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Formal Service Practitioners' Views of Family Caregivers' Responsibilities and Difficulties*

Published online by Cambridge University Press:  31 March 2010

Nancy Guberman
Affiliation:
École de Travail social, Université du Québec à Montréal Research Centre of the Institute of Social Gerontology, CSSS Cavendish
Jean-Pierre Lavoie
Affiliation:
Research Centre of the Institute of Social Gerontology, CSSS Cavendish Direction de la santé publique de Montréal-Centre
Jacinthe Pepin
Affiliation:
École des sciences infirmiéres, Université de Montréal
Sylvie Lauzon
Affiliation:
École des sciences infirmiéres, Université d'Ottawa
Corresponding
E-mail address:

Abstract

This article identifies home care practitioners' perceptions of the responsibilities, difficulties, and needs for support of caregivers. It is based on a study undertaken in Quebec with 55 practitioners and 10 administrators from 10 CLSCs located in rural, urban, and metropolitan areas. The study had a qualitative, multiple-case design and used logs recording all contact with caregivers in the space of a week, followed by semi-structured interviews. Analysis reveals that practitioners tend to perceive the work of caregivers as mainly instrumental and clinical, ignoring the family relations that tie them to their relative. Although aware of the difficulties facing caregivers and the negative impacts of caregiving, a majority of practitioners have high expectations of caregiver participation in treatment plans, albeit as quasi-nurse's aides. Our analysis offers an explanation for this apparent contradiction by examining practitioners' values with regard to family responsibility for care.

Résumé

Cet article porte sur les représentations des intervenants concernant les responsabilités, difficultés et besoins de soutien des proches aidants. Il se base sur une étude menée au Québec aupre`s de 55 intervenantes et 10 gestionnaires de services à domicile de 10 CLSC de milieux urbain, rural et métropolitain. (L'utilisation du féminin traduit le fait que les groupes étaient constitués majoritairement de femmes.) L'étude, de type qualitatif, recourait à des journaux de bord hebdomadaires remplis par les répondantes indiquant chaque contact avec une proche aidante et à des entretiens semi-dirigés. L'analyse a fait ressortir que les intervenantes voient surtout le travail instrumental et clinique effectué par les aidantes, évacuant la dimension familiale ou conjugale du lien entre l'aidante et son parent. Malgré leur constat que les aidantes subissent de nombreuses répercussions négatives de leur engagement, une majorité des intervenantes s'attendent à ce que les aidantes assument un rô le d'aide-soignante. Notre analyse offre une explication à cette contradiction apparente en examinant les valeurs des intervenantes concernant la responsabilité des familles eu égard à l'aide et aux soins aux proches.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2006

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Footnotes

*

This research was funded by the Conseil québécois de la recherche sociale

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