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When Others Decide: Reasons for Allowing Patients With Alzheimer's Disease to Participate in Nontherapeutic Research

Published online by Cambridge University Press:  10 January 2005

Niels Lynöe
Affiliation:
Department of Social Medicine, University of Umeå, Umeå, Sweden.
Mikael Sandlund
Affiliation:
Department of Psychiatry, University of Umeå, Umeå, Sweden.
Lars Jacobsson
Affiliation:
Department of Psychiatry, University of Umeå, Umeå, Sweden.

Abstract

The quality of information given to family members of patients with Alzheimer's disease was studied. The patients had participated in a pharmacological investigation. The relatives were generally satisfied with the information given, and perceived it as adequate. The reasons given for allowing the patients to participate in the investigation were mainly altruistic.

Type
Compliance and Research: Brief Report
Copyright
© 1998 International Psychogeriatric Association

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