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Elderly Latino community members make an educational video: an academic-community collaboration to promote memory evaluations

Published online by Cambridge University Press:  15 October 2018

Judith Neugroschl*
Affiliation:
Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA
Margaret C. Sewell*
Affiliation:
Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA
Mari Umpierre
Affiliation:
Department of Psychiatry, James J. Peters VAMC, Bronx, NY, USA
Raquel Rodriguez
Affiliation:
Code and Theory, New York, NY, USA
Laura Meyers
Affiliation:
Institute for Family Health, New York, NY, USA
Stephanie Kranes
Affiliation:
Independent Budget Office, New York, NY, USA
Carlos Aldrete
Affiliation:
Oxnard Union High School, Oxnard, CA, USA
Alma Collazo
Affiliation:
Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA
Licet Valois
Affiliation:
Alzheimer’s Association, New York City Chapter, New York, NY, USA
Mary Sano
Affiliation:
Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA Department of Psychiatry, James J. Peters VAMC, Bronx, NY, USA
*
Correspondence should be addressed to: Judith Neugroschl and Margaret C. Sewell, The Alzheimer’s Disease Research Center-Icahn School of Medicine at Mount Sinai, 1 Gustave L. Levy Place, Box 1230, New York, NY 10029, USA. Phone: 212-241-8329; Fax: 212-996-0987. Email: judith.neugroschl@mssm.edu; margaret.sewell@mssm.edu.
Correspondence should be addressed to: Judith Neugroschl and Margaret C. Sewell, The Alzheimer’s Disease Research Center-Icahn School of Medicine at Mount Sinai, 1 Gustave L. Levy Place, Box 1230, New York, NY 10029, USA. Phone: 212-241-8329; Fax: 212-996-0987. Email: judith.neugroschl@mssm.edu; margaret.sewell@mssm.edu.

Abstract

Objectives:

To develop an educational video to reach elderly Latinos in order to improve understanding and encourage evaluation of cognitive changes by 1) using focus groups to identify dementia knowledge gaps, health communication preferences and trusted advisors for health concerns; 2) collaborating with elderly Latino community members to create a video; and 3) collecting survey data regarding community response to the video.

Design:

Grounded theory qualitative approach using focus groups; collaborative community based model to create the video and anonymous survey at community screenings.

Setting:

Community senior centers in East Harlem, New York.

Participants:

A team of low-income mono and bilingual elderly Latino community residents, researchers, clinicians, and a film professional.

Measurements:

Thematic analysis of focus group transcripts; three item survey.

Results:

A collaboratively produced video and initial assessment in 49 Latino elders that indicated the video had a positive effect on interest in obtaining a brief memory screening at outreach events (71%).

Conclusions:

The project demonstrates the feasibility of this interdisciplinary partnership to create a culturally and linguistically sensitive video to promote service use concerning memory loss and cognitive evaluations among elderly Latinos. Initial survey results suggested a positive response and an increase in interest in memory screening.

Type
Original Research Article
Copyright
© International Psychogeriatric Association 2018 

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Footnotes

*

Co-first authors.

References

Ayalon, L. and Arean, P. A. (2004). Knowledge of Alzheimer’s disease in four ethnic groups of older adults. International Journal of Geriatric Psychiatry, 19, 5157. doi: 10.1002/gps.1037.CrossRefGoogle ScholarPubMed
Baruch, N., Allan, C. L., Cundell, M., Clark, S. and Murray, B. (2017). Promoting early dementia diagnosis: a video designed by patients, for patients. International Psychogeriatrics, 29, 863867. doi: 10.1017/S104161021600209X.CrossRefGoogle ScholarPubMed
Bhana, A. et al. (2014). The VUKA family program: piloting a family-based psychosocial intervention to promote health and mental health among HIV infected early adolescents in South Africa. AIDS Care, 26, 111. doi: 10.1080/09540121.2013.806770.CrossRefGoogle ScholarPubMed
Borrayo, E. A. (2004). Where’s Maria? A video to increase awareness about breast cancer and mammography screening among low-literacy Latinas. Preventive Medicine, 39, 99110. doi: 10.1016/j.ypmed.2004.03.024.CrossRefGoogle Scholar
Cabassa, L. J., Molina, G. B. and Baron, M. (2012). Depression fotonovela: development of a depression literacy tool for Latinos with limited English proficiency. Health Promotion Practice, 13, 747754. doi: 10.1177/1524839910367578.CrossRefGoogle ScholarPubMed
Chavez, V. et al. (2004). A bridge between communities: video-making using principles of community-based participatory research. Health Promotion Practice, 5, 395403. doi: 10.1177/1524839903258067.CrossRefGoogle ScholarPubMed
Davis, T. C., Williams, M. V., Marin, E., Parker, R. M. and Glass, J. (2002). Health literacy and cancer communication. CA: A Cancer Journal for Clinicians, 52, 134149. doi: 10.3322/canjclin.52.3.134.Google ScholarPubMed
Gagliano, M. E. (1988). A literature review on the efficacy of video in patient education. Journal of Medical Education, 63, 785792. doi: 10.1097/00001888-198810000-00006.Google ScholarPubMed
Gallagher-Thompson, D., Singer, L. S., Depp, C., Mausbach, B. T., Cardenas, V. and Coon, D. W. (2004). Effective recruitment strategies for Latino and Caucasian dementia family caregivers in intervention research. The American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 12, 484490. doi: 10.1097/00019442-200409000-00006.CrossRefGoogle ScholarPubMed
Gallagher-Thompson, D., Solano, N., Coon, D. and Arean, P. (2003). Recruitment and retention of latino dementia family caregivers in intervention research: issues to face, lessons to learn. The Gerontologist, 43, 4551. doi: 10.1093/geront/43.1.45.CrossRefGoogle Scholar
Gallagher-Thompson, D. et al. (2015). Effectiveness of a fotonovela for reducing depression and stress in Latino dementia family caregivers. Alzheimer Disease and Associated Disorders, 29, 146–53. doi: 10.1097/WAD.0000000000000077.Google ScholarPubMed
Gelman, C. R. (2010). Learning from recruitment challenges: barriers to diagnosis, treatment, and research participation for Latinos with symptoms of Alzheimer’s disease. Journal of Gerontological Social Work, 53, 94113. doi: 10.1080/01634370903361847.CrossRefGoogle ScholarPubMed
Glaser, B. and Strauss, A. (1994). The Discovery of Grounded Theory: Strategies for Qualitative Research. New Brunswick: Aldine.Google Scholar
Grigsby, T. J., Unger, J. B., Molina, G. B. and Baron, M. (2017). Evaluation of an audio-visual novela to improve beliefs, attitudes and knowledge toward dementia: a mixed-methods approach. Clinical Gerontologist, 40, 130138. doi: 10.1080/07317115.2016.1211210.CrossRefGoogle ScholarPubMed
Karlawish, J., Barg, F. K., Augsburger, D., Beaver, J., Ferguson, A. and Nunez, J. (2011). What Latino Puerto Ricans and non-Latinos say when they talk about Alzheimer’s disease. Alzheimer’s & Dementia, 7, 161170. doi: 10.1016/j.jalz.2010.03.015.CrossRefGoogle ScholarPubMed
Lam, T. K. et al. (2003). Encouraging Vietnamese-American women to obtain Pap tests through lay health worker outreach and media education. Journal of General Internal Medicine, 18, 516524. doi: 10.1046/j.1525-1497.2003.21043.x.CrossRefGoogle ScholarPubMed
Mendez, J. L. and Westerberg, D. (2012). Implementation of a culturally adapted treatment to reduce barriers for Latino parents. Cultural Diversity & Ethnic Minority Psychology, 18, 363372. doi: 10.1037/a0029436.CrossRefGoogle ScholarPubMed
Morales, J. (2003). Desandando de la vida (Retracing life). Puerto Rico: TUTV; Corporación de Puerto Rico para la Difusión Pública.Google Scholar
Perry, B. L. and Pescosolido, B. A. (2015). Social network activation: the role of health discussion partners in recovery from mental illness. Social Science & Medicine, 125, 116128. doi: 10.1016/j.socscimed.2013.12.033.CrossRefGoogle ScholarPubMed
Sabido, M. (2002). El tono: Andanzas teóricas, aventuras practicas, el entretenimiento con beneficio social. The Tone: Theoretical Vicissitudes, Practice Adventures, and Entertainment with Social Benefit. Mexico City, Mexico: National Autonomous University.Google Scholar
Singhal, A. and Rogers, E. M. (2002). A theoretical agenda for entertainment-education. Communication Theory, 12, 117135. doi: 10.1111/j.1468-2885.2002.tb00262.x.Google Scholar
Sood, S. (2002). Audience involvement and entertainment-education. Communication Theory, 12, 153172. doi: 10.1111/j.1468-2885.2002.tb00264.x.Google Scholar
Souder, E. and Terry, T. L. (2009). Use of lay educators to overcome barriers to research with Black older adults: a case study using Alzheimer’s Disease Center. Research in Gerontological Nursing, 2, 235242. doi: 10.3928/19404921-20090731-04.CrossRefGoogle ScholarPubMed
Storey, D. and Sood, S. (2013). Increasing equity, affirming the power of narrative and expanding dialogue: the evolution of entertainment education over two decades. Critical Arts-South-North Cultural and Media Studies, 27, 935. doi: 10.1080/02560046.2013.767015.Google Scholar
Tang, M. X. et al. (1998). The APOE-epsilon4 allele and the risk of Alzheimer disease among African Americans, Whites, and Hispanics. The Journal of the American Medical Association, 279, 751755. doi: 10.1001/jama.279.10.751.CrossRefGoogle ScholarPubMed
Umpierre, M. et al. (2015). Understanding latino parents’ child mental health literacy: todos a bordo/all aboard. Research on Social Work Practice, 25, 607618.CrossRefGoogle ScholarPubMed
Valle, R. (2005). Culturally attuned recruitment, retention, and adherence in Alzheimer disease and associated disorders: a best practices working model. Alzheimer Disease and Associated Disorders, 19, 261266. doi: 10.1097/01.wad.0000190804.05502.19.CrossRefGoogle Scholar
Valle, R. and Lee, B. (2002). Research priorities in the evolving demographic landscape of Alzheimer disease and associated dementias. Alzheimer Disease and Associated Disorders, 16, S64S76. doi: 10.1097/00002093-200200002-00006.CrossRefGoogle ScholarPubMed
Valle, R. Ì., Yamada, A.-M. and Matiella, A. C. (2006). Fotonovelas: a health literacy tool for educating latino older adults about dementia. Clinical Gerontologist, 30, 7188. doi: 10.1300/J018v30n01_06.CrossRefGoogle Scholar