

This paper reviews the different concepts and measures of positive aspects of caregiving that have been used in previous studies. It describes the use of a simple measure of “enjoyable aspects of caregiving” used in a large longitudinal Canadian study of dementia care in the community. The measure attained significant test-retest reliability and significantly correlated with caregiver burden and health. It also predicted caregiver desire to institutionalize the care recipient at three different time periods but not actual institutionalization. The paper calls for greater use of measures related to positive aspects of caregiving and a better understanding of how these measures relate to one another and to outcomes.

Résumé

Cet article passe en revue les divers concepts et les diverses mesures reliées aux aspects positifs de la prise en charge qui ont fait l'objet d'études antérieures. Il décrit également une mesure simple des «aspects plaisants de la prise en charge» utilisée par un projet longitudinal canadien sur le soin accordé aux patients atteints de démence et résidant dans la communauté. Le taux de fidélité test-retest de cette mesure est significatif, ême que les corrélations avec le fardeau de la prise en charge et la santé du donneur de soins. Cette variable prédit également le désir d'institutionnaliser le bénéficiaire, et ce à trois étapes différentes de la prise en charge, mais ne prédit pas l'institutionnalisation comme telle. Cet article conclut qu'il devrait y avoir davantages de mesures reliées aux aspects positifs de la prise en charge et une meilleure compréhension des interactions entre ces variables et leurs répercussions sur les facteurs principaux liés au patient et au donneur de soins.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 1994

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References

Blishen, B.R., & McRoberts, H.A. (1976). A revised socioeconomic index for occupations in Canada. The Canadian Review of Sociology and Anthropology, 13(1), 7179.CrossRefGoogle Scholar
Cantor, M.H. (1983). Stress among caregivers: A study of experience in the United States. The Gerontologist, 23, 597604.CrossRefGoogle Scholar
Costa, P.T. Jr, & McCrae, R.R. (1984). Personality as a life long determinant of well-being. In Malatesta, C.Z. & Izard, C.E. (Eds.), Emotion in Adult Development. Beverly Hills, CA: Sage.Google Scholar
Folstein, M.F., Folstein, S.E., & McHugh, P.R. (1975). Mini-Mental State: A practical guide for grading the cognitive state of patients for the clinician. Journal of Psychiatry Research, 12, 189198.CrossRefGoogle Scholar
George, L.K., & Gwyther, L.P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253259.CrossRefGoogle ScholarPubMed
Gilleard, C.J., Belford, H., Gilleard, E., Gledhill, K., & Whittick, J.E. (1984). Emotional distress amongst the supporters of the elderly infirm. British Journal of Psychiatry, 145, 172177.CrossRefGoogle Scholar
Gold, D.P., Cohen, C., Shulman, K., Andres, D., Etezadi, J., & Zucchero, C. Caregiving and dementia: A test of a model of negative and positive outcomes. Under review.Google Scholar
Gold, D.P., Reis, M.F., Markiewicz, D., & Andres, D. When caregiving ends: A longitudinal study of caregiving outcomes. Under review.Google Scholar
Goldberg, D.P. (1978). Manual of the General Health Questionnaire. Windsor, ON: Nelson Publishing.Google Scholar
Haley, W.E., Levine, E.G., Brown, S.L., & Bertolucci, A.A. (1987). Stress, appraisal, coping and social support as predictors of adaptational outcome among dementia caregivers. Psychology and Aging, 4, 402408.Google Scholar
Kinney, J.M., & Stephens, M.P. (1989). Hassles and uplifts of giving care to a family member with dementia. Psychology and Aging, 2, 323330.Google Scholar
Kobassa, S.C. (1979). Stressful life events, personality and health: An inquiry into hardiness. Journal of Personality and Social Psychology, 42, 168177.Google Scholar
Lawton, M.P., Kleban, M.H., Moss, M., Rovine, M., & Glicksman, A. (1989). Measuring caregiver appraisal. Journal of Gerontology, 44, 6171.CrossRefGoogle Scholar
Lawton, M.P., Moss, M., Kleban, M.H., Glicksman, A., & Rovine, M. (1991). A twofactor model of caregiving: appraisal and psychological well-being. Journal of Gerontology, 46, 181189.CrossRefGoogle ScholarPubMed
Lazarus, R.S., & Folkman, S. (1984). Stress, appraisal and coping. New York: Springer Publishing Company.Google Scholar
Morris, R.G., Morris, L.W., & Britton, P.G. (1988). Factors affecting the emotional well-being of the caregivers of dementia sufferers. British Journal of Psychiatry, 153, 147156.CrossRefGoogle Scholar
Motenko, A.K. (1989). The frustrations, gratification, and well-being of dementia caregivers. The Gerontologist, 29, 166172.CrossRefGoogle ScholarPubMed
O'Connor, D. (1993). The impact of dementia: A self-psychological perspective. Journal ofGerontological Social Work, 20(3/4), 113128.CrossRefGoogle Scholar
Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583594.CrossRefGoogle ScholarPubMed
Poulshock, S.W., & Deimling, G.T. (1984). Families caring for elders in residence: Issues in the measurement of burden. Journal of Gerontology, 39, 230239.CrossRefGoogle ScholarPubMed
Pruchno, R.A., Michaels, J.E., & Potashnik, S.L. (1990). Predictors of institutionalization among Alzheimer disease victims with caregiving spouses. Journal of Gerontology, 23, 597604.Google Scholar
Reis, M.F., Gold, D.P., Andres, D., Markiewicz, D., & Gauthier, S. (in press). Personality traits as determinants of burden and health complaints in caregiving. International Journal of Aging and Human Development.Google Scholar
Sarason, L.G., Levine, H.M., Barham, R.B., & Sarason, B.R. (1983). Assessing social support: The social support questionnaire. Journal of Personality and Social Psychology, 44, 127139.CrossRefGoogle Scholar
Walker, A.J., & Allen, K.R. (1991). Relationship between caregiving daughters and their elderly mothers. The Gerontologist, 31, 389396.CrossRefGoogle ScholarPubMed
Zárit, S.H., Orr, N.K., & Zarit, J.M. (1985). The Hidden Victim of Alzheimer's Disease (pp. 7879, 84–85). New York: New York University Press.Google Scholar
Zarit, S.H., Reever, K.E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist, 20, 649655.CrossRefGoogle ScholarPubMed