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23 - United States

Published online by Cambridge University Press:  23 September 2009

Geoffrey Miller
Affiliation:
Yale University, Connecticut
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Summary

The first important U.S. report that related to the extremely preterm infant came from a president's commission published in 1983.(226) In the section on seriously ill newborns, the commission reported that between 1970 and 1980 the neonatal mortality rate almost halved and that this was the greatest proportional decrease in any decade since national birth statistics were first recorded in 1915. The decrease was “especially dramatic” in the very low birth weight (<1,500g) and the extremely low birth weight (<1,000g) infants, with 50% of the latter surviving (at that time) compared to less than 20% twenty years previously. However, they noted that there was a downside to this, as the survivors could be impaired. This, they stated, tested “the limits of medical certainty in diagnosis” and “raises profound ethical issues.” The commission attempted to provide ethical and legal guidelines in order to provide a framework for those in health care and the law. To aid them in this, testimony was provided by various experts. One such testimony came from Carole Kennon, a neonatal intensive care social worker, who stated that anguished parents “watching the suffering of an infant the size of an adult's hand – connected to awesome machinery and offered only distant prospects of a somewhat normal survival – inevitably takes an emotional toll”; and for those families who leave the unit with a handicapped child: “they must often travel a financially and emotionally perilous path.”

Type
Chapter
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Extreme Prematurity
Practices, Bioethics and the Law
, pp. 91 - 105
Publisher: Cambridge University Press
Print publication year: 2006

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  • United States
  • Geoffrey Miller, Yale University, Connecticut
  • Book: Extreme Prematurity
  • Online publication: 23 September 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511547355.023
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  • United States
  • Geoffrey Miller, Yale University, Connecticut
  • Book: Extreme Prematurity
  • Online publication: 23 September 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511547355.023
Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

  • United States
  • Geoffrey Miller, Yale University, Connecticut
  • Book: Extreme Prematurity
  • Online publication: 23 September 2009
  • Chapter DOI: https://doi.org/10.1017/CBO9780511547355.023
Available formats
×