Barber, B., & Buehler, C. (1996). Family cohesion and enmeshment: Different constructs, different effects. Journal of Marriage and Family, 58 (2), 443–441. doi: 10.2307/353507
Barney, L.J., Griffiths, K.M., Jorm, A.F., & Christensen, H. (2006). Stigma and depression and its impact on help-seeking intentions. Australian and New Zealand Journal of Psychiatry, 40 (1), 51–54. doi: 10.1080/j.1440-1614.2006.01741.x
Baxter, P., & Jack, S. (2008). Qualitative case study methodology: Study design and implementation for novice researchers. The Qualitative Report, 13 (4), 544–59.
Bellon, M., Walker, C., Peterson, C., & Cookson, P. (2013). The “e” word: Epilepsy and perceptions of unfair treatment from the 2010 Australian epilepsy longitudinal survey. Epilepsy & Behaviour, 27 (1), 251–56.
Berridge, K.C., & Kringelbach, M.L. (2011). Building a neuroscience of pleasure and well-being. Psychology of Well Being, 1 (1), 1–26. doi:10.1186/2211-1522-1-3.
Biggerstaff, D., & Thompson, A.R. (2008). Interpretative phenomenological analysis (IPA): A qualitative methodology of choice in healthcare research. Qualitative Research in Psychology, 5 (3), 214–224.
Billson, J.M. (2005). No owner of soil: Redefining the concept of marginality. In Dennis, R. (Ed.), Marginality, power, and social structure: Issues in race, class, and gender analysis. (pp. 29–47). Boston: Elsevier.
Bressi, C., Cornaggia, C.M., Beghi, M., Iandoli, I.I., & Invernizzi, G. (2007). Epilepsy and family expressed emotion: Results of a prospective study. Seizure, 16 (5), 417–423. doi: 10.1016/j.seisure.2007.02.015
Burman, B., & Margolin, G. (1992). Analysis of the association between marital relationships and health problems: An interactional perspective. Psychological Bulletin, 112 (1), 39–63. ISSN: 0033–2909.
Clusmann, H., Schramm, J., Kral, T., Helmstaedter, C., Ostertun, B., Fimmers, R., Haun, D., & Elger, C.E. (2002). Prognostic factors and outcome after different types or resection for temporal lobe epilepsy. Journal of Neurosurgery. 97 (5), 1131–1141.
Courtenay, W.H. (2000). Constructions of masculinity and their influence on men's well-being: A theory of gender and health. Social Science & Medicine, 50 (10), 1385–1401.
Dickson, P., & Looper, K.J. (2012). Psychogenic non-epileptic seizures: A current overview. Epilepsia, 53 (10), 1672–1689. doi: 10.1111/j.1528-1167.2012.03606.x
Diener, E., & Ryan, K. (2009). Subjective well-being: A general overview. South African Journal of Psychology, 39 (4), 391–406.
Elger, G., & Elger, C.E. (2001). Presurgery psychiatric workup. In Lüders, H.O., & Comair, Y.G. (Eds.), Epilepsy surgery. 2nd ed. (pp. 469–475). Philadelphia, PA: Lippincott Williams & Wilkins.
Englot, D.J., Wang, D.D., Rolston, J.D., Shih, T.T., & Chang, E.F. (2012). Rates and predictors of long-term seizure freedom after frontal lobe epilepsy surgery: A systematic review and meta-analysis. Clinical article. Journal of Neurosurgy, 116, 1042–1048. doi: https://doi.org/10.3171/2012.1.JNS111620.
Feddersen, B., Herzer, R., Hartmann, U., Gaab, M.R., & Runge, U. (2005). On the psychopathology of unilateral temporal lobe epilepsy. Epilepsy & Behaviour, 6 (1), 43–49.
Fisher, R.S., van Emde Boas, W., Blume, W., Elger, C., Genton, P., Lee, P., & Engel, J. (2005). Epileptic seizures and epilepsy: Definitions proposed by the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE). Epilepsia, 46 (4), 470–472. doi: 10.1111/j.0013-9580.2005.66104.x
Fisher, R.S. et al. (2000). The impact of epilepsy from a patient's perspective II: Views about therapy and health care. Epilepsy Research, 41 (1), 53–61.
Gilbert, F. (2012). The burden of normality: From ‘chronically ill’ to ‘symptom free’. New ethical challenges for deep brain stimulation postoperative treatment. Journal of Medical Ethics, 38 (7), 408–412.
Green, A., Payne, S., & Barnitt, R. (2004). Illness representations among people with non-epileptic seizures attending neuropsychiatry clinic: A qualitative study based on the self-regulation model. Seizure, 13 (5), 331–339.
Henderson, S., & Segal, E. H. (2013) Visualizing qualitative data in evaluation research. In Azzam, T., & Evergeen, S. (Eds.), Data visualization, part 1. New directions for evaluation, 139, 53– 71.
Irvine, H., Davidson, C., Hoy, K., & Lowe-Strong, A. (2018). Psychosocial adjustment to multiple sclerosis: Exploration of identity redefinition. Disability and Rehabilitation, 31 (8), 599–606. doi: 10.1080/09638280802243286
Jacoby, A., Ring, A., Whitehead, M., Marson, A., & Baker, G. A. (2014). Exploring loss and replacement of loss for understanding the impact of epilepsy onset: A qualitative investigation. Epilepsy & Behavior, 33, 59–68. doi: 10.1016/j.yebeh.2014.02.015
Johnson, E.K., Jones, J.E., Seidenberg, M., & Hermann, B.P. (2004). The relative impact of anxiety, depression, and clinical seizure features on health-related quality of life in epilepsy. Epilepsia, 45 (5), 544–550.
Jonzon, A., & Goodwin, D. (2012). Daughters of mothers with multiple sclerosis: Their experiences with play. Adapted Physical Activity Quarterly, 29 (3), 205–223.
Kellet, D., Mpofu, E., & Madden, R. (2013). Reflective action assessment with a prospective clinical problem solving tool in the context of rehabilitation medicine: An illustrative case study. Disability and Rehabilitation, 35 (13), 1048–1054. https://doi.org/10.3109/09638288.2012.720348
Keyes, C.L.M., Fredrickson, B.A., & Park, N. (2012). Positive psychology and the quality of life. In Land, K.C., Michalos, A.C., & Sirgy, M.J. (Eds.), Handbook of social indicators and quality of life research (pp. 99–112). The Netherlands: Springer.
Kivisto, K.L., Welsh, D.P., Darling, N., & Culpepper, C.L. (2015). Family enmeshment, adolescent emotional dysregulation, and the moderating roles of gender. Journal of Family Psychology, 29 (4), 604–613.
Kung, W. (2016). Culture- and Immigration-related stress faced by Chinese American families with a patient having schizophrenia. Journal of Marital Family Therapy, 42 (3), 409–422.
Madden, R. et al. (2015). In search of an integrative measure of functioning. International Journal of Environmental Research and Public Health, 12 (6), 5815–5832. doi: 10.3390/ijerph120605815.
Mahrer-Imhof, R., Jaggi, S., Bonomo, A., Hediger, H., Eggenschwiler, P., Kramer, G., & Oberholzer, E. (2013). Quality of life in adult patients with epilepsy and their family members. Seizure, 22 (2), 128–135.
Marujo, H.À., & Neto, L.M. (2016). Quality of life studies and positive psychology. In Bruni, L., & Porta, P. (Eds.), Handbook of research methods and applications in happiness and quality of life, Chapter 13 (pp. 279–306). Edward Elgar Publishing.
Maschio, M. (2012). Brain tumor-related epilepsy. Current Neuropharmacology, 10 (2), 124–133.
McAdams, C. et al., (2016). The viability of structural family therapy in the twenty-first century: An analysis of key indicators. Contemporary Family Therapy, 38 (3), 255–261.
McPherson, C.J., Wilson, K.G., Chyurlia, L., & Leclerc, C. (2010). The balance of give and take in caregiver–partner relationships: An examination of self-perceived burden, relationship equity, and quality of life from the perspective of care recipients following stroke. Rehabilitation Psychology, 55 (2), 194–203.
Mikati, M.A., Comair, Y.G., Ismail, R., Faour, R., & Rahi, A.C. (2004). Effects of epilepsy surgery on quality of life: A controlled study in a Middle Eastern population. Epilepsy & Behavior, 5 (1), 72–80.
Padrone, F. (1994). Psychotherapeutic issues with family members of persons with physical disabilities. The American Journal of Psychotherapy, 48 (2), 195–207.
Rugg-Gunn, F.J., & Sander, J.W. (2012). Management of chronic epilepsy. BMJ, 345, 41–45.
Scambler, G. (1989). Epilepsy: the experience of illness series. London: Routledge.
Schembri Lia, E., & Abela, A. (2016). Not broken but strengthened: Stories of resilience by persons with acquired physical disability and their families. Australian and New Zealand Journal of Family Therapy, 37 (3), 400–417.
Seidler, Z.E., Dawes, A.J., Rice, S.M., Oliffe, J.L., & Dhillon, H.M. (2016). The role of masculinity in men's help-seeking for depression: A systematic review. Clinical Psychology Review, 49, 106–118. doi: 10.1080/j.cpr.2016.09.002
Shorvon, S.D. (2004). The treatment of epilepsy. In Shorvon, S.D., Perucca, E., Fish, D., & Dodson, E. (Eds.), 2nd Edition. Malden, MA: Blackwell. ISBN 0-632-06046-8
Spencer, S.S., Berg, A.T., Vickrey, B.G., Sperling, M.R., Bazil, C.W., Haut, S., . . . Devinsky, O. (2007). Health-related quality of life over time since respective epilepsy surgery. Annals of Neurology, 62 (4), 327–334. https://doi.ord/10.1002/ana.21131.
Thorbecke, R. (2001). Post-surgery rehabilitation. In Lüders, H.O., & Comair, Y.G. (Eds.), Epilepsy surgery. 2nd ed. (pp. 891–900). Philadelphia, PA: Lippincott Williams & Wilkins.
Voltzenlogel, V. et al. (2016). Giving meaning to illness: An investigation of self-defining memories in patients with relapsing-remitting multiple sclerosis patients. Consciousness and Cognition, 45, 200–209. https://doi.org/10.1016/j.concog.2016.09.010
Warner, D., & Adams, S. (2015). Physical disability and increased loneliness among married older adults: The role of changing social relations. Society and Mental Health, 6 (2), 106–128. doi: 10.1177/2156869315616257.
Wiebe, S., Blume, W.T., Girvin, J.P., & Eliasziw, M. (2001). Effectiveness and efficiency of surgery for temporal lobe epilepsy study group. A randomized, controlled trial of surgery for temporal-lobe epilepsy. New England Journal of Medicine, 345, 311–318.
Wilson, S.J., Bladin, P.F., & Saling, M.M. (2001). The “burden of normality”: Concepts of adjustment after surgery for seizures. Journal of Neurology, Neurosurgery & Psychiatry, 70 (5), 649–656. http://dx.doi.org/10.1136/jnnp.70.5.649
World Health Organization. (2006). Neurological disorders: Public health challenges (pp. 204–07). Switzerland: World Health Organization. ISBN: 978 92 4 156336 9
Yin, R.K. (2009). Case study research: Design and methods. 4th ed. 2009. (vol. 5). Thousand Oaks, CA: Sage.