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13 - A good (enough) death: dissensus in end-of-life care

Published online by Cambridge University Press:  05 June 2012

K. W. M. Fulford
Affiliation:
University of Warwick
Ed Peile
Affiliation:
University of Warwick
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Summary

Topics covered in this chapter

A story from palliative care illustrates the role of dissensus (alongside consensus) in bringing together the elements of values-based practice to support partnership in decision-making.

Other topics include:

  • Multidisciplinary cancer care

  • The National Confidential Enquiry into Patient Outcomes and Death (NCEPOD)

  • Transition from (surgical) cure to (palliative) care

  • Spiritual and religious beliefs

  • Advance care planning (ACP) in end-of-life care

  • Consensus (in evidence-based practice) and dissensus (in values-based practice)

  • Reminders of process elements of values-based practice (VBP flashbacks).

Take-away message for practice

Dissensual decision-making can help usx to build genuine partnerships in working with other team members and with patients and their families.

Partnership between stakeholders in decision-making, although coming tenth in the list of process elements of values-based practice, is last but definitely not least in importance. We will see in this chapter that, as the tenth element, partnership draws together and underpins the process of values-based practice as a whole.

The importance of partnership in values-based decision-making is illustrated in this chapter through the story of a 69-year-old man, Joe Monaghan, after he is found to have disseminated bowel cancer following an emergency admission with acute abdominal symptoms. There has been much talk in such situations of a “good death.” But the surgical team and Joe Monaghan's various family members, as we will see, had very different perspectives on what a “good death” would mean, with Joe Monaghan himself, as is so often the case, at risk of becoming caught between their conflicting best intentions.

Type
Chapter
Information
Essential Values-Based Practice
Clinical Stories Linking Science with People
, pp. 165 - 182
Publisher: Cambridge University Press
Print publication year: 2012

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