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Health Status and Health Care Utilization of Multiple Sclerosis in Canada

Published online by Cambridge University Press:  02 December 2014

Sheri L. Pohar ,
C. Allyson Jones ,
Sharon Warren ,
Karen V.L. Turpin  and
Kenneth Warren
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Abstract

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Background:

Persons with multiple sclerosis (MS) represent a small segment of the population, but given the progression of the disease, they experience substantial physical, psychosocial and economic burdens.

Objective:

The primary aim was to compare demographic characteristics, health status, health behaviours, health care resource utilization and access to health care of the community dwelling populations with and without MS.

Methods:

Cross-sectional survey using data from the Canadian Community Health Survey (CCHS 1.1). Adjusted analyses were performed to assess differences between persons with MS and the general population, after controlling for age and sex. Normalized sampling weights and bootstrap variance estimates were used.

Results:

Respondents with MS were 7.6 times (95% CI: 5.4, 10.7) more likely to have health-related quality of life scores that reflected severe impairment than respondents without MS. Respondents with MS were 12.2 times (95% CI: 8.6, 17.2) to rate their health as ‘poor’ or ‘fair’ than the general population. Urinary incontinence and chronic fatigue syndrome were 18.7 times (95% CI: 12.5, 28.2) and 21.9 times (95% CI: 11.9, 40.3), more likely to be reported by respondents with MS than those without. Differences between the two populations also existed in terms of health care resource utilization and access and health behaviours.

Conclusion:

Large discrepancies in health status and health care utilization existed between persons with MS who reside in the community and the general population according to all indicators used. Health care needs of persons with MS were also not met.

Résumé:

RÉSUMÉ:Contexte:

Les individus atteints de sclérose en plaques (SEP) ne constituent qu’une petite partie de la population, mais ils portent un lourd fardeau physique, psychosocial et économique à cause de la progression de la maladie.

Objectif:

Le but premier de cette étude était de comparer les caractéristiques démographiques, l’état de santé, les comportements de santé, l’utilisation des ressources de soins de santé et l’accès aux soins de santé des individus vivant dans la collectivité, atteints ou non de la SEP.

Méthodes:

Il s’agit d’une étude transversale des données de l’Enquête sur la santé dans les collectivités canadiennes (ESCC 1.1). Nous avons analysé les données pour évaluer les différences entre les individus atteints de SEP et la population en général, après ajustement pour l’âge et le sexe. Un échantillonnage normalisé pondéré et l‘estimation de variance bootstrap ont été utilisés.

Résultats:

Les répondants atteints de SEP étaient 7,6 fois (IC de 95% : 5,4 à 10,7) plus susceptibles d’avoir des scores de qualité de vie reliée à la santé qui témoignaient d’une atteinte sévère que les répondants sans SEP. Les répondants atteints de SEP étaient 12,2 fois (IC de 95% : 8,6 à 17,2) plus susceptibles de décrire leur santé comme étant « mauvaise » ou « passable » que la population en général. Ils étaient 18,7 fois (IC de 95% : 12,5 à 28,2) plus susceptibles de rapporter de l’incontinence urinaire et 21,9 fois (IC de 95% : 11,9 à 40,3) plus susceptibles de rapporter un syndrome de fatigue chronique que ceux qui n’en étaient pas atteints. Il y avait également des différences entre les deux populations en termes d’utilisation et d’accès aux ressources de soins de santé et en termes de comportements de santé.

Conclusion:

Selon tous les indicateurs utilisés, il existe de grandes discordances entre les individus atteints de SEP qui vivent dans la collectivité et la population en général quant à l’état de santé et à l’utilisation des soins de santé. En outre, les besoins de santé des individus atteints de SEP n’étaient pas satisfaits.

Type
Original Articles
Information
Canadian Journal of Neurological Sciences , Volume 34 , Issue 2 , May 2007 , pp. 167 - 174
Copyright
Copyright © The Canadian Journal of Neurological 2007

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