Skip to main content Accessibility help
×
Hostname: page-component-76fb5796d-vfjqv Total loading time: 0 Render date: 2024-04-27T01:18:41.522Z Has data issue: false hasContentIssue false

11 - Advocacy in Service Delivery

from Section 2 - Special Considerations

Published online by Cambridge University Press:  25 June 2018

Gianna Locascio
Affiliation:
NYU Langone Health, New York
Beth S. Slomine
Affiliation:
Kennedy Krieger Institute, Baltimore
Get access

Summary

Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 2018

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1.US Department of Health & Human Services, Administration for Community Living, Administration on Disabilities. Traumatic Brain Injury Program. Reauthorized 2014. https://acl.gov/Programs/AoD/TBI/Index.aspx. (Accessed on December 30, 2016.)Google Scholar
2.National Association of State Head Injury Administrators (NASHIA). Traumatic Brain Injury (TBI) Reauthorization Act of 2014: Overview. www.nashia.org/pdf/nashia_issue_brief_tbiact_2014_revised.pdf. (Accessed on December 14, 2016.)Google Scholar
3.US Department of Health and Human Services. Administration on Community Living. https://acl.gov/About_ACL/Index.aspx. (Accessed on May 7, 2017.)Google Scholar
4.Traumatic Brain Injury ReAuthorization Act of 2014. www.congress.gov/bill/113th-congress/senate-bill/2539/text. (Accessed on May 7, 2017.)Google Scholar
5.Faul, M., Xu, L., Wald, M. M., Coronado, V. G. Traumatic Brain Injury in the United States: Emergency Department Visits, Hospitalizations, and Deaths. Atlanta, GA: Centers for Disease Control and Prevention, National Center for Injury Prevention and Control; 2010.Google Scholar
6.Taylor, C., Bell, J., Breiding, M., and Xu, L. Traumatic brain injury-related emergency department visits, hospitalizations, and deaths – United States, 2007 and 2013. Surveill Summ 2017;66(9):116.CrossRefGoogle ScholarPubMed
7.McCarthy, M., MacKenzie, E., Durbin, D., Aitken, M., Jaffe, K., Paidas, C., Slomine, B., Dorsch, A., Christensen, J., Ding, R. Health related quality of life during the first year after traumatic brain injury. Arch Pediatr Adolesc Med 2006;160:25260.CrossRefGoogle ScholarPubMed
8.Taylor, H. G., Yeates, K. O., Wade, S. L., Drotar, D., Stancin, T., Minich, N. A prospective study of short- and long-term outcomes after traumatic brain injury in children: Behavior and achievement. Neuropsychology 2002;16(1):1527.CrossRefGoogle Scholar
9.Barlow, K. M., Crawford, S., Stevenson, A., Sandhu, S. S., Belanger, F., Dewey, D. Epidemiology of postconcussion syndrome in pediatric mild traumatic brain injury. Pediatrics 2010;126(2):e374–81.CrossRefGoogle ScholarPubMed
10.Max, J. Neuropsychiatry of pediatric traumatic brain injury. Psychiatr Clin North Am 2014;37(1): 12540.CrossRefGoogle ScholarPubMed
11.Max, J., Lopez, A., Wilde, E., Bigler, E., Schachar, R., Saunders, A., Ewing-Cobbs, L., Chapman, S., Yang, T., Levin, H. Anxiety disorders in children and adolescents in the second six months after traumatic brain injury. J of Pediatr Rehabil Med 2015;8:34555.Google ScholarPubMed
12.Vasa, R., Suskauer, S., Thorn, J., Kalb, J., Grados, M., Slomine, B., Salorio, C., Gerring, J. Prevalence and predictors of affective ability after paediatric traumatic brain injury. Brain Inj 2015;29(7–8):92128.CrossRefGoogle Scholar
13.Taylor, G., Swartwout, M., Yeates, K. O., Walz, N. C., Stancin, T., Wade, S. L. Traumatic brain injury in young children: Postacute effects on cognitive and school readiness skills. J Int Neuropsychol Soc 2008;14:73445.Google Scholar
14.Treble-Barna, A., Zang, H., Zhang, N., Gerry Taylor, H. G. Long-term neuropsychological profiles and their role as mediators of adaptive functioning after traumatic brain injury in early childhood. J Neurotrauma 2017;34:35362.Google Scholar
15.US Department of Labor, Bureau of Labor Statistics. Persons with a Disability: Labor Force Characteristics Summary www.bls.gov/news.release/disabl.nr0.htm. (Accessed on December 14, 2016.)Google Scholar
16.Cuthbert, J., Harrison-Felix, C., Corrigan, J., Bell, J., Haarbauer-Krupa, J., Miller, A. Unemployment in the United States after traumatic brain injury for working-age individuals: Prevalence and associated factors 2 years post-injury. J Head Trauma Rehabil 2015;30(3):16074.CrossRefGoogle Scholar
17.Williams, W. H., Mewse, A. J., Tonks, J., Mills, S., Burgess, C. N., Cordan, G. Traumatic brain injury in a prison population: Prevalence and risk for re-offending. Brain Inj 2010;24(10):118488.CrossRefGoogle Scholar
18.McKinlay, A., Grace, R. C., Horwood, L. J., Fergusson, D. M., Ridder, E. M., MacFarlane, M. R. Prevalence of traumatic brain injury among children, adolescents and young adults: Prospective evidence from a birth cohort. Brain Inj 2008;22(2):17581.CrossRefGoogle Scholar
19.McKinlay, A., Grace, R. C., McLellan, T., Roger, D., Clarbour, J., Macfarlane, M. R. Predicting adult offending behavior for individuals who experienced a traumatic brain injury during childhood. J Head Trauma Rehabil 2014;29(6):50713.CrossRefGoogle ScholarPubMed
20.Kaba, F., Diamond, P., Haque, A., MacDonald, R., Venters, H. Traumatic brain injury among newly admitted adolescents in the New York City jail system. J Adolesc Health 2014;54(5):61517.CrossRefGoogle ScholarPubMed
21.Perron, B. E., Howard, M. O. Prevalence and correlates of traumatic brain injury among delinquent youths. Crim Behav Ment Health 2008;18(4):24355.CrossRefGoogle ScholarPubMed
22.Grados, M.A., Slomine, B. S., Gerring, J. P., Vasa, R., Bryan, N., Denckla, M. B. Depth of lesion model in children and adolescents to predict severity and outcome with moderate to severe traumatic brain injury: Use of SPGR MRI predict severity and outcome. J Neurol Neurosurg Psychiatry 2001;70:35058.CrossRefGoogle ScholarPubMed
23.US Department of Education. Individuals with Disabilities Education Act 2004. www2.ed.gov/about/offices/list/osers/osep/osep-idea.html. (Accessed on May 23, 2017.)Google Scholar
24.US Department of Education, Protecting Students with Disabilities. www2.ed.gov/about/offices/list/ocr/504faq.html. (Accessed on May 23, 2017.)Google Scholar
25.Bullock, L. M., Gable, R. A. Darrell Mohr, J. Traumatic brain injury: A challenge for educators. Prev Sch Fail 2005;49(4):610.Google Scholar
26.Massachusetts Department of Education, Special Education. Neurological Impairment. www.doe.mass.edu/sped/links/brain.html. (Accessed on December 14, 2016.)Google Scholar
27.US Department of Education, Office of Special Education Programs (2010). Thirty-fourth Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act, Parts B and C. 2012. Number of students ages 6 through 21 served under IDEA, Part B, by disability category and state: Fall 2010. Retrieved from http://www2.ed.gov/about/reports/annual/osep/2012/parts-b-c/part-b-data/index.htmlGoogle Scholar
28.Haarbauer, J., Ciccia, A., Dodd, J., Ettel, D., Kurowski, B., Lumba-Brown, A., Suskauer, S. Service delivery in the healthcare and educational systems for children following traumatic brain injury: gaps in care. J Head Trauma Rehabil 2016;32(6):36777.Google Scholar
29.American Psychological Association Practice Central. Health and Behavior Codes. www.apapracticecentral.org/reimbursement/health-codes/index.aspx. (Accessed on December 30, 2016.)Google Scholar
30.Society for Cognitive Rehabilitation. www.societyforcognitiverehab.org/. (Accessed on December 14, 2016.)Google Scholar
31.Brain Injury Association of America, Academy for Certification of Brain Injury Specialists. www.biausa.org/acbis. (Accessed on December 14, 2016.)Google Scholar
32.American Congress of Rehabilitation Medicine’s Cog Rehab Manual Training Faculty. www.acrm.org/meetings/cognitive-rehab-training/. (Accessed on December 14, 2016.)Google Scholar
33.Ennis, S. K., Rivara, F. P., Mangione-Smith, R., Konodi, M. A., MacKenzie, E. J., Jaffe, K. M. Variations in the quality of inpatient rehabilitation care to facilitate school re-entry and cognitive and communication function for children with TBI. Brain Inj 2013;27 (2):17988, doi: 10.3109/02699052.2012.729291CrossRefGoogle ScholarPubMed
34.Dettmer, J., Ettel, D., Glang, A., McAvoy, K. Building statewide infrastructure for effective educational services for students with TBI: Promising practices and recommendations. J Head Trauma Rehabil 2014;29(3):22432.CrossRefGoogle ScholarPubMed
35.Glang, A., Ettel, D., Todis, B., Gordon, W. A., Oswald, J. M., Vaughn, S. L., et al. Services and supports for students with traumatic brain injury: Survey of state educational agencies. Exceptionality 2015;23(4):21124.CrossRefGoogle Scholar
36.Gioia, G., Glang, A. E., Hooper, S. R., Brown, B. E. Building statewide infrastructure for the academic support of students with mild traumatic brain injury. J Head Trauma Rehabil 2016;31(6):397406.CrossRefGoogle ScholarPubMed
37.Anderson, V. Executive function and the frontal lobes: Themes for child development, brain insult and rehabilitation. Dev Neurorehabil 2009;12(5):25354.CrossRefGoogle ScholarPubMed
38.Mealings, M., Douglas, J., Olver, J. Considering the student perspective in returning to school after TBI: A literature review. Brain Inj 2012;26(10):1165–76.CrossRefGoogle ScholarPubMed
39.Slomine, B. S., McCarthy, M. L., Ding, R., MacKenzie, E. J., Jaffe, K. M., Aitken, M. E., Durbin, D. R., Christensen, J. R., Dorsch, A. M., Paidas, C. N. CHAT Study Group. Health care utilization and needs after pediatric traumatic brain injury. Pediatrics 2006;117(4):e663–74.Google Scholar
40.Kim, C. T., Greenberg, J., Kim, H. Pediatric rehabilitation: Trends in length of stay. J Pediatr Rehabil Med 2013;6(1):1117.CrossRefGoogle ScholarPubMed
41.Babikian, T., Merkley, T., Savage, R. C. Giza, C. C., Levin, H. Chronic aspects of pediatric traumatic brain injury: Review of the literature. J Neurotrauma 2015;32:1849–60.Google Scholar
42.Hartman, L., Tibbles, A., Paniccia, A., Lindsay, S. A qualitative synthesis of families’ and students’ hospital-to-school transition experiences following acquired brain injury. Glob Qual Nurs Res 2015;2:122.Google Scholar
43.Brain Injury Association of Pennsylvania, Pennsylvania Department of Health, Pennsylvania Department of Education. BrainSTEPS. www.brainsteps.net. (Accessed on October 13, 2016.)Google Scholar
44.Colorado Department of Education, Colorado Brain Injury Program. Colorado Kids Brain Injury Resource Network. http://cokidswithbraininjury.com. (Accessed on October 13, 2016.)Google Scholar
45.University of Oregon, The Center for Brain Injury Research and Training (CBIRT). www.cbirt.org. (Accessed on December 1, 2016.)Google Scholar
46.Tennessee Disability Coalition and TN Departments of Health and Education, Division of Special Populations. Project BRAIN. http://tndisability.org/brain. (Accessed October 13, 2016.)Google Scholar
47.Columbus City Schools & Disability Rights Ohio. Columbus City Schools Traumatic Brain Injury Project and School Based Concussion Management Program. www.ccsoh.us/TraumaticBrainInjury.aspx. (Accessed on October 13, 2016.)Google Scholar
48.United States Department of Labor. Workforce Innovation Opportunity Act. www.doleta.gov/wioa/. (Accessed on December 30, 2016.)Google Scholar
49.Mathematica Center for Studying Disability Policy. What Works for Youth? Tracking Vocational Rehabilitation Outcomes. Webinar presented on April 27, 2017, Washington, DC.Google Scholar
50.National Association of State Head Injury Administrators. TBI/ABI Trust Fund Programs: Overview and Trends. Available from: www.nashia.org/pdf/trust_fund_overview_listing_of_states_slv.pdfGoogle Scholar
51.National Collaborative on Children’s Brain Injury Community of Practice – Brain Injury in Youth. https://youthbraininjury.obaverse.net/. (Accessed on December 30, 2016.)Google Scholar
52.Johns Hopkins University, Mind, Brain and Teaching Graduate Certificate Program, http://education.jhu.edu/Academics/certificates/mindbrain/. (Accessed on May 7, 2017.)Google Scholar
53.Cantor, J., Gordon, W., Schwartz, M., Charatz, H., Ashman, T., Abramowitz, S. Child and parent responses to a brain injury screening questionnaire. Arch Phys Med Rehabil 2004;85(4 Suppl 2):S5460.CrossRefGoogle ScholarPubMed
54.Corrigan, J., Bogner, J. Initial reliability and validity of the OSU TBI identification method. J Head Trauma Rehabil 2007; 22(6):31829. Also see Ohio State University TBI Identification Method. http://ohiovalley.org/tbi-id-method/. (Accessed on December 1, 2016.)CrossRefGoogle ScholarPubMed
55.McCauley, S., Wilde, E., Anderson, V., Bedell, G., Beers, S., Campbell, T., Chapman, S., Ewing-Cobbs, L., Gerring, J., Gioia, G., Levin, H., Michaud, L., Prasad, M., Swaine, B., Turkstra, L., Wade, S., Yeates, K. Recommendations for the use of common outcome measures in pediatric brain injury research. J Neurotrauma 2012;29:67870.Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×