Hostname: page-component-848d4c4894-x24gv Total loading time: 0 Render date: 2024-05-21T02:40:29.544Z Has data issue: false hasContentIssue false

A timely reminder of the complexities and burden facing caregivers of patients with bvFTD

Published online by Cambridge University Press:  05 October 2021

Christina F. Chick
Affiliation:
Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, CA, USA
Ruth O’Hara*
Affiliation:
Department of Psychiatry and Behavioral Sciences, and Senior Associate Dean for Research and Senior Associate Vice Provost, Stanford University School of Medicine, Stanford, CA, USA

Abstract

Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Commentary
Copyright
© International Psychogeriatric Association 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bertoux, M., O’Callaghan, C., Flanagan, E., Hodges, J. R. and Hornberger, M. (2015). Fronto-striatal atrophy in behavioral variant frontotemporal dementia and Alzheimer’s disease. Frontiers in Neurology, 6, 147. https://doi.org/10.3389/fneur.2015.00147 CrossRefGoogle ScholarPubMed
Bora, E., Velakoulis, D. and Walterfang, M. (2016). Meta-analysis of facial emotion recognition in behavioral variant frontotemporal dementia: comparison with Alzheimer disease and healthy controls. Journal of Geriatric Psychiatry and Neurology, 29, 205211. https://doi.org/10.1177/0891988716640375 CrossRefGoogle ScholarPubMed
Chassin, L., Macy, J. T., Seo, D. C., Presson, C. C. and Sherman, S. J. (2010). The association between membership in the sandwich generation and health behaviors: a longitudinal study. Journal of Applied Developmental Psychology, 31, 3846. https://doi.org/10.1016/j.appdev.2009.06.001 CrossRefGoogle ScholarPubMed
Chick, C. F., Buck, C. and O’Hara, R. (2020). Cognitive dysfunction in late-life psychiatric disorders: phenotypes, risk factors, and treatment targets. In: Hantke, N., O’Hara, R. and Etkin, A. (Eds.), Handbook of Mental Health and Aging (p. 93). Cambridge, MA: Elsevier.CrossRefGoogle Scholar
Diehl-Schmid, J. etal. (2013). Caregiver burden and needs in frontotemporal dementia. Journal of Geriatric Psychiatry and Neurology, 26, 221229. https://doi.org/10.1177/0891988713498467 CrossRefGoogle ScholarPubMed
Do, E. K., Cohen, S. A. and Brown, M. J. (2014). Socioeconomic and demographic factors modify the association between informal caregiving and health in the Sandwich Generation. BMC Public Health, 14, 362. https://doi.org/10.1186/1471-2458-14-362 CrossRefGoogle ScholarPubMed
Ducharme, S., Price, B. H., Larvie, M., Dougherty, D. D. and Dickerson, B. C. (2015). Clinical approach to the differential diagnosis between behavioral variant frontotemporal dementia and primary psychiatric disorders. The American Journal of Psychiatry, 172, 827837. https://doi.org/10.1176/appi.ajp.2015.14101248 CrossRefGoogle ScholarPubMed
Hantke, N. and Bott, N. T. (2020). Neuropsychology with older adults. In: Hantke, N., O’Hara, R. and Etkin, A. (Eds.), Handbook of Mental Health and Aging (Vol. 3, p. 257). Cambridge, MA: Elsevier.CrossRefGoogle Scholar
Hogan, D. B. etal. (2016).The prevalence and incidence of frontotemporal dementia: a systematic review. Canadian Journal of Neurological Sciences, 43, Suppl 1, S96S109, https://doi.org/10.1017/cjn.2016.25 CrossRefGoogle ScholarPubMed
Karnatz, T. etal. (2020). Burden of caregivers of patients with frontotemporal lobar degeneration–a scoping review. International Psychogeriatics, 33, 891–911.Google Scholar
Miller, D. A. (1981). The ‘sandwich’ generation: adult children of the aging. Social Work 26, 419423.Google Scholar
Mioshi, E. etal. (2013). The impact of dementia severity on caregiver burden in frontotemporal dementia and Alzheimer disease. Alzheimer Disease & Associated Disorders, 27, 6873.CrossRefGoogle ScholarPubMed
Nunnemann, S., Kurz, A., Leucht, S. and Diehl-Schmid, J. (2012). Caregivers of patients with frontotemporal lobar degeneration: a review of burden, problems, needs, and interventions. International Psychogeriatrics, 24, 13681386. https://doi.org/10.1017/S104161021200035X CrossRefGoogle ScholarPubMed
O’Connor, C. M. etal. (2017). Behavioral-variant frontotemporal dementia: distinct phenotypes with unique functional profiles. Neurology, 89, 570577. https://doi.org/10.1212/WNL.0000000000004215 CrossRefGoogle ScholarPubMed
Ranasinghe, K. G. etal. (2016). Distinct subtypes of behavioral variant frontotemporal dementia based on patterns of network degeneration. JAMA Neurology, 73, 10781088. https://doi.org/10.1001/jamaneurol.2016.2016 CrossRefGoogle ScholarPubMed