Andershed, B. (2006). Relatives in end-of-life care, part 1: A systematic review of the literature the five last years, January 1999-February 2004. Journal of Clinical Nursing, 15, 1158–1169.
Axelsson, B. & Sjödén, P-O. (1998). Quality of life of cancer patients and their spouses in palliative home care. Palliative Medicine, 12, 29–39.
Baider, L., Uwe, K., Isacson, R., et al. (1998). Prospective study of cancer patients and their spouses: the weakness of marital strength. Psycho-oncology, 7, 49–56.
Eriksson, E., Arve, S. & Lauri, S. (2006). Informal and emotional support received by relatives before and after the cancer patient's death. European Journal of Oncology Nursing, 10, 48–58.
Friedrichsen, M. (2003). Justification for information and knowledge: Perceptions of family members in palliative home care in Sweden. Palliative & Supportive Care, 1, 239–245.
Funk, L., Allan, D. & Stadjuhar, K. (2009). Palliative family caregivers' accounts of health care experiences: The importance of “security.” Palliative & Supportive Care, 7, 435–447.
Harding, R. & Higginson, I. (2003). What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliative Medicine, 17, 63–74.
Harding, R. & Higginson, I. (2001). Working with ambivalence: informal caregivers of patients at the end of life. Supportive Care in Cancer, 9, 642–645.
Harrison, J., Haddad, P. & Maquire, P. (1995). The impact of cancer on key caregivers: a comparison of relative and patient concerns. European Journal of Cancer, 31A, 1736–1740.
Hauksdóttir, A., Steineck, G., Fürst, C.J., et al. (2010a). Long-term harm of low preparedness for a wife's death from cancer—A population-based study of widowers 4–5 years after the loss. American Journal of Epidemiology, 172, 389–396.
Hauksdóttir, A., Valdimarsdóttir, U., Fürst, C.J., et al. (2010b). Health care-related predictors of husbands' preparedness for the death of a wife to cancer—A population-based follow-up. Annals of Oncology, 21, 354–361.
Hudson, P., Thomas, T., Quinn, K., et al. (2009). Family meetings in palliative care: Are they effective? Palliative Medicine, 23, 150–157.
Kristjanson, L. & White, K. (2002). Clinical support for families in the palliative care phase of hematologic or oncologic illness. Hematology/Oncology Clinics of North America, 16, 745–762.
Malterud, K. (1998). Kvalitativa metoder i medicinsk forskning (Qualitative methods in medical science). Lund: Studentlitteratur.
McPherson, C., Wilson, K. & Murray, M.A. (2007). Feeling like a burden: Exploring the perspectives of patients at the end of life. Social Sciences and Medicine, 64, 417–427.
Medalie, J. (1997). The patient and family adjustment to chronic disease in the home. Disability and Rehabilitation, 19, 163–170.
Milberg, A. & Strang, P. (2007). What to do when ‘there is nothing more to do’? A study within a salutogenic framework of family members' experience of palliative home care staff. Psycho-oncology, 16, 741–751.
Northouse, L., Templin, T., Mood, D., et al. (1998). Couples' adjustment to breast cancer and benign breast disease: A longitudinal analysis. Psycho-oncology, 7, 37–48.
Öhlen, J., Andershed, B., Berg, C., et al. (2007). Relatives in end of life care-part 2: A theory for enabling safety. Journal of Clinical Nursing, 16, 382–390.
Patton, M. (1990). Qualitative Evaluation Methods. London: Sage Publications.
Rollison, B. & Carlsson, M. (2002). Evaluation of advanced home care (AHC). The next-of-kin's experiences. European Journal of Oncology Nursing, 6, 100–106.
Scott, G. (2001). A study of family carers of people with a life-threatening illness 2: implication of the needs assessment. International Journal of Palliative Nursing, 7, 323–330.
Svensk Sjuksköterskeförening S.S.F. (2009). Kvalitetsindikatorer inom omvårdnad. Gothia Förlag. (The Swedish society of Nursing. Quality indicators in Nursing. Stockholm.)
Valdimarsdottir, U., Helgason, A., Fürst, C.J., et al. (2004). Awareness of husband's impending death from cancer and long-term anxiety in widowhood: A nationwide follow-up. Palliative Medicine, 18, 432–443.
Witkowski, Å. & Carlsson, M. (2004). Support group programme for relatives of terminally ill cancer patients. Supportive Care in Cancer, 12, 168–175.