Book contents
- Consumer Genetic Technologies
- Consumer Genetic Technologies
- Copyright page
- Contents
- Contributors
- Acknowledgments
- Introduction
- Part I Consumer Genetic Technologies: Rights, Liabilities, and Other Obligations
- Part II Privacy in the Age of Consumer Genetics
- Part III Tinkering with Ourselves: The Law and Ethics of DIY Genomics
- Part IV Consumer Genetics and Identity
- Part V The Impact of Genetic Information
- Introduction to Part V
- 17 An Ethical Framework for Genetic Counseling in the Genomic Era
- 18 Physician-Mediated Elective Whole Genome Sequencing Tests
- 19 Privacy Best Practices for Direct-to-Consumer Genetic Testing Services
- 20 Regulatory and Medical Aspects of DTC Genetic Testing
17 - An Ethical Framework for Genetic Counseling in the Genomic Era
from Part V - The Impact of Genetic Information
Published online by Cambridge University Press: 27 August 2021
Book contents
- Consumer Genetic Technologies
- Consumer Genetic Technologies
- Copyright page
- Contents
- Contributors
- Acknowledgments
- Introduction
- Part I Consumer Genetic Technologies: Rights, Liabilities, and Other Obligations
- Part II Privacy in the Age of Consumer Genetics
- Part III Tinkering with Ourselves: The Law and Ethics of DIY Genomics
- Part IV Consumer Genetics and Identity
- Part V The Impact of Genetic Information
- Introduction to Part V
- 17 An Ethical Framework for Genetic Counseling in the Genomic Era
- 18 Physician-Mediated Elective Whole Genome Sequencing Tests
- 19 Privacy Best Practices for Direct-to-Consumer Genetic Testing Services
- 20 Regulatory and Medical Aspects of DTC Genetic Testing
Summary
Since the inception of their profession, genetic counselors have helped patients and families make decisions influenced by powerful emotions and varied circumstances. In doing so, they have had to reconcile ethical principles with the value pluralism of their patients. While this challenge is not unique in medicine, it has preoccupied genetic counselors disproportionately because such a large share of genetic counseling work involves nuanced discussions about reproductive choices and the impact of difference and disability on people’s lives.
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- Consumer Genetic TechnologiesEthical and Legal Considerations, pp. 233 - 245Publisher: Cambridge University PressPrint publication year: 2021
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