Awad, AG, Voruganti, LN (2008). The burden of schizophrenia on caregivers: a review. Pharmacoeconomics 26, 149–162.
Beaglehole, R, Epping-Jordan, J, Patel, V, Chopra, M, Ebrahim, S, Kidd, M, Haines, A (2008). Improving the prevention and management of chronic disease in low-income and middle-income countries: a priority for primary health care. Lancet 372, 940–949.
Bedard, M, Pedlar, D, Martin, NJ, Malott, O, Stones, MJ (2000). Burden in caregivers of cognitively impaired older adults living in the community: methodological issues and determinants. International Psychogeriatrics 12, 307–332.
Bloom, DE (2011). 7 Billion and counting. Science 333, 562–569.
Bolin, K, Lindgren, B, Lundborg, P (2008). Your next of kin or your own career? Caring and working among the 50+ of Europe. Journal of Health Economics 27, 718–738.
Brummett, BH, Boyle, SH, Siegler, IC, Kuhn, CM, Surwit, RS, Garrett, ME, Collins, A, Ashley-Koch, A, Williams, RB (2008). HPA axis function in male caregivers: effect of the monoamine oxidase-A gene promoter (MAOA-uVNTR). Biological Psychology 79, 250–255.
Buntin, MB, Zaslavsky, AM (2004). Too much ado about two-part models and transformation? Comparing methods of modeling Medicare expenditures. Journal of Health Economics 23, 525–542.
Carmichael, F, Charles, S (2003). The opportunity costs of informal care: does gender matter? Journal of Health Economics 22, 781–803.
Carter, R (2008). Addressing the caregiving crisis. Preventing Chronic Disease 5, A02.
Christakis, NA, Allison, PD (2006). Mortality after the hospitalization of a spouse. New England Journal of Medicine 354, 719–730.
Christensen, K, Doblhammer, G, Rau, R, Vaupel, JW (2009). Ageing populations: the challenges ahead. Lancet 374, 1196–1208.
Chumbler, NR, Grimm, JW, Cody, M, Beck, C (2003). Gender, kinship and caregiver burden: the case of community-dwelling memory impaired seniors. International Journal of Geriatric Psychiatry 18, 722–732.
Ekwall, AK, Sivberg, B, Hallberg, IR (2007). Older caregivers' coping strategies and sense of coherence in relation to quality of life. Journal of Advanced Nursing 57, 584–596.
Fredman, L, Cauley, JA, Satterfield, S, Simonsick, E, Spencer, SM, Ayonayon, HN, Harris, TB (2008). Caregiving, mortality, and mobility decline: the Health, Aging, and Body Composition (Health ABC) Study. Archives of Internal Medicine 168, 2154–2162.
Fredman, L, Doros, G, Ensrud, KE, Hochberg, MC, Cauley, JA (2009). Caregiving intensity and change in physical functioning over a 2-year period: results of the caregiver-study of osteoporotic fractures. American Journal of Epidemiology 170, 203–210.
Gallo, LC, Jimenez, JA, Shivpuri, S, Espinosa de los, Monteros K, Mills, PJ (2011). Domains of chronic stress, lifestyle factors, and allostatic load in middle-aged Mexican-American women. Annals of Behavioral Medicine 41, 21–31.
Gysels, M, Evans, N, Menaca, A, Andrew, E, Toscani, F, Finetti, S, Pasman, HR, Higginson, I, Harding, R, Pool, R (2012). Culture and end of life care: a scoping exercise in seven European countries. PLoS One 7, e34188.
Haley, WE, Allen, JY, Grant, JS, Clay, OJ, Perkins, M, Roth, DL (2009). Problems and benefits reported by stroke family caregivers: results from a prospective epidemiological study. Stroke 40, 2129–2133.
Haley, WE, Roth, DL, Howard, G, Safford, MM (2010). Caregiving strain and estimated risk for stroke and coronary heart disease among spouse caregivers: differential effects by race and sex. Stroke 41, 331–336.
Happe, S, Berger, K (2002). The association between caregiver burden and sleep disturbances in partners of patients with Parkinson's disease. Age and Ageing 31, 349–354.
Harkness, J, Pennell, BE, Villar, A, Gebler, N, Aguilar-Gaxiola, S, Bilgen, I (2008). Translation procedures and translation assessment in the World Mental Health Survey Initiative. In The WHO World Mental Health Surveys: Global Perspectives on the Epidemiology of Mental Disorders (ed. Kessler, R. C. and Üstün, T. B.), pp. 91–113. Cambridge University Press: New York.
Harwood, DG, Barker, WW, Ownby, RL, Bravo, M, Aguero, H, Duara, R (2000). Predictors of positive and negative appraisal among Cuban American caregivers of Alzheimer's disease patients. International Journal of Geriatric Psychiatry 15, 481–487.
Hastrup, LH, Van Den Berg, B, Gyrd-Hansen, D (2011). Do informal caregivers in mental illness feel more burdened? A comparative study of mental versus somatic illnesses. Scandinavian Journal of Public Health 39, 598–607.
Heeringa, SG, Wells, EJ, Hubbard, F, Mneimneh, ZN, Chiu, WT, Sampson, NA, Berglund, PA (2008). Sample designs and sampling procedures. In The WHO World Mental Health Surveys: Global Perspectives on the Epidemiology of Mental Disorders (ed. Kessler, R. C. and Üstün, T. B.), pp. 14–32. Cambridge University Press: New York.
Heitmueller, A (2007). The chicken or the egg? Endogeneity in labour market participation of informal carers in England. Journal of Health Economics 26, 536–559.
Heitmueller, A, Inglis, K (2007). The earnings of informal carers: wage differentials and opportunity costs. Journal of Health Economics 26, 821–841.
Hickenbottom, SL, Fendrick, AM, Kutcher, JS, Kabeto, MU, Katz, SJ, Langa, KM (2002). A national study of the quantity and cost of informal caregiving for the elderly with stroke. Neurology 58, 1754–1759.
Hosmer, DW, Lemeshow, S (2000). Applied Logistic Regression, 2nd edn. Wiley and Sons: New York.
Idstad, M, Roysamb, E, Tambs, K (2011). The effect of change in mental disorder status on change in spousal mental health: the HUNT study. Social Science and Medicine 73, 1408–1415.
Izuhara, M (2004). Negotiating family support? The generational contract between long term care and inheritance. Journal of Social Policy 33, 649–665.
Jacobzone, S (2000). Coping with aging: international challenges. Health Affairs (Millwood) 19, 213–225.
Kakuma, R, Minas, H, van Ginneken, N, Dal Poz, MR, Desiraju, K, Morris, JE, Saxena, S, Scheffler, RM (2011). Human resources for mental health care: current situation and strategies for action. Lancet 378, 1654–1663.
Kessler, RC, Üstün, TB (editors) (2008). The WHO World Mental Health Surveys: Global Perspectives on the Epidemiology of Mental Disorders. Cambridge University Press: New York.
Kiecolt-Glaser, JK, Dura, JR, Speicher, CE, Trask, OJ, Glaser, R (1991). Spousal caregivers of dementia victims: longitudinal changes in immunity and health. Psychosomatic Medicine 53, 345–362.
King, AC, Brassington, G (1997). Enhancing physical and psychological functioning in older family caregivers: the role of regular physical activity. Annals of Behavioral Medicine 19, 91–100.
Kring, SI, Brummett, BH, Barefoot, J, Garrett, ME, Ashley-Koch, AE, Boyle, SH, Siegler, IC, Sørensen, TI, Williams, RB (2010). Impact of psychological stress on the associations between apolipoprotein E variants and metabolic traits: findings in an American sample of caregivers and controls. Psychosomatic Medicine 72, 427–433.
Kusano, CT, Bouldin, ED, Anderson, LA, McGuire, LC, Salvail, FR, Simmons, KW, Andresen, EM (2011). Adult informal caregivers reporting financial burden in Hawaii, Kansas, and Washington: results from the 2007 Behavioral Risk Factor Surveillance System. Disability and Health Journal 4, 229–237.
Lamura, G, Mnich, E, Nolan, M, Wojszel, B, Krevers, B, Mestheneos, L, Dohner, H (2008). Family carers' experiences using support services in Europe: empirical evidence from the EUROFAMCARE study. Gerontologist 48, 752–771.
Lee, R (2011). The outlook for population growth. Science 333, 569–573.
Levine, C, Halper, D, Peist, A, Gould, DA (2010). Bridging troubled waters: family caregivers, transitions, and long-term care. Health Affairs (Millwood) 29, 116–124.
Levinson, D, Lakoma, MD, Petukhova, M, Schoenbaum, M, Zaslavsky, AM, Angermeyer, M, Borges, G, Bruffaerts, R, de Girolamo, G, de Graaf, R, Gureje, O, Haro, JM, Hu, C, Karam, AN, Kawakami, N, Lee, S, Lepine, JP, Browne, MO, Okoliyski, M, Posada-Villa, J, Sagar, R, Viana, MC, Williams, DR, Kessler, RC (2010). Associations of serious mental illness with earnings: results from the WHO World Mental Health surveys. British Journal of Psychiatry 197, 114–121.
Lin, JP, Yi, CC (2011). Filial norms and intergenerational support to aging parents in China and Taiwan. International Journal of Social Welfare 20, S109–S120.
Lockenhoff, CE, Duberstein, PR, Friedman, B, Costa, PT (2011). Five-factor personality traits and subjective health among caregivers: the role of caregiver strain and self-efficacy. Psychology and Aging 26, 592–604.
Losada, A, Robinson Shurgot, G, Knight, BG, Marquez, M, Montorio, I, Izal, M, Ruiz, MA (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging and Mental Health 10, 69–76.
Mathers, CD, Lopez, AD, Murray, CJL (2006). The burden of disease and mortality by condition: data, methods, and results for 2001. In Global Burden of Disease and Risk Factors (ed. Lopez, A. D., Mathers, C. D., Ezzati, M., Jamison, D. T. and Murray, C. J. L.). World Bank: Washington, DC.
Maulik, PK, Darmstadt, GL (2007). Childhood disability in low- and middle-income countries: overview of screening, prevention, services, legislation, and epidemiology. Pediatrics 120 (Suppl. 1), S1–S55.
McCullagh, P, Nelder, JA (1989). Generalized Linear Models, 2nd edn. Chapman and Hall: London.
Morse, JQ, Shaffer, DR, Williamson, GM, Dooley, WK, Schulz, R (2012). Models of self and others and their relation to positive and negative caregiving responses. Psychology and Aging 27, 211–218.
Navaie-Waliser, M, Spriggs, A, Feldman, PH (2002). Informal caregiving: differential experiences by gender. Medical Care 40, 1249–1259.
Nomura, H, Inoue, S, Kamimura, N, Shimodera, S, Mino, Y, Gregg, L, Tarrier, N (2005). A cross-cultural study on expressed emotion in carers of people with dementia and schizophrenia: Japan and England. Social Psychiatry and Psychiatric Epidemiology 40, 564–570.
Northridge, ME (1995). Public health methods – attributable risk as a link between causality and public health action. American Journal of Public Health 85, 1202–1204.
Opree, SJ, Kalmijn, M (2012). Exploring causal effects of combining work and care responsibilities on depressive symptoms among middle-aged women. Ageing and Society 32, 130–146.
Papastavrou, E, Charalambous, A, Tsangari, H, Karayiannis, G (2012). The burdensome and depressive experience of caring: what cancer, schizophrenia, and Alzheimer's disease caregivers have in common. Cancer Nursing 35, 187–194.
Pennell, B-E, Mneimneh, Z, Bowers, A, Chardoul, S, Wells, JE, Viana, MC, Dinkelmann, K, Gebler, N, Florescu, S, He, Y, Huang, Y, Tomov, T, Vilagut, G (2008). Implementation of the World Mental Health Surveys. In The WHO World Mental Health Surveys: Global Perspectives on the Epidemiology of Mental Disorders (ed. Kessler, R. C. and Üstün, T. B.), pp. 33–57. Cambridge University Press: New York.
Pinquart, M, Sörensen, S (2003 a). Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. Journal of Gerontology: Series B, Psychological Sciences and Social Sciences 58, P112–P128.
Pinquart, M, Sörensen, S (2003 b). Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychology and Aging 18, 250–267.
Pinquart, M, Sörensen, S (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. Gerontologist 45, 90–106.
Pinquart, M, Sörensen, S (2006). Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. Journal of Gerontology: Series B, Psychological Sciences and Social Sciences 61, P33–P45.
Pinquart, M, Sörensen, S (2007). Correlates of physical health of informal caregivers: a meta-analysis. Journal of Gerontology: Series B, Psychological Sciences and Social Sciences 62, P126–P137.
Pinquart, M, Sörensen, S (2011). Spouses, adult children, and children-in-law as caregivers of older adults: a meta-analytic comparison. Psychology and Aging 26, 1–14.
Poulin, MJ, Brown, SL, Ubel, PA, Smith, DM, Jankovic, A, Langa, KM (2010). Does a helping hand mean a heavy heart? Helping behavior and well-being among spouse caregivers. Psychology and Aging 25, 108–117.
Prince, M (2004). Care arrangements for people with dementia in developing countries. International Journal of Geriatric Psychiatry 19, 170–177.
Prince, M, Livingston, G, Katona, C (2007). Mental health care for the elderly in low-income countries: a health systems approach. World Psychiatry 6, 5–13.
Schneider, J, Murray, J, Banerjee, S, Mann, A (1999). EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: I – Factors associated with carer burden. International Journal of Geriatric Psychiatry 14, 651–661.
Schulz, R, Beach, SR (1999). Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. Journal of the American Medical Association 282, 2215–2219.
Siegler, IC, Brummett, BH, Williams, RB, Haney, TL, Dilworth-Anderson, P (2010). Caregiving, residence, race, and depressive symptoms. Aging and Mental Health 14, 771–778.
Sörensen, S, Pinquart, M, Duberstein, P (2002). How effective are interventions with caregivers? An updated meta-analysis. Gerontologist 42, 356–372.
Stoltz, P, Uden, G, Willman, A (2004). Support for family carers who care for an elderly person at home – a systematic literature review. Scandinavian Journal of Caring Sciences 18, 111–119.
Torti, FM Jr., Gwyther, LP, Reed, SD, Friedman, JY, Schulman, KA (2004). A multinational review of recent trends and reports in dementia caregiver burden. Alzheimer Disease and Associated Disorders 18, 99–109.
Vitaliano, PP, Zhang, J, Scanlan, JM (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin 129, 946–972.
Vogeli, C, Shields, AE, Lee, TA, Gibson, TB, Marder, WD, Weiss, KB, Blumenthal, D (2007). Multiple chronic conditions: prevalence, health consequences, and implications for quality, care management, and costs. Journal of General Internal Medicine 22 (Suppl. 3), 391–395.
Wimo, A, Winblad, B, Jonsson, L (2007). An estimate of the total worldwide societal costs of dementia in 2005. Alzheimer's and Dementia 3, 81–91.
Winter, KH, Bouldin, ED, Andresen, EM (2010). Lack of choice in caregiving decision and caregiver risk of stress, North Carolina, 2005. Preventing Chronic Disease 7, A41.
Wolter, KM (1985). Introduction to Variance Estimation. Springer-Verlag: New York.
Yee, JL, Schulz, R (2000). Gender differences in psychiatric morbidity among family caregivers: a review and analysis. Gerontologist 40, 147–164.
Youn, G, Knight, BG, Jeong, HS, Benton, D (1999). Differences in familism values and caregiving outcomes among Korean, Korean American, and White American dementia caregivers. Psychology and Aging 14, 355–364.