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5 - Procreative Beneficence: reasons to not have disabled children

Published online by Cambridge University Press:  16 September 2009

Loane Skene
Affiliation:
University of Melbourne
Janna Thompson
Affiliation:
La Trobe University, Victoria
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Summary

The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends on the unreasonable man.

Introduction

Couples (or single reproducers) have a moral obligation to strive to have disability-free children. Disability is sometimes argued to be a social construction. It is said that disability should be removed by altering social institutions and circumstances. At least in some circumstances, I argue that biopsychosocial correction of disability is needed, where disability is removed by altering our biology or psychology, or selecting our children.

The principle of Procreative Beneficence

In a previous paper, I sketched what I called the principle of Procreative Beneficence:

couples (or single reproducers) should select the child, of the possible children they could have, who is expected to have the best life, or at least as good a life as the others, based on the relevant, available information.

This principle is novel in one way. It claims that we have a good reason to select which child we have. Many people deny this. They claim we should not select our children. According to folk morality, we should accept whichever child Nature or God gives us as a gift. There is a significant distance between the principle of Procreative Beneficence and folk morality. Can Procreative Beneficence be defended?

There are many objections to this principle. I will address these. But let me first clarify this principle and give an expanded formulation.

Type
Chapter
Information
The Sorting Society
The Ethics of Genetic Screening and Therapy
, pp. 51 - 68
Publisher: Cambridge University Press
Print publication year: 2008

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References

Shaw, G. B., Man and Superman (Cambridge, Mass: The University Press, 1903Google Scholar
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Savulescu, J., ‘Education and debate: Deaf lesbians, ‘designer disability,’ and the future of medicine’ (2002) 325(7367) British Medical Journal771–3.CrossRefGoogle ScholarPubMed
Melo-Martin, I., ‘On our obligation to select the best children: a reply to Savulescu’ (2004) 18(1) Bioethics72–83.CrossRefGoogle ScholarPubMed
Wald, N. J. and Law, M. R., ‘A strategy to reduce cardiovascular disease by more than 80%’ (2003) 326 British Medical Journal1419–23.CrossRefGoogle ScholarPubMed
Feinberg, J., ‘The child's right to an open future’ in W. Aiken and H. LaFollette (eds.), Whose Child? Parental Rights, Parental Authority and State Power (Totowa, New Jersey: Rowman and Littlefield, 1980), 124–53Google Scholar
Davis, D., ‘The right to an open future’ (1997) 27(2) Hastings Center Report7–15.CrossRefGoogle ScholarPubMed

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