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This position paper focuses on healthy ageing for the frailest and institutionalized older adults in the context of the recent pandemic. The paper aims to identify and discuss hindering and promoting factors for healthy ageing in this context, taking both health safety and a meaningful social life into account, in a pandemic situation and beyond.
Background:
The recent COVID-19 pandemic has highlighted the vulnerability of frail older adults residing in long-term care institutions. This is a segment of the older population that does not seem to align well with the recent policy trend of healthy and active ageing. The need for healthy ageing in this population has been voiced by professionals and interest organizations alike, alluding to inadequate support systems during the pandemic, conditioned by both previous and newly emerging contextual factors. Supporting healthy ageing in older adults in nursing homes and other residential care settings calls for attending to meaningful social life as well as to disease control.
Methods:
Findings and early conclusions leading up to the position paper were presented with peer discussions involving healthcare professionals and researchers at two joint EFPC PRIMORE workshops 2021 and 2022, as well as other international research seminars on long-term care. The following aspects of long-term care and COVID-19 were systematically discussed in those events, with reference to relevant research literature: 1. Long-term care policies, 2. pre-COVID state of long-term care facilities and vulnerability to the pandemic, 3. factors influencing the extent of spread of infection in long-term care facilities, and 4. the challenge of balancing between strict measures for infection control and maintaining a meaningful social life for residents and their significant others.
Findings:
A policy shift towards ageing at home and supporting the healthiest of older adults seems to have had unwarranted effects both for frail older adults, their significant others, and professional care staff attending to their needs. Resulting insufficient investment in primary health care staff and in the built environment for frail older adults in nursing homes were detrimental both for the older adults living in nursing homes, their significant others, and staff. More investment in staff and in physical surroundings might improve the quality of care and the social life of older adults in nursing homes in a non-pandemic situation and be a resource for primary health care staff ensuring both protection from health hazards and a meaningful social life for frail older adults in a pandemic or epidemic situation. As for investing in the physical surroundings, smaller nursing homes are advantageous, with singular resident rooms and for developing out-and indoor spaces for socializing and for meeting with families and other visitors. Regarding investment in staff, there is a documented need for educated staff in full-time positions. Use of part-time or temporary staff should be limited.
Delusional disorder is a mental illness characterized by the presence of one or more delusions for a period of at least one month. Delusional beliefs are based on the misinterpretation of external reality and are not made better with education or persuasion. The prevalence of delusional disorder in older adults is thought to be double that seen in younger adults. The occurence of delusional disorder is more common in later life when compared to other psychotic disorders such as schizophrenia. Seven subtypes of delusional disorder are recognized in the DSM-5. These include persecutory type, somatic type, jealous type, grandiose type, erotomanic type, mixed type, and unspecified type. Response to treatment of delusional disorder with antipsychotics is fair.
Chronic alcohol use disorder is an important cause of major neurocognitive disorder. There are several suggested mechanisms for how alcohol use disorder leads to major neurocognitive disorder. Medical treatment of alcohol use disorder can help limit the late effects of alcohol use. Alcohol-induced major neurocognitive disorder can be partially reversible with abstinence but this depends on the severity of the pathology.
Sundowner syndrome is a common neuropsychiatry syndrome seen in residents of long-term care. Several theories are proposed to explain the pathophysiology and contributing factors. Treatment options are also discussed.
Traumatic brain injury (TBI) is more common in older adults than any other age group. It is the most common fall-related injury in adults over the age of 65. The pathogenesis of TBI involves multiple mechanisms. Medications generally do not alter the course of the disease process but can treat the neuropsychiatric symptoms. Mood and anxiety disorders are commonly comorbid with TBI.
The potential of substance use disorders in older adults is often overlooked in a general health assessment. Substance use disorders have a high comorbidity with other psychiatric disorders. Physiologic changes in older adults make them more susceptible to the negative effects of alcohol use. With the proper support and resources older adults with alcohol use disorder can live a healthier, happier life free from alcohol. Cannabis use is increasing in all age groups including older adults. Be aware that older adults may be using cannabis to self medicate psychiatric conditions such as anxiety and depression or to treat chronic pain despite limited evidence for long term improvement. Older adults may be at risk of opiate use disorder due to chronic pain issues, multiple medical comorbidities, and psychiatric comorbidities. Treatment options for opioid use disorder such as medications, outpatient treatment programs, and psychosocial supports are often as effective in older adults as in younger patients.
Delirium as a complex neuropsychiatric syndrome characterized by disturbances in attention, awareness, and cognition that are not explained by a pre-existing neurocognitive disorder. The causes of delirium are varied. The most common causes of delirium in the long-term care setting are likely urinary tract infections, untreated pain, and medication side effects. The initial steps recommended in managing delirium involve identifying and addressing underlying medical conditions, reducing environmental triggers, and minimizing exposure to drugs. Besides treatment of the cause, management of delirium primarily involves psychosocial interventions. These can include environmental modifications such as addressing poor lighting, excessive noise, or lack of orientation cues.
A significant percentage of older adults remain sexually active. Studies have shown that sexual activity in older adults is associated with better cognitive and mental health and better sleep. Major neurocognitive disorders are a common cause of sexually inappropriate behavior. Despite the few studies discussing sexual aspects in MNCD, existing reports indicate that up to 25% of patients suffering from Alzheimer’s disease have inappropriate sexual behavior, including increased sexual urge and hypersexuality. The ability of patients to consent to sexual relations may be underestimated by healthcare staff. Therefore, the issue of consent is an important point of discussion among staff members and each case should be assessed separately. Long-term care facilities should have policies in place that address the evaluation of a patient’s capacity to consent to sexual activity.
Antidepressants, when used appropriately and in combination with an individualized psychosocial approach, can dramatically improve depressive symptoms and the quality of life of residents who have major depressive disorder. The selection of antidepressants needs to take into account the patient’s medical problems, as well as what side effects one wants or wants to avoid for a particular patient. There is no compelling evidence that one antidepressant works better than any other for the treatment of majpr depressive disorder in long-term care populations. Selective serotonin reuptake inhibitors (SSRIs) are probably the most commonly selected first-line medications for the treatment of major depressive disorders in long-term care residents. Serotonin-norepinephrine reuptake inhibitors) have also been associated with a potentially increased risk of bleeding, although the risk appears to be lower compared to SSRIs.
Rapid demographic changes and heavy reliance on informal care pose significant challenges to meeting long-term care (LTC) needs in China. Understanding changes in unmet LTC needs across different times and places can inform future LTC system planning and care resource allocation, identifying emerging care needs and services gaps in different regions. Drawing on data from 6,030 urban and 5,070 rural residents in the Chinese Longitudinal Health Longevity Survey 2005–2017/18, this study investigates variations in unmet LTC needs across different age groups, periods and birth cohorts among Chinese older adults and their place-based rural–urban differences. We applied the age-period-cohort interaction model to disentangle the three temporal processes, and found that, overall, rural older adults experienced higher risk of unmet LTC needs and had larger variation in age effects, yet the age, period and cohort effects on unmet needs among rural older people differed from their urban counterparts. Although ‘younger’ older adults (aged below 85) had fewer care needs than older adults, they had a higher risk of experiencing unmet needs. The risk of having unmet needs did not change significantly over the 12 years, though unmet LTC needs were more pronounced among more-recent cohorts than previous generations, especially in urban areas. The findings contribute to the social gerontology debate regarding changing patterns in unmet LTC needs, and provide crucial policy insights, underscoring the necessity of targeted interventions to address ‘younger’ older adults’ care needs and increased investmed in the formal LTC system to tackle the escalating care gap.
The mental healthcare of older adults can lead to age specific challenges, however, many healthcare settings have limited access to expert geriatric psychiatric consultation. This compelling book provides a comprehensive compilation of real-life cases involving the psychiatric care of older adults in the long-term care setting. Providing practical guidance for healthcare professionals who work regularly with older adults, the chapters cover key topics such as neurocognitive disorders, mood disorders, anxiety disorders, psychotic disorders, end-of-life mental health care, and sexuality issues in older adults. Offering all the information necessary for the diagnosis and formulation of treatment plans for a wide variety of psychiatric presentations, the book covers pharmacologic and non-pharmacologic options for each disorder to assist healthcare professionals in providing well-rounded care. For all those involved in the prevention, assessment, diagnosis, and management of neuropsychiatric disorders in long-term care populations.
Baby boomers were at the forefront of profound social changes in sexual attitudes and many have expressed a desire to remain sexually active throughout their life course. The purpose of this survey study was to assess the perceived preparedness of Ontario’s long-term care (LTC) homes to meet the changing sexuality needs and expectations of LTC residents. We examined sexuality-related attitudes, including in the context of dementia, among 150 LTC administrators. Participants also completed a questionnaire assessing their experiences and perceptions regarding existing and anticipated supports, barriers, and priorities. Most participants demonstrated positive sexual attitudes; however, multiple challenges to meeting residents’ sexuality needs were noted, including assessing capacity to consent, limited privacy, staff training, conflicting attitudes, and a lack of adequate policy and guidelines. Challenges are broad and significant and considerable attention is required to meet the expectations of the next generation of LTC residents, including gender and sexual minority elders.
The ability to clinically diagnose and treat medical conditions within the home is rapidly becoming a reality for millions of Americans. In parallel, the vast majority of older adults currently report a preference to age in place, in part because of the independence and autonomy this affords, as well as the enhanced ability to socially distance oneself during a pandemic. The interest in receiving long-term services and support in the home is exemplified by the 820,000 Medicaid-eligible Americans on waiting lists nationwide for home- and community-based services (HCBS), with an average wait time of over three years. As a result, many Americans today face the difficult decision of whether to move to a nursing home or stay in their home, facing the risk of falls, medication adherence errors, and other safety challenges. Diagnosing and monitoring health in the home has the potential to abate this distressingly difficult decision as a cost-efficient, patient-centered alternative to reduce HCBS waiting lists and expand the long-term care options for millions of non-Medicaid-eligible Americans. This chapter delineates the ethical, social, legal, and regulatory issues around implementing diagnostic and digital health in the homes of older adults, in the context of this population’s unique vulnerability to abuse, social isolation, declining cognitive health, frailty, and diagnostic error. Broad-based conceptual and practical reforms to modernize HCBS follow, addressing the adoption of self-administered diagnostic tests for highly prevalent chronic conditions, validated decision-support tools to foster consent, and real-time health data acquisition and management strategies that support government oversight and equitable access to home telehealth.
In older patients with mental and physical multimorbidity (MPM), personality assessment is highly complex. Our aim was to examine personality traits in this population using the Hetero-Anamnestic Personality questionnaire (HAP), and to compare the premorbid perspective of patients’ relatives (HAP) with the present-time perspective of nursing staff (HAP-t).
Design:
Cross-sectional.
Setting:
Dutch gerontopsychiatric nursing home (GP-NH) units.
Participants:
Totally, 142 GP-NH residents with MPM (excluding dementia).
Measurements:
NH norm data of the HAP were used to identify clinically relevant premorbid traits. Linear mixed models estimated the differences between HAP and HAP-t trait scores (0–10). Agreement was quantified by intraclass correlation coefficients (ICCs). All HAP-HAP-t analyses were corrected for response tendency (RT) scores (−10–10).
Results:
78.4% of the patients had at least one premorbid maladaptive trait, and 62.2% had two or more. Most prevalent were: “disorderly” (30.3%), “unpredictable/impulsive” (29.1%) and “vulnerable” (27.3%) behavior. The RT of relatives appeared significantly more positive than that of nursing staff (+1.8, 95% CI 0.6–2.9, p = 0.002). After RT correction, the traits “vulnerable”, “perfectionist” and “unpredictable/impulsive” behavior scored higher on the HAP than HAP-t (respectively +1.2, 95% CI 0.6–1.7, p < 0.001; +2.1, 95% CI 1.3–2.8, p < 0.001; +0.6, 95% CI 0.1–1.1, p = 0.013), while “rigid” behavior scored lower (−0.7, 95% CI −1.3 to −0.03, p = 0.042). Adjusted ICCs ranged from 0.15 to 0.58.
Conclusions:
Our study shows high percentages of premorbid maladaptive personality traits, which calls for attention on personality assessment in MPM NH residents. Results also indicate that the HAP and HAP-t questionnaires should not be used interchangeably for this patient group in clinical practice.
Family involvement in the lives of people who have dementia and live in long-term care is important, but family members may face challenges communicating and connecting with their loved one as dementia progresses. A type of therapeutic humor (Laughter Care) delivered by trained specialists aims to engage people with dementia who reside in long-term care through creative play and laughter. This study aimed to explore the perceptions of Laughter Care Specialists (LCSs) regarding families’ engagement with the program.
Methods
Semi-structured interviews were conducted with LCSs (n = 8) and analyzed inductively using thematic analysis.
Results
Family members were reported to initially have varied degrees of openness toward Laughter Care, but often become more accepting after observing positive engagement with the person with dementia. Family members were perceived to benefit from the program through witnessing the person with dementia enjoy joyous and light interactions, learn new ways of communicating and connecting with the person with dementia, and engage in positive interactions at end of life.
Significance of results
Laughter Care may provide family members with novel ways of communicating and connecting with people who have dementia at end of life as well as comfort into bereavement.
The COVID-19 pandemic highlighted the importance of the care provided by family members and close friends to older people living in long-term care (LTC) homes. Our implementation science team helped three Ontario LTC homes to implement an intervention to allow family members to enter the homes during pandemic lockdowns.
Objective
We used a variety of methods to support the implementation, and this paper reports results from an Ontario-wide survey intended to help us understand the nature of the care provided by family caregivers.
Methods
We administered a survey of essential caregivers in Ontario, and a single open-ended question yielded a substantial qualitative data set that we analysed with a coding and theming procedure that yielded 13 themes.
Findings
The 13 themes reveal deficiencies in Ontario’s LTC sector, attempts to cope with the deficiencies, and efforts to influence change and improvement.
Discussion
Our findings indicate that essential caregivers find it necessary to take on vital roles in order to shore up two significant gaps in the current system: they provide psychosocial and emotional (and sometimes even basic) care to residents, and they play a monitoring and advocacy role to compensate for the failings of the current regulatory compliance regime.
This paper contributes to the legal and socio-legal literature on long-term care (LTC) facilities (also known as nursing homes) by drawing from the responsive regulation literature and empirical research conducted in 2021 and 2022. Enforcement is an under-explored aspect in the legal and socio-legal literature on LTC. This research asks how the regulator’s enforcement activities shape compliance of LTC homes in Ontario. This paper reports the results from eleven semi-structured key informant interviews with associations that represent LTC facilities, advocacy organizations, unions, and professionals, such as lawyers. The current enforcement activities do not appear to evoke responsiveness in at least some of the LTC homes because the regulator’s approach is not dynamic: the regulator does not change its mix of “persuasion” and “coercion” in order to respond to the motivations and behaviours of homes. Inspection and enforcement activities have had little impact on how homes respond to rules.
Waitlists for long-term care (LTC) continue to grow, and it is anticipated aging populations will generate additional demand. While literature focuses on individual-level factors, little is known about system-level factors contributing to LTC waitlists. We considered these factors through a scoping review. Inclusion/exclusion included publication year (2000–2022), language, paper focus, and document type. A total of 815 abstracts were identified, only 17 studies were included. Through qualitative content analysis, 10 key factors were identified: (1) waitlist management styles, (2) inconsistent standards of admission, (3) personnel shortage, (4) insufficient community-based care, (5) inequitable distribution of services, (6) lack of system integration, (7) unintended consequences of insurance plans, (8) ranking preferences, (9) the debate of supply and demand, and (10) financial incentives. Targeting interventions to address waitlist management, community-based care capacity, and demographic trends could improve access. More research is needed to address system-level barriers to timely LTC access.
In Canada, long-term care and retirement home residents have experienced high rates of COVID-19 infection and death. Early efforts to protect residents included restricting all visitors as well as movement inside homes. These restrictions, however, had significant implications for residents’ health and well-being. Engaging with those most affected by such restrictions can help us to better understand their experiences and address their needs. In this qualitative study, 43 residents of long-term care or retirement homes, family members and staff were interviewed and offered recommendations related to infection control, communication, social contact and connection, care needs, and policy and planning. The recommendations were examined using an ethical framework, providing potential relevance in policy development for public health crises. Our results highlight the harms of movement and visiting restrictions and call for effective, equitable, and transparent measures. The design of long-term care and retirement policies requires ongoing, meaningful engagement with those most affected.
Nutritional care is a critical, yet often overlooked component of quality care in long-term care (LTC) that is linked to culture, socialization, and residents’ psychological and physiological well-being. Given that several COVID-19 infection control protocols affected nutritional care, this study aimed to understand employees’ experiences of these changes. Seven semi-structured interviews were conducted with Saskatchewan healthcare employees from several disciplines, all of whom had a role in supporting nutritional care in LTC. The resulting interview transcripts were analyzed using reflexive thematic analysis. Three main themes characterized the interviewees’ reflections: regression to an institutional mealtime environment, unrealistic expectations, and concern for residents. Given the centrality of nutritional care to quality of life, strategies tailored to support staff in providing relationship-centered nutritional care must be further articulated to maintain standards of care for LTC residents in future outbreaks and epidemics.