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A review of the instruments used to assess the quality of life of adult patients with chronic intestinal failure receiving parenteral nutrition at home

Published online by Cambridge University Press:  08 March 2007

Janet P. Baxter ,
Peter M. Fayers  and
Alastair W. McKinlay
Janet P. Baxter*
Affiliation:
Department of Digestive Disease and Clinical Nutrition, Ninewells Hospital and Medical School, Dundee, UK
Peter M. Fayers
Affiliation:
Department of Public Health, University of Aberdeen, Foresterhill, Aberdeen, UK
Alastair W. McKinlay
Affiliation:
Department of Gastroenterology, Aberdeen Royal Infirmary, Foresterhill, Aberdeen, UK
*
*Corresponding author: Mrs Janet Baxter, fax +44 1382 632317, email janet.p.baxter@tuht.scot.nhs.uk
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Abstract

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Home parenteral nutrition is an established method of supporting patients with intestinal failure, but this treatment may be life long and imposes severe restrictions on daily life. Impact on quality of life is an important outcome when considering the management of home parenteral nutrition patients. This paper reviews studies in which the quality of life of patients receiving home parenteral nutrition has been assessed. A systematic search of electronic databases and relevant publications was undertaken to identify generic or treatment-specific questionnaires used with home parenteral nutrition patients. Many of the thirty-four reports discovered were small studies. Nineteen used non-specific generic instruments, eight used non-validated questionnaires, four used a combination of both, and three did not use any formal tool. Few systematic patterns emerged. There are few available data on the quality of life of home parenteral nutrition patients, and there is a need for standardised, scientifically validated, treatment-specific instruments to measure quality of life in this population.

Keywords

Quality of lifeParenteral nutritionHomeIntestinal failure
Type
Research Article
Information
British Journal of Nutrition , Volume 94 , Issue 5 , November 2005 , pp. 633 - 638
Copyright
Copyright © The Nutrition Society 2005

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