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5 - DISCUSSING PROGNOSIS

Damned if you do, damned if you don't

Published online by Cambridge University Press:  23 November 2009

Anthony Back
Affiliation:
University of Washington
Robert Arnold
Affiliation:
University of Pittsburgh
James Tulsky
Affiliation:
Duke University, North Carolina
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Summary

When discussing prognosis, physicians face a series of contradictory impulses. For many, telling patients that their illness will take their life makes doctors feel like they are giving out a “death sentence.” The prognosis conversation is difficult, and often times it's easier to let these issues slip into the background and focus instead on symptoms, logistics, or hoping the patient will respond to treatment. Yet, these same physicians also know that when patients don't realize how close to death they really are, they often fail to make plans, including sharing preferences for the medical care they want at the end of life. When this occurs, families and clinicians are left making decisions for them - often with conflict and heartache. Thus, for many physicians, the impulse to inform the patient and the impulse to avoid a discouraging discussion coexist.

Patients have their own contradictory impulses. On one hand, in surveys, patients consistently say that they want a great deal of prognostic information. For example, in one British study, 87% of patients wanted “all possible information.” On the other hand, patients also warn clinicians about being “too blunt,” and say that “supporting hope” is very important. To further complicate matters, a significant minority of patients wants to avoid prognostic information altogether, and in some cultures, to speak about a bad prognosis creates a self-fulfilling prophecy. How can a doctor possibly get this right?

Type
Chapter
Information
Mastering Communication with Seriously Ill Patients
Balancing Honesty with Empathy and Hope
, pp. 49 - 66
Publisher: Cambridge University Press
Print publication year: 2009

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  • DISCUSSING PROGNOSIS
  • Anthony Back, University of Washington, Robert Arnold, University of Pittsburgh
  • Adaptation by James Tulsky, Duke University, North Carolina
  • Book: Mastering Communication with Seriously Ill Patients
  • Online publication: 23 November 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511576454.006
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  • DISCUSSING PROGNOSIS
  • Anthony Back, University of Washington, Robert Arnold, University of Pittsburgh
  • Adaptation by James Tulsky, Duke University, North Carolina
  • Book: Mastering Communication with Seriously Ill Patients
  • Online publication: 23 November 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511576454.006
Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

  • DISCUSSING PROGNOSIS
  • Anthony Back, University of Washington, Robert Arnold, University of Pittsburgh
  • Adaptation by James Tulsky, Duke University, North Carolina
  • Book: Mastering Communication with Seriously Ill Patients
  • Online publication: 23 November 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511576454.006
Available formats
×