Skip to main content Accessibility help
×
Hostname: page-component-848d4c4894-m9kch Total loading time: 0 Render date: 2024-06-02T10:51:27.384Z Has data issue: false hasContentIssue false

Choosing Who Will Be Disabled: Genetic Intervention and the Morality of Inclusion

Published online by Cambridge University Press:  04 August 2010

Ellen Frankel Paul
Affiliation:
Bowling Green State University, Ohio
Fred D. Miller, Jr
Affiliation:
Bowling Green State University, Ohio
Jeffrey Paul
Affiliation:
Bowling Green State University, Ohio
Get access

Summary

HOPES AND FEARS OF THE NEW GENETICS

The Nobel prize-winning molecular biologist Walter Gilbert described the mapping and sequencing of the human genome as “the grail of molecular biology.” The implication, endorsed by enthusiasts for the new genetics, is that possessing a comprehensive knowledge of human genetics, like possessing the Holy Grail, will give us miraculous powers to heal the sick, and to reduce human suffering and disabilities. Indeed, the rhetoric invoked to garner public support for the Human Genome Project appears to appeal to the best of the Western tradition's enthusiasm for progress: the idea of improving human lives through the practical application of scientific knowledge.

What is more, the rhetoric of the proponents of the new genetics is explicitly—almost self-consciously—universalistic: genetic science is to serve human beings generally, rather than any particular people or nationality or “race.” In fact, the very understanding which the new science seeks and the manner in which it is sought seem to highlight the importance of what all human beings have in common rather than what differentiates us. And the human genome that is the object of an international network of sequencing and mapping projects is itself a constructed composite, not the genome of any particular person or even a composite representative of any particular group.

Those who advocate social and private investment in the new genetics and support untrammeled scientific freedom to explore the human genome are aware that the “old eugenics”—the social policies of forced sterilization in the United States in the 1920s, 1930s, and beyond, and of the killing of “defective types” in Nazi Germany—casts a long shadow over their endeavors.

Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 1996

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×