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11 - End-of-life care

Published online by Cambridge University Press:  05 December 2011

Valerie Page
Affiliation:
Watford General Hospital
E. Wesley Ely
Affiliation:
Vanderbilt University School of Medicine
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Summary

Introduction

In palliative care, delirium may be referred to as cognitive failure, terminal restlessness or terminal agitation. At least, the terminology is inconsistent in both palliative and critical care! It is sad that these names imply that delirium is an inevitable part of the dying process. Delirium episodes in palliative care are potentially reversible in up to 50% of cases.

It is estimated that one in five Americans die in US intensive care units. Patients are admitted to ICU suffering from acute episodes of chronic illnesses, and patients with advanced incurable diseases are brought in to manage consequences of treatment or progression of disease. The terminal stage of illness is sometimes only recognized after admission. Previously fit patients can succumb to the complications of acute illness, developing irreversible multiple organ failure.

Delirium is distressing for patients and caregivers, even more when it happens at the end of a life. The attention deficits impede communication with families and hinder participation in treatment decisions, counselling and symptom assessment.

Clarity of cognitive function before dying is a precious gift to patients, caregivers and relatives. In end-of-life care, clinicians have to balance aggressive detection and management of delirium with addressing other treatment needs such as pain relief and sedation.

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Chapter
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Publisher: Cambridge University Press
Print publication year: 2011

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References

Caraceni, A and Grassi, L. Delirium: Acute Confusional States in Palliative Medicine. New York, Oxford University Press, 2003.Google Scholar
Breitbart, W and Alici, Y.Agitation and delirium at the end of life: “we couldn't manage him”. Journal of the American Medical Association 2008; 300: 2898–910.Google Scholar
US National Cancer Institute. Cognitive Disorders and Delirium PDQ summary. www.cancer.gov/cancertopics/pdq/supportivecare/delirium/HealthProfessional.
Cherny, NI, Radbruch, L; The Board of the European Association for Palliative Care. European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care. Palliative Medicine 2009; 23(7): 581–93. Available at www.eapcnet.org/projects/Sedation.html.

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