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Teaching Health Law: Teaching Law Students to Be Policymakers: The Health and Science Policy Workshop on Genomic Research

Published online by Cambridge University Press:  01 January 2021

Abstract

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Type
JLME Column
Copyright
Copyright © American Society of Law, Medicine and Ethics 2012

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References

Berkman, B. E. Hull, S. S., “Ethical Issues in Genomic Databases,” in Encyclopedia of Ethics (2010).Google Scholar
Green, E.E. Guyer, M. S., “Charting a Course for Genomic Medicine from Base Pairs to Bedside,” Nature 470 (2011): 204213.)CrossRefGoogle Scholar
Illumina, , Illumina Reduces Price of Whole Human Genome Sequencing through Illumina Genome Network, Press Release, May 2011, available at <http://investor.illumina.com/phoenix.zhtml?c=121127&p=irol-newsArticle&ID=1561106&highlight=> (last visited January 31, 2012); Illumina, , Illumina Announces Bold Steps to Accelerate the Adoption of Individual Genome Sequencing, Press Release, June 2011, available at <http://investor.illumina.com/phoenix.zhtml?c=121127&p=irol-newsArticle&ID=1572084>.Google Scholar
Tabor, H. K. Berkman, B. E. Hull, S. C. Bamshad, M. J., “Genomics Really Gets Personal: How Exome and Whole Genome Sequencing Challenge the Ethical Framework of Human Genetics Research,” American Journal of Medical Genetics Part A 155 A, no. 12 (2011): 291629214.CrossRefGoogle Scholar
Wolf, S. M. et al., “Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations,” Journal of Law, Medicine & Ethics 36 no. 2 (2008): 219248.Google Scholar
See Tabor, et al., supra note 4.Google Scholar
See, e.g., Wolf, , supra note 5; Bredenoord, A. L. et al., “Disclosure of Individual Genetic Data to Research Participants: The Debate Reconsidered,” Trends in Genetics 27, no. 2 (2011): 4147; Clayton, E. W., “Incidental Findings in Genetics Research Using Archived DNA,” Journal of Law, Medicine & Ethics 36, no. 2 (2008): 286–291, at 212; Miller, F. G. Mello, M. M. Joffe, S., “Incidental Findings in Human Subjects Research: What Do Investigators Owe Research Participants?” Journal of Law, Medicine & Ethics 36, no. 2 (2008): 271–279; Shalowitz, D. I. Miller, F. G., “Disclosing Individual Results of Clinical Research: Implications of Respect for Participants,” JAMA 294, no. 6 (2005): 737–740; Richardson, H. S., “Incidental Findings and Ancillary-Care Obligations,” Journal of Law, Medicine & Ethics 36, no. 2 (2008): 256–270; Ravitsky, V. Wilfond, B. S., “Disclosing Individual Genetic Results to Research Participants” American Journal of Bioethics 6, no. 6 (2006): 8–17.Google Scholar
See, e.g., Beskow, L. M. Burke, W., “Offering Individual Genetic Research Results: Context Matters,” Science Translational Medicine 2, no. 38 (2010): 38cm20; Fabsitz, R. R. et al., “Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group,” Circulation: Cardiovascular Genetics 3, no. 6 (2010): 574–580; see Wolf, , supra note 5.CrossRefGoogle Scholar
Clinical Laboratory Improvement Act, Pub. L. 90–174, 81 Stat. 536 (1967) (current version 42 U.S.C. § 263a (2006)).Google Scholar
Segal, D., “What They Don't Teach in Law School: Lawyering,” New York Times, November 19, 2011.Google Scholar