Skip to main content Accessibility help
×
Hostname: page-component-848d4c4894-xfwgj Total loading time: 0 Render date: 2024-06-17T00:29:18.093Z Has data issue: false hasContentIssue false

2 - Clashing Perspectives and a Call for Reconciliation

Published online by Cambridge University Press:  07 June 2011

Alicia Ouellette
Affiliation:
Albany Law School
Get access

Summary

The events and issues that have precipitated and explain the emergence of bioethics as a scholarly field and a social movement differ in a fundamental way from the events and issues that have inspired and explain the emergence of disability studies as a scholarly field and disability activism as a social movement. As detailed in Chapter 1, the field of bioethics emerged largely in response to the perceived mistreatment of individuals by researchers and health care providers: experiments conducted without individual consent, medical procedures forced on or denied to individual patients, the denial of an organ to a particular person. To be sure, emerging technologies triggered a great deal of discussion and continue to broaden the scope of bioethical inquiry well beyond the realms of research and clinical medicine, but the focus of much bioethical discussion was and remains the appropriate use of particular medical interventions for particular individuals. By contrast, the disability rights movement formed largely in response to perceived mistreatment of the community as a whole: the purposeful elimination of people with disabilities from the human race, the systematic exclusion of persons with disabilities from employment and education, and the systematic devaluation of people with disabilities in popular culture. It is hardly surprising, then, that the movement's primary focus was and remains on community concerns. That is not to say that members of the disability community are not concerned with what happens to individuals – they are.

Type
Chapter
Information
Bioethics and Disability
Toward a Disability-Conscious Bioethics
, pp. 47 - 71
Publisher: Cambridge University Press
Print publication year: 2011

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Kuczewski, Mark & Kirschner, Kristi, Bioethics and Disability: A Civil War?, 24 Theoretical Med. 455 (2003)CrossRefGoogle Scholar
Newall, Christopher, Disability, Bioethics, and Rejected Knowledge, 31 J. Med. & Phil. 269, 276 (2006) (deeming bioethics a “disabling project”)CrossRefGoogle Scholar
The Oxford Handbook of Bioethics (Steinbock, Bonnie ed., Oxford University Press 2007)
A Companion to Bioethics (Kuhse, Helga & Singer, Peter, eds., Wiley-Blackwell 2007)
Handbook of Disability Studies (Albrecht, Gary L. et al. eds., Sage Publications, Inc. 2001)
The Disability Studies Reader (Davis, Lennard J. ed., 2d ed., Routledge 2006)
Sherwin, Susan, Wither Bioethics?: How Feminism Can Help Reinvent Bioethics, 2 Int'l J. of Feminist Approaches to Bioethics134 (2009)Google Scholar
Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self (MacKenzie, Catriona & Stoljar, Natalie eds., Oxford University Press 2000)Google Scholar
Batavia, Andrew I., The Relevance of Data on Physicians and Disability on the Right to Assisted Suicide: Can Empirical Studies Resolve the Issue?, 6 Psych. Pub. Pol'y & L. 546 (2000)Google ScholarPubMed
Arras, John D. et. al, Moral Reasoning in the Medical Context, inEthical Issues in Modern Medicine (Arras, John D. & Steinbock, Bonnie eds., 7th ed., McGraw-Hill 2009)Google Scholar
Beauchamp, Tom L., Does Ethical Theory Have a Future in Bioethics?, 32 J. L. Med. & Ethics209, 209 (2004)CrossRefGoogle ScholarPubMed
Arras, John D., The Way We Reason Now, inOxford Handbook of Bioethics 54 (Bonnie Steinbock ed., Oxford University Press 2009)Google Scholar
Menikoff, Jerry, Demanded Medical Care, 30 Ariz. St. L. J. 1091, 1091 (1998)Google ScholarPubMed
Malloy, Elizabeth W., Beyond Misguided Paternalism Resuscitating the Right to Refuse Medical Treatment, 33 Wake Forest L. Rev. 1035, 1037 (1998)Google ScholarPubMed
Dworkin, Ronald M., Autonomy and the Demented Self, 64 Milbank Q. 4, 10 (Supp. 2 1986)CrossRefGoogle ScholarPubMed
Drimmer, Jonathan C., Comment, Cripples, Overcomers, and Civil Rights: Tracing the Evolution of Federal Legislation and Social Policy for People with Disabilities, 40 UCLA L. Rev. 1341, 1348 (1993)Google Scholar
Asch, Adrienne, Disability, Bioethics, and Human Rights, inHandbook of Disability Studies 297–301 (Albrecht, Gary L. et al. eds., Sage Publications, Inc. 2001)Google Scholar
Daniels, N. L., Just Health Care: Studies in Philosophy and Health Policy 27 (Cambridge University Press 1985)CrossRefGoogle Scholar
Rovner, Laura L., Disability, Equality, and Identity, 55 Ala. L. Rev. 1043, 1043–44, (2004)Google Scholar
Kaplan, Deborah, The Definition of Disability: Perspective of the Disability Community, 3 J. Health Care L. & Pol'y352, 352–353 [2000])Google ScholarPubMed
Fine, Michelle & Asch, Adrienne, Disability Beyond Stigma: Social Interaction, Discrimination, and Activism, 44 J. Soc. Issues3 (1988)CrossRefGoogle Scholar
Kaplan, Deborah, The Definition of Disability: Perspective of the Disability Community, 3 J. Health Care L. & Pol'y352, 352 [2000])Google ScholarPubMed
Scotch, Richard, Understanding Disability Policy, 22 Pol'y Stud. J. 170, 172 (1994)Google Scholar
Berkowitz, Edward D., Disabled Policy: America & Programs for the Handicapped [Cambridge University Press, 1987])Google Scholar
Saigal, S. et al., Self-Perceived Health Status and Health-Related Quality of Life of Extremely Low Birthweight Infants at Adolescence, 276 J. Am. Med. Ass'n492 (1996)Google ScholarPubMed
Davis, Alison, Yes the Baby Should Live, New Scientist at 54 (1985)Google ScholarPubMed
Longmore, Paul K., Elizabeth Bouvia, Assisted Suicide, and Social Prejudice, 3 Issues L. Med. 141, 144 (1987)Google ScholarPubMed
Ouellette, Alicia, Disability and the End of Life, 85 Or. L. Rev. 123, 135 (2006)Google Scholar
Longmore, Paul K., Elizabeth Bouvia, Assisted Suicide and Social Prejudice, 3 Issues L. & Med. 141 [1987])Google ScholarPubMed
Herr, Stanley S. et al., No Place to Go: Refusal of Life-Sustaining Treatment by Competent Persons with Physical Disabilities, 8 Issues L. & Med. 36 (1992)Google ScholarPubMed
Gill, Carol J., Suicide Intervention for Persons with Disabilities: A Lesson in Inequality, 8 Issues L. & Med. 37, 39 (1996)Google Scholar
Kaveny, M. Cathleen, Proper Honoris Respectum: Managed Care, Assisted Suicide and Vulnerable Populations, 73 Notre Dame L. Rev. 1275 (1998) (discussing the dangers of physician-assisted suicide in American health care institutions and its repercussions on vulnerable populations); Conference of Transcript Socially-Assisted Dying: Media, Money & Meaning, 7 cornell j. l. & pub. pol'y 267 (1998) (illustrating views of “proponents and opponents from the disability community” concerning assisted death)Google Scholar
Mikochik, Stephen L., Assisted Suicide and Disabled People, 46 DEPAUL L.REV.987, 999 (1987)Google Scholar
Kamisar, Yale, Against Assisted Suicide – Even a Very Limited Form, 72 U. Det. Mercy L. Rev. 735 (1995)Google Scholar
Fadem, Pamela, et al., Attitudes of People with Disabilities Toward Physician-Assisted Suicide Legislation: Broadening the Dialogue, 28 J. HEALTH POL. POL'Y & L. 977 (2003)CrossRefGoogle ScholarPubMed
Milani, Adam A., Better Off Dead than Disabled?: Should Courts Recognize a “Wrongful Living” Cause of Action When Doctors Fail to Honor Patients' Advance Directives?, 54 Wash & Lee L. Rev. 149, 198 (1997)Google ScholarPubMed
Hancock, Stewart F., Jr., The Role of the Judge in Medical Treatment Decisions, 57 Alb. L. Rev. 647 (1994)Google ScholarPubMed
Francis, Leslie Pickering, Decisionmaking at the End of Life: Patients with Alzheimer's or other Dementias, 35 GA. L. Rev. 539, 551, 569–576 (2001)Google ScholarPubMed
Dworkin, Ronald M., Autonomy and the Demented Self, 64 Milbank Q. 4, 10 [Supp. 2. 1986])CrossRefGoogle ScholarPubMed

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×