Article contents
Return of Results in Participant-Driven Research: Learning from Transformative Research Models
Published online by Cambridge University Press: 01 January 2021
Abstract
Participant-driven research (PDR) is a burgeoning domain of research innovation, often facilitated by mobile technologies (mHealth). Return of results and data are common hallmarks, grounded in transparency and data democracy. PDR has much to teach traditional research about these practices and successful engagement. Recommendations calling for new state laws governing research with mHealth modalities common in PDR and federal creation of review mechanisms, threaten to stifle valuable participant-driven innovation, including in return of results.
- Type
- Symposium Articles
- Information
- Journal of Law, Medicine & Ethics , Volume 48 , Issue S1: Unregulated Health Research Using Mobile Devices , Spring 2020 , pp. 159 - 166
- Copyright
- Copyright © American Society of Law, Medicine and Ethics 2020
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