Skip to main content Accessibility help
×
Hostname: page-component-76fb5796d-wq484 Total loading time: 0 Render date: 2024-04-26T19:28:02.495Z Has data issue: false hasContentIssue false

36 - Nursing care

from Part IV - Complications and supportive care

Published online by Cambridge University Press:  01 July 2010

Pamela S. Hinds
Affiliation:
Member and Director, Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA
Jami S. Gattuso
Affiliation:
Nursing Research Specialist, Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA
Belinda N. Mandrell
Affiliation:
Pediatric Nurse Practitioner, Patient Care Services, St. Jude Children's Research Hospital, Memphis, TN, USA
Ching-Hon Pui
Affiliation:
St. Jude Children's Research Hospital, Memphis
Get access

Summary

Introduction

In the treatment of children and adolescents with leukemia, nursing care complements and extends the efforts of other members of the health-care team. The focus of nursing care is on the long-term as well as immediate needs of patients and their families, and thus includes strategies to prevent or manage complications and sequelae of the disease and its treatment. Another integral aspect of nursing care is assisting individual patients and families in achieving their developmental goals during the period of treatment and follow-up.

In this chapter, rather than describing the challenges of pediatric oncology nursing or detailing practice recommendations specific to the care of young patients with leukemia, we provide a framework within which these aspects can be addressed and apply this framework to several practice examples. This framework includes three levels of environment and seven possible treatment phases. The relationships between nursing strategies and both the level of environment and the phase of care are illustrated in examples of several major concerns that can arise in the treatment of childhood leukemia. For convenience, we have based our examples primarily on the treatment of childhood acute lymphoblastic leukemia (ALL), but the same principles apply to other leukemias in children. Whenever possible, we have focused on the results of nursing research and their application to practice.

An environmental model

The nursing care of a child or adolescent with leukemia extends beyond a set of symptoms or specific treatment and disease-related events.

Type
Chapter
Information
Childhood Leukemias , pp. 882 - 893
Publisher: Cambridge University Press
Print publication year: 2006

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Last, B. F. & Veldhuizen, A. M. van. Psychosocial research in childhood cancer. In , N. K. Aaronson & , J. H. Beckmann, eds., The Quality of Life of Cancer Patients (New York: Raven Press, 1987), pp. 127–34.Google Scholar
Rait, D. S. & Holland, J. C.Pediatric cancer: psychosocial issues and approaches. Mediguide Oncol, 1986; 6: 1–5.Google Scholar
Hinds, P.Quality of life in children and adolescents with cancer. Semin Oncol Nurs, 1990; 6: 285–91.CrossRefGoogle ScholarPubMed
Blotcky, A. D., Racznski, J. M., Gurwitch, R., et al.Family influences on hopefulness among children early in the cancer experience. J Pediatr Psychol, 1985; 10: 479–93.CrossRefGoogle Scholar
Hinds, P., Martin, J., & Vogel, R.Nursing strategies to influence adolescent hopefulness during oncologic illness. J Assoc Pediatr Oncol Nurs, 1987; 4: 14–22.CrossRefGoogle ScholarPubMed
Lester, J., Glass, E., & Owen, E.Statement on the Scope and Standards of Advanced Practice in Oncology Nursing, (Pittsburgh, PA: Oncology Nursing Press, Inc, 1997).Google Scholar
Barnsteiner, J. H. Assuring professional practice. In , J. Disch, ed. The Managed Care Challenge for Nurse Executives, (Chicago, IL: American Organization of Nurse Executives, 1996), pp. 75–86.Google Scholar
McCalla, J. L., Santacroce, S. J., & Woolery-Antill, M. Nursing support of the child with cancer. In , P. A. Pizzo & , D. G. Poplack, eds., Principles and Practice of Pediatric Oncology, 2nd edn. (Philadelphia, PA: J. B. Lippincott, 1993), pp. 1059–78.Google Scholar
Falvo, D.Effective Patient Education: A Guide to Increased Compliance (Rockville, MD: Aspen Publications, 1985).Google Scholar
Doak, C., Doak, L., & Root, J.Teaching Patients with Low Literacy Skills, 2nd edn. (Philadelphia, PA: J. B. Lippincott, 1996).Google Scholar
Embon, C., Goldstein, K., Hall, M., et al.Congential leukemia: comprehensive nursing care for a rare disease: a case study. Neonatal Netw, 1995; 14: 7–14.Google Scholar
Hunt, J.Childhood leukemia. Pediatr Nurs, 1995; 7: 29–35.CrossRefGoogle Scholar
Hockenberry-Eaton, M.Alcoser, P., Brace-O'Neill, J., et al.Fatigue in children and adolescents with cancer. J Assoc Pediatr Oncol Nurs, 1998; 15: 172–82.CrossRefGoogle ScholarPubMed
Hinds, P., Hockenberry-Eaton, M., Quargnenti, A., et al.Fatigue in 7- to 12-year-old patients with cancer from the staff perspective: an exploratory study. Oncol Nurs Forum, 1999: 26: 37–45.Google ScholarPubMed
Hinds, P., Hockenberry-Eaton, M., Gilger, E., et al.Comparing patient, parent, and staff descriptions of fatigue in pediatric oncology patients. Cancer Nurs, 1999; 22: 277–89.CrossRefGoogle ScholarPubMed
Hockenberry-Eaton, M., Hinds, P., Brace O'Neil, J., et al.Developing a conceptual model for fatigue in children. Eur J Oncol Nurs, 1999; 3: 5–11.CrossRefGoogle Scholar
Hockenberry-Eaton, M. & Hinds, P.Fatigue in children and adolescents with cancer: evolution of a program of study. Sem Oncol Nurse, 2000; 16: 261–72.CrossRefGoogle Scholar
Landier, W.Childhood acute lymphoblastic leukemia: current perspectives. Oncol Nurs Forum, 2001: 28: 824–33.Google ScholarPubMed
Hinds, P.Promoting health in pediatric oncology patients. J Pediatr Oncol Nurs, 1994: 11: 91.CrossRefGoogle ScholarPubMed
Koocher, G. & O'Malley, J.The Damocles Syndrome: Psychosocial Consequences of Surviving Childhood Cancer (New York: McGraw-Hill, 1981).Google Scholar
Mann, J. R. Psychosocial aspects of leukemia and other cancers during childhood. In , N. K. Aaronson & , J. H. Beckmann, eds., The Quality of Life of Cancer Patients (New York: Raven Press, 1987), pp. 135–40.Google Scholar
Hinds, P. & Martin, J.Hopefulness and the self-sustaining process in adolescents with cancer. Nurs Res, 1988; 37: 336–40.CrossRefGoogle ScholarPubMed
Kamps, W., Akkerboon, J., Kungma, A., et al.Experimental chemotherapy in children with cancer – a parents' view. Pediatr Hematol Oncol, 1987; 4: 117–24.CrossRefGoogle Scholar
Rahman, S. Leukemia. In Hockenberry-Eaton, M., ed., Essentials of Pediatric Oncology Nursing: A Core Curriculum (Glenview, IL: APON, 1998), pp. 15–20.Google Scholar
Keene, N.Childhood Leukemia: A Guide for Families, Friends and Caregivers (Sebastopol, CA: O'Reilly & Associates, Inc, 2002).Google Scholar
Hinds, P. & Martin, J.Hopefulness and the self-sustaining process in adolescents with cancer. Nurs Res, 1988; 37: 336–40.CrossRefGoogle ScholarPubMed
McGrath, P.Beginning treatment for childhood acute lymphoblastic leukemia: insights from the parents' perspective. Oncol Nurs Forum, 2002: 29: 988–96.CrossRefGoogle ScholarPubMed
West, N., Oakes, L., Hinds, P., et al.Measuring pain in pediatric oncology ICU patients. J Ped Oncol Nurs, 1994; 11: 64–8.CrossRefGoogle ScholarPubMed
Peterson, D. & Peterson, G. The new challenge in pediatric cancer care. In , J. Van Eys, ed., The Truly Cured Child (Baltimore, MD: University Press, 1977), pp. 101–5.Google Scholar
Curley, M. The essence of pediatric critical care nursing. In , M. A. Curley, , J. B. Smith, & , P. A. Moloney-Harmon, eds., Critical Care Nursing of Infants and Children, (Philadelphia, PA: W. B. Saunders, 1996), pp. 3–14.Google Scholar
Westlake, S. K. & Bertolone, K. L. Acute lymphoblastic leukemia. In , C. R. Baggott, , K. P. Kelly, , D. Fochtman, & , G. V. Foley, eds., Nursing Care of Children and Adolescents with Cancer, 3rd edn. (Philadelphia, PA: W. B. Saunders, 2002), pp. 466–90.Google Scholar
Ablin, A. R.Supportive Care of Children with Cancer: Current Therapy and Guidelines from the Children's Cancer Group (Baltimore, MD: The Johns Hopkins University Press, 1993).Google Scholar
Hinds, P., Wentz, T., Hughes, W., et al.An investigation of the safety of the blood reinfusion step used with tunneled venous access devices in children with cancer. J Ped Oncol Nurs, 1991; 8: 159–64.CrossRefGoogle ScholarPubMed
Spitzer, A.Primary nursing in childhood cancer as applied in Israel. Cancer Nurs, 1985; 8: 89–95.CrossRefGoogle ScholarPubMed
Hockenberry, M. J. & Coody, D. K., eds., Pediatric Oncology and Hematology: Perspectives on Care (St. Louis, MO: Mosby, 1986).Google Scholar
Norville, R., Hinds, P., Wilimas, J., et al.The effects of infusion methods on platelet count, morphology, and corrected count increment in children with cancer: in vitro and in vivo studies. Oncol Nurs Forum, 1994; 21: 1669–73.Google ScholarPubMed
Norville, R., Hinds, P., Wilimas, J., et al.The effects of infusion rates on platelet outcomes and patient responses in children with cancer. Oncol Nurs Forum, 1997; 24: 179–93.Google ScholarPubMed
Nespoli, L., Verri, A. P., Locatelli, F., et al.The impact of paediatric bone marrow transplantation on quality of life. Qual Life Res, 1995; 4: 233–40.CrossRefGoogle ScholarPubMed
Hinds, P., Quargnenti, A., Gattuso, J., et al.Comparing the results of coagulation tests on blood drawn by venipuncture and through tunneled venous access devices in pediatric patients with cancer. Oncol Nurs Forum, 2002; 29: E1–9.CrossRefGoogle ScholarPubMed
Oakes, L., Hinds, P., Bhaskar, R., et al.Chest tube stripping in pediatric oncology patients: an experimental study. Am Crit Care, 1993; 2: 293–301.Google Scholar
Hockenberry, M. J. Crisis points in cancer. In , M. J. Hockenberry & , D. K. Coody, eds., Pediatric Oncology and Hematology: Perspectives on Care, (St. Louis, MO: Mosby, 1986), pp. 432–49.Google Scholar
Hudson, M. M., Tyc, V. L., Srivastava, D. K., et al.Multi-component behavioral intervention to promote health protective behaviors in childhood cancer survivors. Med Pediatr Oncol, 2002; 39: 2–11.CrossRefGoogle ScholarPubMed
National Cancer Institute. When Cancer Recurs: Meeting the Challenge Again, NIH Publication 90–2709. (Bethesda, MD: National Cancer Institute, 1990).
Green, D. M.The diagnosis and management of Wilms tumor. Pediatr Clin North Am, 1985; 32: 735–54.CrossRefGoogle ScholarPubMed
Grier, H. E. & Weinstein, H. J.Acute nonlymphocytic leukemia. Pediatr Clin North Am, 1985; 32: 653–67.CrossRefGoogle ScholarPubMed
Poplack, D. G.Acute lymphoblastic leukemia in childhood. Pediatr Clin North Am, 1985; 32: 669–97.CrossRefGoogle ScholarPubMed
Hinds, P., Birenbaum, L., Clarke-Steffen, L., et al.Coming to terms: parent's response to a first cancer recurrence in their child. Nurs Res, 1996; 45: 148–53.CrossRefGoogle Scholar
Hinds, P., Birenbaum, L., Pedrosa, A., & Pedrosa, M.Guidelines for the recurrence of pediatric cancer. Sem Oncol Nurs, 2002; 18 50–9.CrossRefGoogle ScholarPubMed
49 Coyle, N. & Layman-Goldstein, M. Pain assessment and management in palliative care. In , M. L. Matzo & , D. L. Sherman, eds., Palliative Care Nursing: Quality Care to the End of Life (New York: Springer, 2001), pp. 362–486.Google Scholar
Wolfe, J., Grier, H. E., Klar, N., et al.Symptoms and suffering at the end of life in children with cancer. N Eng J Med, 2000; 342: 326–33.CrossRefGoogle ScholarPubMed
Kane, J. R. & Himelstein, B. P. Palliative care in pediatrics. In , A. M. Berger, , R. K. Portenoy, & , D. E. Weissman, eds., Principles and Practice of Palliative Care and Supportive Oncology, 2nd edn. (Philadelphia, PA: Lippincott, Williams & Wilkins, 2002), pp. 1044–59.Google Scholar
Bradlyn, A. S. & Patterson, K. Psychosocial management in pediatric oncology. In , A. K. Ritchey, ed., Supportive Care Manual (St. Louis, MO: Pediatric Oncology Group, 1996).Google Scholar
Field, M. J. & Behrman, R. E., eds., When Children Die: Improving Palliative and End-of-life Care for Children and their Families, (Washington, DC: National Academies Press, 2003).Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

  • Nursing care
    • By Pamela S. Hinds, Member and Director, Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA, Jami S. Gattuso, Nursing Research Specialist, Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA, Belinda N. Mandrell, Pediatric Nurse Practitioner, Patient Care Services, St. Jude Children's Research Hospital, Memphis, TN, USA
  • Edited by Ching-Hon Pui
  • Book: Childhood Leukemias
  • Online publication: 01 July 2010
  • Chapter DOI: https://doi.org/10.1017/CBO9780511471001.037
Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

  • Nursing care
    • By Pamela S. Hinds, Member and Director, Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA, Jami S. Gattuso, Nursing Research Specialist, Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA, Belinda N. Mandrell, Pediatric Nurse Practitioner, Patient Care Services, St. Jude Children's Research Hospital, Memphis, TN, USA
  • Edited by Ching-Hon Pui
  • Book: Childhood Leukemias
  • Online publication: 01 July 2010
  • Chapter DOI: https://doi.org/10.1017/CBO9780511471001.037
Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

  • Nursing care
    • By Pamela S. Hinds, Member and Director, Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA, Jami S. Gattuso, Nursing Research Specialist, Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, TN, USA, Belinda N. Mandrell, Pediatric Nurse Practitioner, Patient Care Services, St. Jude Children's Research Hospital, Memphis, TN, USA
  • Edited by Ching-Hon Pui
  • Book: Childhood Leukemias
  • Online publication: 01 July 2010
  • Chapter DOI: https://doi.org/10.1017/CBO9780511471001.037
Available formats
×