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Promoting early dementia diagnosis: a video designed by patients, for patients

  • Nina Baruch (a1), Charlotte L. Allan (a2), Maureen Cundell (a3) (a4), Samuel Clark (a1) and Brian Murray (a1)...

Abstract

Early diagnosis of dementia allows people to access effective treatment and make advance decisions while they still have capacity. We aimed to encourage people to attend memory clinic, in order to boost rates of diagnosis. We created a patient information video about Oxford Health NHS Foundation Trust Memory Clinics, to inform and empower those awaiting assessment and to promote early diagnosis.

Fourteen people (patients, carers, and staff) were approached prior to developing the video to ascertain their views on the themes the video should cover. The video consisted of unscripted interviews with patients, carers, and staff. We surveyed participants and new patients attending memory clinic to get feedback on the video and to assess patients’ level of understanding and confidence about a memory assessment before and after watching the video. The video content was refined based on this feedback and a final version was produced.

Patient feedback demonstrated that confidence and understanding increased after watching the video.

Although this study is limited by its small sample size and lack of access to those with undiagnosed dementia, feedback suggested that the video empowered and reassured those awaiting assessment and could be used as a tool to reduce barriers to early diagnosis. Patients and carers involved in making the video found it a therapeutic activity in itself.

Copyright

Corresponding author

Correspondence should be addressed to: Dr. Nina Baruch, Older Adults Mental Health Services, Oxford Health NHS Foundation Trust, Whiteleaf Centre, Bierton Road, Aylesbury, HP20 1EG, UK. Phone: 01865901699; Fax: 01865261706. Email: ninabaruch@doctors.net.uk.

References

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Alzheimer's Society (2014). About Dementia – Statistics. Available at: https://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=341; last accessed 8 October 2016.
Boise, L., Morgan, D. L., Kaye, J. and Camicioli, R. (1999). Delays in the diagnosis of dementia: perspectives of family caregivers. American Journal of Alzheimer's Disease and Other Dementias, 14, 2026. doi: 10.1177/153331759901400101.
Bunn, F. et al. (2012). Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies. PLoS Medicine, 9, e1001331. doi:10.1371/journal.pmed.1001331.
Chrisp, T. A. C., Thomas, B. D., Goddard, W. A. and Owens, A. (2011). Dementia timeline: journeys, delays and decisions on the pathway to an early diagnosis. Dementia, 10, 555570. doi: 10.1177/1471301211409375.
Guss, R. et al. (2014). A Guide to Psychosocial Interventions in Early Stages of Dementia. Leicester: The British Psychological Society.
Hansebo, G. and Kihlgran, M. (2001). Carers’ reflections about their video-recorded interactions with patients suffering from severe dementia. Journal of Clinical Nursing, 10, 737747. doi: 10.1111/j.1365-2702.2001.00558.x.
Heward, M., Palfreman-Kay, J. and Innes, A. (2015). In their words: how television and visual media can raise awareness of dementia and other health conditions that carry stigma, including disabilities. The Journal of Popular Television, 3, 229242. doi: http://dx.doi.org/10.1386/jptv.3.2.229_1.
Manthorpe, J. et al. (2011). The Transition from Cognitive Impairment to Dementia: Older People's Experiences. Southampton: NIHR Service Delivery and Organisation programme.
Mental Capacity Act (2005). (c.9) London: Her Majesty's Stationery Office.
Office for National Statistics (2016). Internet users in the UK 2016. London: Office for National Statistics
Perry-Young, L., Owen, G., Kelly, S. and Owens, C. (2016). How people come to recognize a problem and seek medical help for a person showing early signs of dementia: a systematic review and meta-ethnography. Dementia. doi:10.1177/1471301215626889.
Prorok, J. C., Horgan, S. and Seitz, D. P. (2013). Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies. Canadian Medical Association Journal, 185, 669–80. doi:10.1503/cmaj.121795.
Robinson, L. et al. (2011). The transition to dementia–individual and family experiences of receiving a diagnosis: a review. International Psychogeriatrics, 23, 10261043. doi: http://dx.doi.org/10.1017/S1041610210002437.
Vernooij-Dassen, M. J. et al. (2005). Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma. International Journal of Geriatric Psychiatry, 20, 377386. doi: 10.1002/gps.1302.
Volandes, A. E. et al. (2009). Video decision support tool for advance care planning in dementia: randomised controlled trial. British Medical Journal, 338, b2159. doi: http://dx.doi.org/10.1136/bmj.b2159.
World Health Organization. (2012). Dementia: a public health priority. Geneva: World Health Organization.
World Health Organization. (2016). Dementia fact sheet. Available at: http://www.who.int/mediacentre/factsheets/fs362/en/; last accessed 8 October 2016.

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Supplementary materials

Baruch supplementary material S1
Appendix

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Supplementary materials

Baruch supplementary material S2
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