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Community engagement in Health Technology Assessment and beyond: from guests in the process to hosts

Published online by Cambridge University Press:  15 October 2020

Catherine M. Holliday Open the ORCID record for Catherine M. Holliday [Opens in a new window]
Catherine M. Holliday*
Affiliation:
Centre for Community-Driven Research, Rue Du Conseil Général 6, 1205Genève, Switzerland
*
Author for correspondence: Catherine M. Holliday, Email: cmholliday@cc-dr.org
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Abstract

In Health Technology Assessment (HTA), clinical and economic evidence are assessed in the regulatory and reimbursement environments, with community input considered as complementary to this. Stakeholders are calling for more meaningful community engagement, but this will not be reached without a significant shift. The Centre for Community-Driven Research (CCDR) is a nonprofit organization bringing much needed change to the way we think about community engagement in health. This article is based on CCDR's experience and outlines three system changes needed to advance community engagement in decisions about health and HTA. This paper comes from the perspective of engaging everyday people in the process as opposed to representation on panels and committees. The three key areas of change that are discussed include building holistic evidence, creating supportive environments, and infrastructure for community engagement, with the term community referring to people affected by disease or health conditions and their carers/families.

Keywords

Capacity buildingcommunity engagement infrastructurepersonal feedbackreal-world evidence
Type
Perspective
Information
International Journal of Technology Assessment in Health Care , Volume 37 , Issue 1 , 2021 , e27
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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