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  • Print publication year: 2014
  • Online publication date: December 2014

4 - Ethical, health and safety considerations

References

1. N. Samarasekara, R. A. Salman, I. Huitinga, et al. Brain banking for neurological disorders. Lancet Neurol 2013; 12: 1096–105.
2. H. Kretzschmar. Brain banking: opportunities, challenges and meaning for the future. Nat Rev Neurosci 2009; 10: 70–78.
3. J. E. Bell, I. Alafuzoff, S. Al-Sarraj, et al. Management of a twenty-first century brain bank: experience in the BrainNet Europe consortium. Acta Neuropathol 2008; 115: 497–507.
4. K. Bauer, S. Taub, K. Parsi. Ethical issues in tissue banking for research: a brief review of existing organizational policies. Theor Med Bioeth 2004; 25: 113–42.
5. Nuffield Council on Bioethics. Human bodies: Donation for Medicine and Research. 2011. http://www.nuffieldbioethics.org/donation.
6. Steering Committee on Bioethics. Guide for Research Ethics Committee Members. Council of Europe, 2011. http://www.coe.int/t/dg3/healthbioethic/Activities/02_Biomedical_research_en/Guide/Guide_EN.pdf.
7. Council of Europe. Additional Protocol to the Convention on Human Rights and Biomedicine, concerning Biomedical Research. 2005. http://conventions.coe.int/Treaty/en/Treaties/Html/195.htm.
8. Department of Health. Human Tissue Act. 2004. http://www.legislation.gov.uk/ukpga/2004/30/contents.
9. Department of Health (Scotland). Human Tissue (Scotland) Act. 2006. http://www.legislation.gov.uk/asp/2006/4/contents.
10. C. Porteri, P. Borry. A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes. Patient Educ Counsel 2008; 71: 136–42.
11. Medical Research Council. The UK Brain Banks Network. 2013. http://www.mrc.ac.uk/Ourresearch/Resourceservices/UKBrainBanksnetwork/index.htm.
12. Australian Brain Bank Network. ABBN National Neuroscience Facility. 2012. http://www.austbrainbank.org.au.
14. J. W. Ironside, J. E. Bell. Infective dementias. Panminerva Med 2007; 49: 209–25.
15. World Health Organization. Laboratory Biosafety Manual, 3rd edn. 2004. http://www.who.int/csr/resources/publications/biosafety/en/Biosafety7.pdf.
16. Health and Safety Executive. Safe Working and the Prevention of Infection in Clinical Laboratories and Similar Facilities. Second Edition, 2003. http://www.hse.gov.uk/pubns/priced/clinical-laboratories.pdf.
17. Royal College of Pathologists. Guidelines on Autopsy Practice. 2002. https://www.rcpath.org/Resources/RCPath/Migrated%20Resources/Documents/M/main_document.pdf.
18. J. W. Ironside, J. E. Bell. The “high-risk” neuropathological autopsy in AIDS and Cretzfeldt–Jakob disease: principles and practice. Neuropathol Appl Neurobiol 1996: 22: 388–93.
19. S. Lucas. Autopsies of people with high-risk infections. In: J. L. Burton, G. Rutty (eds). The Hospital Autopsy, 3rd edn. Abingdon: CRC Press. 2010; 71–90.
20. World Health Organization. Guidance on Regulations for the Transport of Infectious Substances. 2007. http://www.who.int/csr/resources/publications/biosafety/WHO_CDS_EPR_2007_2cc.pdf.
21. D. M. Taylor. Inactivation of transmissible degenerative encephalopathy agents. A review. Vet J 2000; 159: 10–17.
22. D. M. Taylor. Preventing accidental transmission of human transmissible spongiform encephalopathies. Br Med Bull 2003; 66: 293–303.
23. Advisory Committee on Dangerous Pathogens. Guidance: Minimise Transmission Risk of CJD and vCJD in Healthcare Settings. 2013. https://www.gov.uk/government/publications/guidance-from-the-acdptse-risk-management-subgroup-formerly-tse-workinggroup.
24. World Health Organization. Infection Control Guidelines for Transmissible Spongiform Encephalopathies. 2003. http://who.int/csr/resources/publications/bse/whocdscsraph2003.pdf.