Bibliography
Agree, E., Bissett, B., and Rendall, M. (2003) ‘Simultaneous Care for Parents and Care for Children among Midlife British Women and Men’ Population Trends, 112 (Summer): 29–35.
Allsop, J., and Mulcahy, L. (1996) Regulating Medical Work: Formal and Informal Controls. Buckingham: Open University Press.
Aminzadeh, F., Byszewski, A., Molnar, F. J., and Eisner, M. (2007) ‘Emotional Impact of Dementia Diagnosis: Exploring Persons with Dementia and Caregivers’ Perspectives’, Aging and Mental Health, 11 (3): 281–290.
Andrews, L., Stocking, C., Krizek, T., Gottlieb, L., Krizek, C., Vargish, T., and Siegler, M. (1997) ‘An Alternative Strategy for Studying Adverse Events in Medical Care’, The Lancet, 349: 309–313.
Annear, M. J., Toye, C., McInerney, F., Eccleston, C., Tranter, B., Elliott, K., and Robinson, A. (2015) ‘What Should We Know about Dementia in the 21st Century? A Dephi Consensus Study’, BMC Geriatrics, 15(5). DOI: 10.1186/s12877-015-0008-1.
Azmi, S., Hatton, C., Emerson, E., and Caine, A. (1997) ‘Listening to Adolescents and Adults with Disabilities from South Asian Communities’, Journal of Applied Research in Intellectual Disabilities, 10(3): 250–263.
Bamford, C., Lamont, S., Eccles, M., Robinson, L., May, C., and Bond, J. (2004) ‘Disclosing a Diagnosis of Dementia: A Systematic Review’, International Journal of Geriatric Psychiatry, 19 (2): 151–169.
Banerjee, S., Murray, J., Foley, B., Atkins, L., Schneider, J., and Mann, A. (2003) ‘Predictors of Institutionalisation in People with Dementia’, Journal of Neurology, Neurosurgery and Psychiatry, 74(9): 1315–1316.
Barclay, L. (2000) ‘Autonomy and the Social Self’, in Mackenzie, C. and Stoljar, N. (eds) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self, pp. 52–71. Oxford: Oxford University Press.
Barnes, M. (2012) Care in Everyday Life: An Ethic of Care in Practice. Bristol: The Policy Press.
Baron, M. (2002) ‘Acting from Duty’, in Wood, A. W. (ed) Immanuel Kant Groundwork for the Metaphysics of Morals, pp. 92–110. New Haven: Yale University Press.
Bartlett, H., and Phillips, D. R. (1996) ‘Policy Issues in the Private Health Sector: Examples from Long Term Care in the UK’, Social Science and Medicine, 43(5): 731–737.
Bendall, C. (2014) ‘Some Are More ‘Equal’ Than Others: Heteronormativity in the Post-White Era of Financial Remedies’, Journal of Social Welfare and Family Law, 36(3): 260–275.
Beaupert, F., Carney, T., Chiarella, M., Satchell, C., Walton, M., Bennett, B., and Kelly, P. (2014) ‘Regulating Healthcare Complaints: A Literature Review’, International Journal of Health Care Quality Assurance, 27(6): 505–518.
Biggs, H. (2001) Euthanasia: Death with Dignity and the Law. Oxford: Hart Publishing.
Bismark, M. M., Dauer, E. A., Paterson, R., and Studdert, D. M. (2006) ‘Accountability Sought by Patients following Adverse Events from Medical Care: The New Zealand Experience’, Canadian Medical Association Journal, 175(8): 889–894.
Black, J. (2002) ‘Critical Reflections on Regulation’, Australian Journal of Legal Philosophy, 27: 1–35.
Borley, G., and Hardy, S. (2016) ‘A Qualitative Study on Becoming Cared for in Alzheimer’s Disease: The Effects to Women’s Sense of Identity’, Ageing and Mental Health. DOI: 10.1080/13607863.2016.1200535. Advance Access.
Borley, G., Sixsmith, J., and Church, S. (2014) ‘How Does a Woman with Alzheimer’s Disease Make Sense of Becoming Cared For?’, Dementia. DOI: 10.1177/1471301214561647. Online First.
Bramer, M. (2010) ‘The Importance of Personal Relationships to Kantian Moral Theory: A Reply to Care Ethics’, Hypatia, 25(1): 121–139.
Brammer, A. (2014) Safeguarding Adults. Basingstoke: Palgrave Macmillan.
Braye, S., Orr, D., and Preston-Shoot, M. (2011) The Governance of Adult Safeguarding: Findings from Research into Safeguarding Adults Board: Final Report to the Department of Health. London: SCIE.
Brazier, M., and Cave, E. (2011) Medicine, Patients and the Law. London: Penguin Books (5th edition).
Bryden, C. (2005) Dancing with Dementia: My Story of Living Positively with Dementia. London: Jessica Kingsley Publishers.
Brodaty, H., and Donkin, M. (2009) ‘Family Caregivers of People with Dementia’, Dialogues in Clinical Neuroscience, 11(2): 217–228.
Brodaty, H., Thomson, C., Thompson, C., and Fine, M. (2005) ‘Why Caregivers of People with Dementia and Memory Loss Don’t Use Services’, International Journal of Geriatric Psychiatry, 20: 537–546.
Brooker, D. (2005) ‘Dementia Care Mapping: A Review of the Literature’, The Gerontologist, 45 (Suppl 1): 11–18.
Brooker, D., La Fontaine, J., Evans, S., Bray, J., and Saad, K. (2014) ‘Public Health Guidance to Facilitate Timely Diagnosis of Dementia: Alzheimer’s Cooperative Valuation in Europe Recommendations’, International Journal of Geriatric Psychiatry, 29(7): 682–693.
Bubeck, D. (1995) Care, Gender and Justice. Oxford: Clarendon Press.
Canda, E. R. (2013) ‘Filial Piety and Care for Elders: A Contested Confucian Virtue Reexamined’, Journal of Ethnic and Cultural Diversity in Social Work, 22(3–4): 213–234.
Care Quality Commission (CQC) (2010) Essential Standards of Quality and Safety. London: Care Quality Commission.
Care Quality Commission (CQC) (2011) Dignity and Nutrition for Older People. London: Care Quality Commission.
Carers UK (2012) Sandwich Caring: Combining Childcare with Caring for Older or Disabled Relatives. London: Carers UK.
Carpenter, B. D., Xiong, C., Porensky, E. K., Lee, M. M., Brown, P. J., Coats, M., Johnson, D., and Morris, J. C. (2008) ‘Reaction to a Dementia Diagnosis in Individuals with Alzheimer’s Disease and Mild Cognitive Impairment’, Journal of the American Geriatrics Society, 56: 405–412.
Carr, S. (2012) Personalisation: A Rough Guide. London: Social Care Institute for Excellence.
Cheng, Y., Rosenberg, M. W., Wang, W., Yang, L., and Li, H. (2012) ‘Access to Residential Care in Beijing, China: Making the Decision to Relocate to a residential Care Facility’, Ageing and Society, 32(08): 1277–1299.
Chinthapalli, K. (2013) ‘The Birth and Death of the Liverpool Care Pathway’, British Medical Journal, 347(7918): 24.
Christman, J., and Anderson, J. 2005. (eds) Autonomy and the Challenges to Liberalism. Cambridge: Cambridge University Press.
Clark, H. H., and Gerrig, R. J. (1990) ‘Quotation as Demonstration’, Language 66: 784–805.
Clark, T. (2010) ‘On ‘Being Researched’: Why Do People Engage with Qualitative Research?’, Qualitative Research, 10(4): 399–419.
Cleary, M., Freeman, A., and Walter, G. (2006) ‘Carer Participation in Mental Health Service Delivery’, International Journal of Mental Health Nursing, 15(3): 189–194.
Clements, L. (2011) ‘Disability, Dignity and the Cri De Coeur’, European Human Rights Law Review, 6: 678–685.
Clough, B., and Brazier, M. (2014) ‘Never Too Old for Health and Human Rights?’, Medical Law International, 14(3): 133–156.
Cobb, N. (2008) ‘Compulsory Care-Giving: Some Thoughts on Relational Feminism, the Ethics of Care and Omissions Liability’, Cambrian Law Review, 39: 11–25.
Cohen-Almagor, R. (2009) ‘Euthanasia Policy and Practice in Belgium: Critical Observations and Suggestions for Improvement’, Issues in Law and Medicine, 24(3): 187–218.
Committee on the Rights of People with Disabilities (2014) General Comment No. 1 on Article 12: Equal Recognition before the Law CRPD/C/GC/1.
Cooper, D. (2004) Challenging Diversity: Rethinking Equality and the Value of Difference. Cambridge: Cambridge University Press.
Cooper, D. (2007) ‘”Well You Go There to Get Off”: Visiting Feminist Care Ethics through a Women’s Bathhouse’, Feminist Theory, 8(3): 243–262.
Cowan, D. (2004) ‘Legal Consciousness: Some Observations’, Modern Law Review, 67(6): 928–958.
Danzon, P. M. (1985) Medical Malpractice – Theory, Evidence and Public Policy. Cambridge, MA: Harvard University Press.
Davies, N., Maio, L., Vedavanam, K., Manthorpe, J. Vernooij-Dassen, M., and Illife, S. (2014) ‘Barriers to the Provision of High-Quality Palliative Care for People with Dementia in England: A Qualitative Study of Professionals’ Experiences’, Health and Social Care in the Community, 22(4): 386–394.
De Wet, Erika (2004) ‘The Prohibition on Torture as an International Norm of jus cogens and Its Implications for National and Customary Law’, European Journal of International Law, 15(1): 97–121.
Department of Health (DH) (2002) Shifting the Balance of Power: The Next Steps. NHS Executive: London.
Department of Health (DH) (2009b) Listening, Responding, Improving – A Guide to Better Customer Care. London: Department of Health.
Department of Health (DH) (2012a) Transforming Care: A National Response to Winterbourne View. London: Department of Health.
Dewing, J. (2007) ‘Participatory Research: A Method for Process Consent with Persons Who Have Dementia’, Dementia, 6(1): 11–25.
Dickens, A. P., Richards, S. H., Greaves, C. J., and Campbell, J. L (2011) ‘Interventions Targeting Social Isolation in Older People: A Systematic Review’, BMC Public Health, 11(647): doi: 10.1186/1471-2458-11-647.
Donnelly, M. (2009) ‘Best Interests, Patient Participation and the Mental Capacity Act 2005’, Medical Law Review. 17(1): 1–29.
Donnelly, M. (2010) Healthcare Decision-Making and the Law: Autonomy, Capacity and the Limits of Liberalism. Cambridge: Cambridge University Press.
Donnelly, M. (2014) ‘A Legal Overview’, in Foster, C., Herring, J. and Doron, I. (eds) The Law and Ethics of Dementia, pp. 271–282. Oxford: Hart.
Doron, I., and Werner, P. (2008) ‘Facts on Law and Ageing Quiz: Older People’s Knowledge of Their Legal Rights’, Ageing and Society. 28: 1159–1174.
Doron, I., Gal, I., Shavit, M., and Weisberg-Yosub, P. (2011) ‘Unheard Voices: Complaint Patterns of Older Persons in the Health Care System’, European Journal of Ageing, 8(1): 63–71.
Douglas, G., Woodward, H., Humphrey, A., Morrell, G., and Mills, L. (2010) ‘Inheritance and the Family: Public Attitudes’, Family Law. (December): 1308–1316.
Douglas, G., Woodward, H., Humphrey, A., Mills, L., and Morrell, G. (2011) ‘Enduring Love: Attitudes to Family and Inheritance Law in England and Wales’, Journal of Law and Society. 38(2): 245–271.
Drakopoulou, M. (2000) ‘The Ethic of Care, Female Subjectivity and Feminist Legal Scholarship’, Feminist Legal Studies 8: 199–226.
Drennan, V. M., Cole, L., and Illife, S. (2011) ‘A Taboo within a Stigma? A Qualitative Study of Managing Incontinence with People with Dementia Living at Home’, BMC Geriatrics 2011, 11(75 ): DOI: www.biomedcentral.com/1471–2318/11/75.
Dunn, M., Clare, I., and Holland, A. (2008) ‘To Empower or to Protect? Constructing the Vulnerable Adult in English Law and Policy’, Legal Studies 28(2): 234–253.
Dworkin, G., Frey, R. G., and Bok, S. (1998) Euthanasia and Physician-Assisted Suicide: For and Against. Cambridge: Cambridge University Press.
Dworkin, R. (1986) ‘Autonomy and the Demented Self’, The Millbank Quarterly. 64: 4–16.
Dworkin, R. (1993) Life’s Dominion: An Argument about Abortion, Euthanasia, and Individual Freedom. New York: Knopf.
Dyer, C. (2014) ‘NHS Trusts Have New Duty to Be Honest about Mistakes’, British Medical Journal: doi: dx.doi.org/10.1136/bmj.g7334 (published 01 December 2014).
Erol, R., Brooker, D., and Peel, E. (2015) Women and Dementia: A Global Research Review. London: Alzheimer’s Disease International, available at: www.alz.co.uk/women-and-dementia, last accessed 4 October 2016.
Erol, R., Brooker, D., and Peel, E. (2016) ‘The Impact of Dementia on Women Internationally: An Integrative Review’, Health Care for Women International: doi:10.1080/07399332.2016.1219357. Advance access.
Ewick, P., and Silbey, S. (1998) The Common Place of Law: Stories from Everyday Life. London: Chicago University Press.
Felstiner, W. L. F., Abel, R. L., and Sarat, A. (1980–1981) ‘The Emergence and Transformation of Disputes: Naming, Blaming, Claiming … ’, Law and Society Review 15(3–4): 631–654.
Fineman, M. A. (2004) The Autonomy Myth: A Theory of Dependency. New York: The New Press.
Fineman, M. A. (2008) ‘The Vulnerable Subject: Anchoring Equality in the Human Condition’, Yale Journal of Law and Feminism 20(1): 1–23.
Fineman, M. A. (2010) ‘The Vulnerable Subject and the Responsive State’, Emory Law Journal, 60(2): 251–275.
Fineman, M. A. (2011) ‘Vulnerability, Equality and the Human Condition’, in Jones, J., Grear, A., Fenton, R. and Stevenson, K. (eds) Gender, Sexualities and Law, pp. 53–62. London: Routledge.
Fineman, M. A. (2012) “Elderly’ as Vulnerable: Rethinking the Nature of Individual and Societal Responsibility’, The Elder Law Journal, 20(1): 71–112.
Fineman, M. A. (2013) ‘Equality, Autonomy and the Vulnerable Subject in Law and Politics’, in Fineman, M. A. and Greer, A. (eds) Vulnerability: Reflections on a New Ethical Foundation for Law and Politics, pp. 13–28. Farnham: Ashgate.
Fineman, M. A. (2014) ‘Vulnerability, Resilience, and LGBT Youth’, Temple Political and Civil Rights Law Review, 23: 307–330.
Fisher, B., and Tronto, J. C. (1991) ‘Toward a Feminist Theory of Care’, in Abel, E. and Nelson, M. (eds) Circles of Care: Work and Identity in Women’s Lives, pp. 35–62. Albany, NY: State University of New York Press.
Fletcher, R. (2017) ‘Negotiating Strangeness on the Abortion Trail’, in Harding, R., Fletcher, R. and Beasley, C. (eds) ReValuing Care in Theory, Law and Policy: Cycles and Connections, pp. 14–30. Abingdon: Routledge.
Foster, C., Herring, J., and Doron, I. (eds) (2014) The Law and Ethics of Dementia. Oxford: Hart Publishing.
Foucault, M. (1983) The History of Sexuality, Volume 3: Care of the Self.
Foucault, M. (1991) ‘Governmentality’, in Burchell, G., Gordon, C. and Miller, P (eds), The Foucault Effect: Studies in Governmentality, pp. 87–104. Chicago: University of Chicago Press.
Francis, R. (2013) Report of the Mid Staffordshire NHS Trust Public Inquiry. London: Crown Copyright.
Gal, I., and Doron, I. (2007) ‘Informal Complaints on Health Services: Hidden Patterns, Hidden Potentials’, International Journal for Quality in Health Care 19(3): 158–163.
Gal, I., Weisberg-Yosub, P., Shavit, M., and Doron, I., (2010) ‘Complaints on Health Services: A Survey of Person with Disabilities’, Journal of Disability Policy Studies 21(3): 181–188.
Gallagher, R (2011) ‘Swallowing Difficulties: A Prognostic Signpost’, Canadian Family Physician 57(12): 1407–1409.
Gaugler, J. E., Yu, F., Krichbaum, K., and Wyman, J. F. (2009) Predictors of Nursing Home Admission for Persons with Dementia. Medical Care 47(2): 191–198.
GBD (2014) ‘Global, Regional, and National Age–Sex Specific All-Cause and Cause-Specific Mortality for 240 Causes of Death, 1990–2013: A Systematic Analysis for the Global Burden of Disease Study 2013’, The Lancet 385: 117–171.
Genn, H. (1999) Paths to Justice: What People Do and Think about Going to Law. Oxford: Hart.
Genn, H., and Lloyd-Bostock, S. (1995) Medical Negligence Research Project: The Operation of the Tort System in Medical Negligence Cases, final report to the Nuffield Foundation. London: Nuffield Foundation.
Genova, L. (2010) Still Alice. London: Pocket Books.
George, R. H. (2011) ‘In Defence of Dissent: R (McDonald) v Royal Borough of Kensington and Chelsea’, Elder Law Journal 1(4): 409–414.
Georges, J., Jansen, S., Jackson, J., Meyrieux, A., Sadowska, A., and Selmes, M. (2008) ‘Alzheimer’s Disease in Real Life – The Dementia Carer’s Survey’, International Journal of Geriatric Psychiatry 23: 546–551.
Gilligan, C. (1982) In a Different Voice: Psychological Theory and Women’s Development. Cambridge, MA: Harvard University Press.
Glenn, E. N. (2010) Forced to Care: Coercion and Caregiving in America. Cambridge, MA: Harvard University Press.
Golan, O. G. (2014) ‘End-of-Life Care’, in Foster, C., Herring, J., and Doron, I., (eds) The Law and Ethics of Dementia, pp. 393–420. Oxford: Hart Publishing.
Grear, A. (2011) ‘The Vulnerable Living Order: Human Rights and the Environment in a Critical and Philosophical Perspective’, Journal of Human Rights and the Environment 2(1): 23–44.
Greenwood, N., and Smith, R. (2015) ‘Barriers and Facilitators for Male Carers in Accessing Formal and Informal Support: A Systematic Review’, Maturitas: The European Menopause Journal 82(2): 162–169.
Grice, P. (1989) Studies in the Way of Words. Cambridge, MA: Harvard University Press.
Hansson, S. (2015) ‘Calculated Overcommunication: Strategic Use of Prolixity, Irrelevance and Repetition in Administrative Language’, Journal of Pragmatics 84: 172–188.
Harding, R. (2008) ‘Recognising (and Resisting) Regulation: Attitudes to the introduction of civil partnership’, Sexualities 11(6): 741–762.
Harding, R. (2011) Regulating Sexuality: Legal Consciousness in Lesbian and Gay Lives. Routledge: London.
Harding, R. (2012) ‘Legal Constructions of Dementia: Discourses of Autonomy at the Margins of Capacity’, Journal of Social Welfare and Family Law 34(4): 425–442.
Harding, R. (2014) ‘Dementia and Carers: Relationality and informal carers’ experiences’, in Foster, C., Herring, J., and Doron, I. (eds) The Law and Ethics of Dementia, pp. 379–391. Oxford: Hart.
Harding, R. (2015) ‘Statutory Wills and the Limits of Best Interests Decision-Making’, Modern Law Review 78(6): 945–970.
Harding, N., and Palfrey, C. (1997) The Social Construction of Dementia: Confused Professionals? London: Jessica Kingsley Publishers.
Harding, R., and Peel, E. (2010) Duties to Care: A Socio-Legal Exploration of Caring for People with Dementia. Funded by the British Academy (Grant no: SG1000017).
Harding, R., and Peel, E. (2013) ‘“He Was Like a Zombie”: Off-label Prescription of Antipsychotic Drugs in Dementia’, Medical Law Review 21(2): 243–277.
Harding, R., Fletcher, R., and Beasley, C. (eds) (2017) ReValuing Care in Theory Law and Policy: Cycles and connections Abingdon: Routledge.
Harpwood, V. (2007) Medicine, Malpractice and Misapprehensions. Abingdon: Routledge-Cavendish.
Heer, K., Larkin, M. Burchess, I., and Rose, J. (2012) ‘The Cultural Context of Care-Giving: Qualitative Accounts from South Asian Parents Who Care for a Child with Intellectual Disabilities in the UK’, Advances in Mental Health and Intellectual Disabilities 6(4): 179–191.
Held, V. (2006) The Ethics of Care: Personal, Political and Global. Oxford: Oxford University Press.
Hellstrom, I., Nolan, M., Nordenfelt, L., and Lundh, U. (2007) ‘Ethical and Methodological Issues in Interviewing Persons with Dementia’ Nursing Ethics 14(5): 608–619.
Herring, J. (1999) ‘The Human Rights Act and the Welfare Principle in Family Law – Conflicting or Complementary?’, Child and Family Law Quarterly 11(3): 223–235.
Herring, J. (2013) Caring and the Law. Oxford: Hart.
Herring, J. (2016) Medical Law and Ethics, 6th edition. Oxford: Oxford University Press.
Herring, J., and Foster, C. (2012) ‘Welfare Means Relationality, Virtue and Altruism’, Legal Studies 32(3): 480–498.
Hervey, T. K., and McHale, J. V. (2015) European Union Health Law: Themes and Implications. Cambridge: Cambridge University Press.
Hirst, M. (2005) ‘Carer Distress: A Prospective, Population-Based Study’, Social Science and Medicine 61(3): 697–708.
Holt, E. (1996) ‘Reporting on Talk: The Use of Direct Reported Speech in Conversation’, Research on Language and Social Interaction 29(3): 219–245.
Holt, G. R. (2011) ‘Editorial: Timely Diagnosis of Alzheimer Disease Gives Patients Opportunities to Make Choices’, Southern Medical Journal 104(12): 779–780.
Hope, T., Keene, J., and Gedling, K. (1998) ‘Predictors of Institutionalization for People with Dementia Living at Home with a Carer’, International Journal of Geriatric Psychiatry 13: 682–690
Horsey, K., and Rackley, E. (2015) Tort Law. Oxford: Oxford University Press.
Huang, Y., Chu, C., Ho, C., Lan, S., Hsieh, C., and Hsieh, Y. (2014) ‘Decision-Making Factors Affecting Different Family Members regarding the Placement of Relatives in Long-Term Care Facilities’, BMC Health Services Research 14(21): www.biomedcentral.com/1472–6963/14/21.
Hussein, S., and Manthorpe, J. (2012) ‘The Dementia Social Care Workforce in England: Secondary Analysis of a National Workforce Dataset’, Aging & Mental Health 16(1): 110–118.
Illife, S., and Manthorpe, J. (2004) ‘Editorial: The Hazards of Early Recognition of Dementia: A Risk Assessment’, Aging and Mental Health 8(2): 99–105.
Ingham, H., Bamford, S., and Jones, G. (2015) The Costs and Benefits of Paying All the Lowest-Paid Care Home Workers in the UK the Living Wage. York: Joseph Rowntree Foundation.
Innes, A. (2009) Dementia Studies: A Social Science Perspective. London: Sage.
Innes, A., Blackstock, K., Mason, A., Smith, A., and Cox, S. (2005) ‘Dementia Care Provision in Rural Scotland: Service Users’ and Carers’ Experiences’, Health and Social Care in the Community 13(4): 354–365.
Jackson, E. (2013) ‘The Liverpool Care Pathway Review’, Elder Law Journal 3(4): 402–404.
Jackson, E. (2016) Medical Law: Text, Cases and Materials. 4th edition. Oxford: Oxford University Press.
Jackson, E., and Keown, J. (2012) Debating Euthanasia. Oxford: Hart Publishing.
Jha, A., Tabet, N., and Orrell, M. (2001) ‘To Tell or Not to Tell—Comparison of Older Patients’ Reaction to Their Diagnosis of Dementia and Depression’, International Journal of Geriatric Psychiatry 16: 879–885.
Johnson, H., Bouman, W. P., and Pinner, G. (2000) ‘On Telling the Truth in Alzheimer’s Disease: A Pilot Study of Current Practice and Attitudes’, International Psychogeriatrics 12(2): 221–229.
Johnson, T. M., Ouslander, J. G., Uman, G. C., and Schnelle, J. F. (2001) ‘Urinary Incontinence Treatment Preferences in Long-Term Care’, Journal of the American Geriatric Society 49:710–718.
Kant, I. (2002) Groundwork for the Metaphysics of Morals, edited and translated by Wood, A. W.. New Haven: Yale University Press.
Kao, H. -F., and Stuifbergen, A. K. (1999) ‘Family Experiences Related to the Decision to Institutionalize an Elderly Member in Taiwan: An Exploratory Study’, Social Science and Medicine 49(8): 1115–1123.
Katbamna, S., Bhakta, P., Ahmad, W., Baker, R., and Parker, G. (2002) ‘Supporting South Asian Carers and Those They Care for: The Role of the Primary Health Care Team’, The British Journal of General Practice 52(477): 300–305.
Kelly, F., and Innes, A. (2013) ‘Human Rights, Citizenship, and Dementia Care Nursing’, International Journal of Older People Nursing 8(1): 61–70.
Keown, J. (1995) Euthanasia Examined: Ethical, Clinical and Legal Perspectives. Cambridge: Cambridge University Press.
Keown, J. (2002) Euthanasia, Ethics and Public Policy: An Argument against Legalisation. Cambridge: Cambridge University Press.
Kerridge, R (2009) Parry and Kerridge: The Law of Succession, 12th Edition. London: Sweet and Maxwell.
Kirby, P. (2006) ‘Theorising Globalisation’s Social Impact: Proposing the Concept of Vulnerability’, Review of International Political Economy 13(4): 632–655.
Kitzinger, C. (2015) ‘Feminism and the “Right to Die”: Editorial Introduction to the Special Feature’, Feminism and Psychology 25(1): 101–104.
Laurie, G., Harmon, S., and Porter, G. (2016) Mason and McCall Smith’s Law and Medical Ethics, 10th Edition. Oxford: Oxford University Press.
Law Commission (2011) Adult Social Care (Law Com No, 326). London: TSO.
Leckey, R. (2008) Contextual Subjects: Family, State and Relational Theory. Toronto: University of Toronto Press.
Lewis, P. (2007) Assisted Dying and Legal Change. Oxford: Oxford University Press.
Lewis, P. (2011) ‘Informal Legal Change on Assisted Suicide: The Policy for Prosecutors’, Legal Studies 31(1): 119–134.
Lloyd, B. T., and Stirling, C. (2011) ‘Ambiguous Gain: Uncertain Benefits of Service Use for Dementia Carers’, Sociology of Health and Illness 33(6): 899–913.
Lloyd-Bostock, S. (1999) ‘Calling Doctors and Hospitals to Account: Complaining and Claiming as Social Processes’, in Rosenthal, M., Mulcahy, L. and Lloyd-Bostok, S. M. (eds) Medical Mishaps: Pieces of the Puzzle, pp. 109–123. Buckingham: Open University Press.
Luppa, M., Luck, T., Braehler, E., Koenig, H. H., and Riedel-Heller, S. G. (2008) ‘Prediction of Institutionalisation in Dementia: A Systematic Review’, Dementia and Geriatric Cognitive Disorders 26: 65–78.
MacKenzie, C., and Stoljar, N. (eds) (2000a) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self. Oxford: Oxford University Press.
MacKenzie, C., and Stoljar, N. (2000b) ‘Introduction: Autonomy Refigured’, In MacKenzie, C. and Stoljar, N. (eds) Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self, pp. 3–31. Oxford: Oxford University Press.
Macneil, I. R. (1983) ‘Values in Contract: Internal and External’, Northwestern University Law Review 78: 340–418.
Macneil, I. R. (2000) ‘Relational Contract Theory: Challenges and Queries’, Northwestern University Law Review 94: 877–907.
Maguire, C. P., Kirby, M., Coen, R., Coakley, D., Lawlor, B. A., and O’Neill, D. (1996) ‘Family Members’ Attitudes toward Telling the Patient with Alzheimer’s Disease Their Diagnosis’, British Medical Journal 313: 529–530.
Mandelstam, M. (2011b) How We Treat the Sick: Neglect and Abuse in Our Health Services. London: Jessica Kingsley.
Manthorpe, J., and Martineau, S. (2011) ‘Serious Case Reviews in Adult Safeguarding in England’, British Journal of Social Work 41(2): 224–241.
Mavronicola, N. (2012) ‘What Is an ‘Absolute Right’? Deciphering Absoluteness in the Context of Article 3 of the European Convention on Human Rights’, Human Rights Law Review 12(4): 723–758.
May, M. L., and Stengel, D. B. (1990) ‘Who Sues Their Doctors: How Patients Handle Medical Grievances’, Law and Society Review 24(1): 105–120.
McDermott, M. (2010) ‘Commentary: YL v Birmingham City Council and Others’, in Hunter, R., McGlynn, C. and Rackley, E. (eds) Feminist Judgments: From Theory to Practice, pp. 311–328. Oxford: Hart.
McLean, S., (2010) Autonomy, Consent and the Law. Abingdon: Routledge.
Meeusen, K., Van den Block, L., Echteld, M., Boffin, N., Bilsen, J., Van Casteren, V., and Deliens, L. (2012) ‘Older People Dying with Dementia: A Nationwide Study’, International Psychogeriatrics 24(10): 1581–1591.
Menzel, P. T., and Chandler-Cramer, M. C. (2014) ‘Advance Directives, Dementia, and Withholding Food and Water by Mouth’, Hastings Center Report 44(3): 23–37.
Merry, S. E. (1990) Getting Justice and Getting Even: Legal Consciousness among Working-Class Americans. London: University of Chicago Press.
Mitchell, S. L., Teno, J. M., Kiely, D. K., Shaffer, M. L., Jones, R. N., Prigerson, H. G., Volicer, L., Givens, J. L., and Hamel, M. B. (2009) ‘The Clinical Course of Advanced Dementia’, The New England Journal of Medicine 361(16): 1529–1538.
Molyneaux, V., Butchard, S., Simpson, J., and Murray, C. (2011) ‘Reconsidering the Term “Carer”: A Critique of the Universal Adoption of the Term “Carer”’, Ageing and Society 31: 422–437.
Monk, D. (2011) ‘Sexuality and Succession Law: Beyond Formal Equality’, Feminist Legal Studies 19(3): 231–250.
Morgan, D. L. (2007) ‘Paradigms Lost and Pragmatism Regained: Methodological Implications of Combining Qualitative and Quantitative Methods’, Journal of Mixed Methods Research 1: 48–76.
Mulcahy, L. (2003) Disputing Doctors: The Socio-Legal Dynamics of Complaints about Medical Care. Maidenhead: Open University Press.
Mulcahy, L., and Lloyd-Bostock, S. (1992) ‘Complaining – What’s the Use?’in Dingwall, R and Fenn, P (eds) Quality in Health Care, pp. 51–68. London: Routledge.
Mulcahy, L., and Rosenthal, M. (1999) ‘Beyond Blaming and Perfection: A Multi-Dimensional Approach to Medical Mishap’, in Rosenthal, M., Mulcahy, L. and Lloyd-Bostock, S. (eds) Medical Mishaps: Pieces of the Puzzle, pp. 3–19. Buckingham: Open University Press.
Mulcahy, L., and Tritter, J. (1998) ‘Pathways, Pyramids and Icebergs? Mapping the Links between Dissatisfaction and Complaints’, Sociology of Health and Illness 20(6): 823–845.
Munro, V. E., and Scoular, J. (2012) ‘Abusing Vulnerability? Contemporary Law and Policy Responses to Sex Work in the UK’, Feminist Legal Studies 20: 189–206.
Musa, I., Seymour, J., Narayamsany, M. J., Wada, T., and Conroy, S. (2015) ‘A Survey of Older Peoples’ Attitudes towards Advance Care Planning’, Age and Ageing 44: 371–376.
Myers, G. (1999) ‘Functions of Reported Speech in Group Discussions’, Applied Linguistics 20(3): 376–401.
Naffine, N. (2008) Law’s Meaning of Life: Philosophy, Religion, Darwin and the Legal Person. Oxford and Portland, Oregon: Hart Publishing.
National Institute for Clinical Excellence (NICE) (2006/2016) Dementia: supporting people with dementia and their carers in health and social care (CG42), available at: www.nice.org.uk/guidance/cg42, last accessed 27 September 2016.
Neuberger, J., Guthrie, C., Aaronovitch, D., Hammed, K., Bonser, T., Harries, R., Charlesworth-Smith, D., Jackson, E., Cox, D., and Waller, S. (2013) More Care, Less Pathway: A Review of the Liverpool Care Pathway, available at: www.gov.uk/government/publications/review-of-liverpool-care-pathway-for-dying-patients, last accessed on 19 September 2016.
Neville, C., Beattie, E., Fielding, E., and MacAndrew, M. (2015) ‘Literature Review: Use of Respite by Carers of People with Dementia’, Health and Social Care in the Community 23(1): 51–63.
Nedelsky, J. (1989) ‘Reconceiving Autonomy: Sources, Thoughts, Possibilities’, Yale Journal of Law and Feminism, 1:7–36.
Nedelsky, J. (2011) Law’s Relations: A Relational Theory of Self, Autonomy and Law. Oxford: Oxford University Press.
Noddings, N. (2013) Caring: A Feminine Approach to Ethics and Moral Education. Berkeley: University of California Press.
Novak, D. B., Plummer, R., Smith, R. L., Ochtill, H., Morrow, G. R., Bennett, J. M. (1979) ‘Changes in Physicians’ Attitudes toward Telling the Cancer Patient’, Journal of the American Medical Association 241: 897–900.
O’Connor, D. (2007) ‘Self-Identifying as a Caregiver: Exploring the Positioning Process’, Journal of Aging Studies 21(2): 165–174.
O’Rourke, G. (2016) ‘Older People, Personalisation and Self: An Alternative to the Consumerist Paradigm in Social Care’, Ageing and Society, 36: 1008–1030.
Oken, D. (1961) ‘What to Tell Cancer Patients’, Journal of the American Medical Association 175: 1120–1128.
Oliviero, K. E. (2011) ‘Sensational Nation and the Minutemen: Gendered Citizenship and Moral Vulnerabilities’, Signs 36(3): 679–706.
Öslund, U., Kidd, L., Wengström, Y., and Rowa-Dewar, N. (2011) ‘Combining Qualitative and Quantitative Research within Mixed Method Designs: A Methodological Review,’ International Journal of Nursing Studies 48: 369–383.
Ott, B. R., Heindel, W. C., Papandonatos, G. D., Festa, E. K., Davis, J. D., Daiello, L. A., Morris, J. C. (2008) ‘A Longitudinal Study of Drivers with Alzheimer Disease’, Neurology 70(14): 1171–1178.
Pannick, Lord (2009) ‘Functions of a Public Nature’, Judicial Review 14: 109–112.
Patel, B. B., and Holland, N. W. (2011) Adverse Effects of Acetylcholinesterase Inhibitors Clinical Geriatrics 19(1): 27–30.
Peel, E. (2014) “The Living Death of Alzheimer’s’ versus ‘Take a Walk to Keep Dementia at Bay’: Representation of Dementia in Print Media and Carer Discourse’, Sociology of Health and Illness 36(6): 885–901.
Peel, E. (2015) ‘Diagnostic Communication in the Memory Clinic: A Conversation Analytic Perspective’, Aging and Mental Health 19(12): 1123–1130.
Peel, E. (2017) “It Has Had Quite a Lot of Reverberations through the Family’: Reconfiguring Relationships through Parent with Dementia Care’, In Harding, R., Fletcher, R. and Beasley, C. (Eds.) Revaluing Care in Theory, Law and Policy: Cycles and Connections, pp. 198–214. Abingdon: Routledge.
Peel, E., and Harding, R. (2014). ‘“It’s a Huge Maze, the System, It’s a Terrible Maze”: Dementia Carers’, Constructions of Navigating Health and Social Care Services’, Dementia: The International Journal of Social Research and Practice 13(5): 642–661.
Peel, E., and Harding, R. (2015) A Right to ‘Dying Well’ with Dementia? Capacity, ‘Choice’ and Relationality. Feminism and Psychology, 25(1): 137–142.
Peel, E., Parry, O., Douglas, M., and Lawton, J. (2006) ‘“It’s No Skin off My Nose”: Why People Take Part in Qualitative Research’, Qualitative Health Research 16(10): 1335–1349.
Perfect, D. (2012) Gender Pay Gaps 2012. Briefing Paper No. 6, Manchester: Equality and Human Rights Commission.
Pinner, G. (2000) ‘Truth-Telling and the Diagnosis of Dementia’, British Journal of Psychiatry 176: 514–515.
Priaulx, N. (2007) The Harm Paradox: Tort Law and the Unwanted Child in an Era of Choice. Abingdon: Routledge.
Pritchard-Jones, L. (2016) The Good, the Bad, and the ‘Vulnerable Older Adult’, Journal of Social Welfare and Family Law, 38(1): 51–72.
Rachels, J. (1986) The End of Life. Oxford: Oxford University Press.
Riggs, D., and Peel, E. (2016) Critical Kinship Studies: An Introduction to the Field. London: Palgrave Macmillan.
Robison, J., Fortinsky, R., Kleppinger, A., Shugrue, N., and Porter, M. (2009) ‘A Broader View of Family Caregiving: Effects of Caregiving and Caregiver Conditions on Depressive Symptoms, Health, Work, and Social Isolation’, Journal of Gerontology: Social Sciences, 64B(6): 788–798.
Robinson, B. C. (1983) ‘Validation of a Caregiver Strain Index’, Journal of Gerontology 38(3): 344–348.
Robinson, J. (1999) ‘The Price of Deceit: The Reflections of an Advocate’, in Rosenthal, M., Mulcahy, L. and Lloyd-Bostock, S. (eds) Medical Mishaps: Pieces of the Puzzle, pp. 246–256. Buckingham: Open University Press.
Rose, N. (1999) Powers of Freedom: Reframing Political Thought, Cambridge: Cambridge University Press.
Rosenthal, M. M., Mulcahy, L., and Lloyd-Bostock, S. (eds) (1999) Medical Mishaps: Pieces of the Puzzle. Buckingham: Open University Press.
Royal College of Psychiatrists (2011) Report of the National Audit of Dementia Care in General Hospitals Editors: Young, J., Hood, C., Woolley, R., Gandesha, A. and Souza, R.. London: Healthcare Quality Improvement Partnership.
Royal College of Psychiatrists (2013). National Audit of Dementia care in general hospitals 2012–13: Second round audit report and update Editors: Young, J., Hood, C., Woolley, R., Gandesha, A. and Souza, R.. London: HQIP.
Samsi, K., and Manthorpe, J. (2011) ‘”I Live for Today”: A Qualitative Study Investigating Older People’s Attitudes to Advance Planning’, Health and Social Care in the Community 19(1): 52–59.
Satz, A. (2009) ‘Animals as Vulnerable Subjects: Beyond Interest-Convergence, Hierarchy, and Property’, Animal Law Review, 16(1): 65–122.
Savitch, N., Abbott, E., and Parker, G. M. (2015) Dementia: Through the Eyes of Women. Research Report. York: Joseph Rowntree Foundation.
Scourfield, P. (2007) ‘Are There Reasons to Be Worried about the ‘Caretelization’ of Residential Care?’, Critical Social Policy 27(2): 155–180.
Scourfield, P. (2011) ‘Caretelization Revisited and the Lessons of Southern Cross’, Critical Social Policy 32(1): 137–148.
Sevenhuijsen, S. (2003) ‘The Place of Care: The Relevance of the Feminist Ethic of Care for Social Policy’, Feminist Theory, 4(2): 179–197.
Shakespeare, T. (2012) ‘Still a Health Issue’, Disability and Health Journal 5(3): 129–131.
Sheldon, T. (2005) ‘Dutch Approve Euthanasia for a Patient with Alzheimer’s Disease’, British Medical Journal 330: 1041.
Silbey, S. S. (2005) ‘After Legal Consciousness’, Annual Review of Law and Social Science 1: 323–368.
Sloan, B. (2013) Informal Carers and Private Law. Oxford: Hart Publishing.
Slote, M. (2007) The Ethics of Care and Empathy Abingdon: Routledge.
Smith, K., Humphreys, J., and Jones, J. (2006) ‘Essential Tips for Measuring Levels of Consumer Satisfaction with Rural Health Service Quality’, Rural and Remote Health 6(4): 594, available at: www.rrh.org.au/articles/subviewnew.asp?ArticleID=594, last accessed 28 September 2016.
Smith, S. W. (2012) End-of-Life Decisions in Medical Care: Principles and Policies for Regulating the Dying Process Cambridge: Cambridge University Press.
Spitznagel, M. B., Tremont, G., Duncan Davies, J., Foster, S.M., (2006) ‘Psychosocial predictors of dementia caregiver desire to institutionalize: caregiver, care recipient, and family relationship factors’, Journal of Geriatric Psychiatry and Neurology 19: 16–20.
Steele, J. (2014) Tort Law: Text, Cases and Materials, 3rd Edition. Oxford: Oxford University Press.
Stirling, C., Andrews, S., Croft, T., Vickers, J., Turner, P., and Robinson, A. (2010) ‘Measuring Dementia Carers’ Unmet Need for Services – An Exploratory Mixed Method Study’, BMC Health Services Research, 10(122), available at: https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-10-122, last accessed 2 May 2017.
Stewart, A. (2017) ‘Carers as Legal Subjects’, in Harding, R., Fletcher, R. and Beasley, C. (eds) ReValuing Care in Theory Law and Policy: Cycles and Connections, pp. 148–164. London: Routledge.
Sweeting, H., and Gilhooly, M. (1997) ‘Dementia and the phenomena of social death’, Sociology of Health and Illness 19(1): 93–117.
Tannen, D. (1989) Talking Voices: Repetition, Dialogue, and Imagery in Conversational Discourse. Cambridge: Cambridge University Press.
Thaler, R. H., and Sunstein, C. R. (2009) Nudge: Improving Decisions about Health, Wealth and Happiness London: Penguin Books.
Tronto, J. C. (1993) Moral Boundaries: A Political Argument for an Ethic of Care. London: Routledge.
van der Steen, J. T. (2010) ‘Dying with Dementia What We Know after More than a Decade of Research’, Journal of Alzheimer’s Disease 22: 37–55.
van der Steen, J. T., Radbruch, L., Hertogh, C. M. P. M., de Boer, M. E., Hughes, J. C., Larkin, P., Francke, A. L., Jünger, S., Gove, D., Firth, P., Koopmans, R. T. C. M., and Volicer, L. (2014) ‘White Paper Defining Optimal Palliative Care in Older People with Dementia a Delphi Study and Recommendations from the European Association for Palliative Care’, Palliative Medicine, 28: 197–209.
Vincent, C., Young, M., and Phillips, A. (1994) ‘Why Do People Sue Doctors? A Study of Patients and Relatives Taking Legal Action’, The Lancet 343: 1609–1613.
Vlachogianni, A., Efthymiou, A., Potamianou, D., Sakka, P., and Orgeta, V. (2016) ‘Life after Care: Psychological Adjustment to Bereavement in Family Carers of People with Dementia’, International Psychogeriatrics 28(5): 815–823.
Waldrop, D.P., (2007) ‘Caregiver Grief in Terminal Illness and Bereavement: A Mixed-Method Study’, Health and Social Work 32(3): 197–206.
Wessel, M., Lynøe, N., Juth, N., and Helgesson, G. (2012) ‘The Tip of an Iceberg? A Cross-Sectional Study of the General Public’s Experiences of Reporting Healthcare Complaints in Stockholm, Sweden’, BMJ Open 2(1): 1–5.
Woods, B., and Pratt, R. (2005) ‘Awareness in Dementia: Ethical and Legal Issues in Relation to People with Dementia’, Aging and Mental Health, 9:5, 423–429.
Woolham, J., and Benton, C. (2013) ‘The Costs and Benefits of Personal Budgets for Older People: Evidence from a Single Local Authority’, British Journal of Social Work 43 (8) 1472–1491.
Yeates, V (2007) ‘Ambivalence, Contradiction and Symbiosis: Carers’ and Mental Health Users’ Rights’, Law and Policy 29(4): 435–459.
Xie, J. Brayne, C., and Matthews, F. E. (2008) ‘Survival Times in People with Dementia: Analysis from Population Based Cohort Study with 14 Year Follow-Up’, BMJ 336: 258–261.
