Alzheimer's Society (2013a). Outcomes of the James Lind Alliance Dementia Priority Setting Partnership. London: Alzheimer's Society.
Alzheimer's Society (2013b). Low Expectations: Attitudes on Choice, Care and Community for People with Dementia in Care Homes. London: Alzheimer's Society.
Aminzadeh, F., Dalziel, W. B., Molnar, F. J. and Garcia, L. J. (2009). Symbolic meaning of relocation to a residential care facility for persons with dementia. Aging and Mental Health, 13, 487–496. doi: 10.1080/13607860802607314.
Armstrong, M. (1999). Factors affecting the decision to place a relative with dementia into residential care. Nursing Standard, 14, 33–37.
Ashton, S., Roe, B. and Jack, B. (2016). Choosing a care home: families need more support. Journal of Dementia Care, 24, 22–24.
Butcher, H. K., Holkup, P. A., Park, M. and Maas, M. (2001). Thematic analysis of the experience of making a decision to place a family member with Alzheimer's disease in a special care unit. Research in Nursing and Health, 24, 470–480.
Cahill, S. M. (1997). ‘I often think I wish he were here’. Why do primary carers institutionalise family members with dementia? Australian Social Work, 50, 13–19.
Caldwell, L., Low, L. F. and Brodaty, H. (2014). Caregivers' experience of the decision-making process for placing a person with dementia into a nursing home: comparing caregivers from Chinese ethnic minority with those from English-speaking backgrounds. International Psychogeriatrics, 26, 413–424. doi: 10.1017/S1041610213002020.
Caron, C. D., Ducharme, F. and Griffith, J. (2006). Deciding on institutionalization for a relative with dementia: the most difficult decision for caregivers. Canadian Journal on Aging, 25, 193–205.
Chang, Y. P. and Schneider, J. K. (2010). Decision-making process of nursing home placement among Chinese family caregivers. Perspectives in Psychiatric Care, 46, 108–118 111p. doi: 10.1111/j.1744-6163.2010.00246.x.
Chang, Y. P., Schneider, J. K. and Sessanna, L. (2011). Decisional conflict among Chinese family caregivers regarding nursing home placement of older adults with dementia. Journal of Aging Studies, 25, 436–444. doi:10.1016/j.jaging.2011.05.001.
Chene, B. (2006). Dementia and residential placement: a view from the carers’ perspective. Qualitative Social Work, 5, 187–215. doi: 10.1177/1473325006064257.
Crawford, K., Digby, R., Bloomer, M., Tan, H. and Williams, A. (2015). Transitioning from caregiver to visitor in a long-term care facility: the experience of caregivers of people with dementia. Aging and Mental Health, 19, 739–746. doi: 10.1080/13607863.2014.962008.
Elliott, B. A., Gessert, C. E. and Peden-McAlpine, C. (2007). Decision-making on behalf of elders with advanced cognitive impairment: Family transitions. Alzheimer's Disease and Associated Disorders, 21, 49–54.
Elliott, B. A., Gessert, C. E. and Peden-McAlpine, C. (2009). Family decision-making in advanced dementia: narrative and ethics. Scandinavian Journal of Caring Sciences, 23, 251–258. doi: 10.1111/j.1471-6712.2008.00613.x.
Hagen, B. (2001). Nursing home placement. Factors affecting caregivers’ decisions to place family members with dementia. Journal of Gerontological Nursing, 27, 44–53.
Joanna Briggs Institute (2011). Joanna Briggs Institute Reviewers’ Manual: 2011 Edition. Adelaide: The Joanna Briggs Institute.
Kmet, L. M., Lee, R. C. and Cook, L. S. (2004). Standard Quality Assessment Criteria for Evaluating Primary Research Papers from a Variety of Fields. Alberta: Alberta Heritage Foundation for Medical Research.
Lord, K., Livingston, G., Robertson, S. and Cooper, C. (2016). How people with dementia and their families decide about moving to a care home and support their needs: development of a decision aid, a qualitative study. BMC Geriatrics, 16, 68. doi: 10.1186/s12877-016-0242-1.
Mamier, I. and Winslow, B. W. (2014). Divergent views of placement decision-making: a qualitative case study. Issues in Mental Health Nursing, 35, 13–20. doi: 10.3109/01612840.2013.834014.
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G. and Group, The PRISMA (2009). Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement. PLoS Med, 6, e1000097.
Orellana, K., Manthorpe, J. and Moriarty, J. (2017). What do we know about care home managers? Findings of a scoping review. Health & Social Care in the Community, 25, 366–377. doi:10.1111/hsc.12313.
Park, M., Butcher, H. K. and Maas, M. L. (2004). A thematic analysis of Korean family caregivers' experiences in making the decision to place a family member with dementia in a long-term care facility. Research in Nursing and Health, 27, 345–356. doi: 10.1002/nur.20031.
Pierre-Louis, M. (2012). Decision-Making Process of African Americans Caring for Parents with Alzheimer's. Dissertations and theses. John F. Kennedy University, California.
Sandberg, J., Lundh, U. and Nolan, M. R. (2001). Placing a spouse in a care home: the importance of keeping. Journal of Clinical Nursing, 10, 406–416.
Sanford, A. M. et al. (2015). An international definition for “nursing home”. JAMDA: Journal of the American Medical Directors Association, 16, 181–184. doi: 10.1016/j.jamda.2014.12.013.
Strang, V. R., Koop, P. M., Dupuis-Blanchard, S., Nordstrom, M. and Thompson, B. (2006). Family caregivers and transition to long-term care. Clinical Nursing Research, 15, 27–45. doi: 10.1177/1054773805282356.
The Commission on Residential Care (2014). A Vision for Care Fit for the Twenty-First Century. London: DEMOS.
Thein, N. W., D'Souza, G. and Sheehan, B. (2011). Expectations and experience of moving to a care home: perceptions of older people with dementia. Dementia, 10, 7–18. doi: 10.1177/1471301210392971.
Tilse, C. (1998). Continuing or refusing to care: the meaning of placing a spouse in long term care. American Journal of Alzheimer's Disease, Jan/Feb, 29–33.