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Negotiating Mutuality and Agency in Care-giving Relationships with Women with Intellectual Disabilities

Published online by Cambridge University Press:  25 March 2020

Pamela Cushing  and
Tanya Lewis
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Abstract

This article is an ethnographic analysis of the mutuality that is possible in relationships between caregivers and women with intellectual disabilities who live together in L'Arche homes. Creating mutuality through which both parties grow and exercise agency requires that caregivers learn to negotiate delicate power relations connected to the physics of care and to reframe dominant stereotypes of disability. This helps them to support the women with intellectual disabilities to name and achieve their desires.

Type
Feminism and Disability II
Information
Hypatia , Volume 17 , Issue 3: Special Issue: Feminism and Disability, Part 2 , Summer 2002 , pp. 173 - 193
Copyright
Copyright © 2002 by Hypatia, Inc.

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References

Aristotle, . 1976. The ethics of Aristotle: The Nicomachean ethics, trans. Thomson, J.A.K.London: Penguin.Google Scholar
Peter, Barham. 1992. Closing the asylum: The mental patient in modern society. United Kingdom: Penguin.Google Scholar
Jessica, Benjamin. 1988. The bonds of love. New York: Pantheon.Google Scholar
Donald, Berry. 1985. Mutuality: The vision of Martin Buber. Albany, N. Y.: State University of New York Press.Google Scholar
Anne, Bishop. 1994. Becoming on ally. Halifax, Canada: Fernwood Books.Google Scholar
David, Braddock, and Mitchell, Dale. 1992. Residential services and developmental disabilities in the U.S.: A national survey of staff compensation, turnover, and related issues. Chicago: American Association on Mental Retardation.Google Scholar
Martin, Buber. 1970. I and thou, trans. Kaufman, Walter. New York: Charles Scribner's Sons.Google Scholar
Michel, Desjardins. 1998. La rééducation sociale comme système de significations culturelles: Le cas dela déficience intellectuelle légère. Ph.D. diss., Department of Anthropology at l'Université de Montréal, Canada .Google Scholar
Robert, Desjarlais. 2000. The makings of personhood in a shelter for people considered homeless and mentally ill. Ethos 27(4): 466–89.Google Scholar
Disability, community and society: Exploring the links. The Roeher Institute. 1996. Toronto: York University.Google Scholar
Robert, Edgerton. 1993. The cloak of competence. Rev. ed. Los Angeles: University of California Press.Google Scholar
Carolyn, Enns. 1997. Feminist theories and feminist psychotherapies: Origins, themes and variations. New York: Haworth Press.Google Scholar
Ruth, Enns. 1999. A voice unheard: The Latimer case and people with disabilities. Canada: Fernwood.Google Scholar
Timothy, Epp. 2000. Disability: Discourse, experience and identity. Disability Studies Quarterly 20(2): 134–44.Google Scholar
Michel, Foucault. 1961. Madness and civilization: A history of insanity in the age of reason. New York: Vintage Books.Google Scholar
Marilyn, French. 1985. Beyond power: On women, men and morals. New York: Ballantine.Google Scholar
Alan, Gewirth. 1996. The community of rights. Chicago: The University of Chicago Press.Google Scholar
Carol, Gilligan. 1982. In a different voice: Psychological theory and women's development. Cambridge, Mass.: Harvard University Press.Google Scholar
Hanna, William John, and Rogovsky, Betsy. 1991. Women with disabilities: Two handicaps plus. Disability, Handicap and Society 6(1): 49–57.CrossRefGoogle Scholar
Stanley, Hauerwas ed. 1982. Responsibility for devalued persons: Ethical interactions between society, the family, and the retarded. Springfield, Ill.: Charles C. Thomas.Google Scholar
David, Hingsberger. 2001a. Appropriate touch issues in caregiving. Assistants’ Workshop at L'Arche‐Daybreak, Richmond Hill, Ont .Google Scholar
David, Hingsberger 2001b. Life, Death and Disability. CBC Radio Documentary series: Canada .Google Scholar
Deborah, Jones. 1998. Perfect Baby. Chatelaine 17(8): 34–43.Google Scholar
Judith, Jordan. 1990. Relational development through empathy: Therapeutic applications. Empathy Revisited Colloquium. Boston, Mass.: The Stone Center, Wellesley College.Google Scholar
Judith, Jordan 1991. Do you believe that the concepts of self and autonomy are useful in understanding women? Some misconceptions and reconceptions of a relational approach. Boston, Mass.: The Stone Center.Google Scholar
Ellyn, Kaschak. 1992. Engendered lives: A new psychology of women's experience. New York: Basic.Google Scholar
Kittay, Eva Feder. 1999. Love's labor: Essays on women, equality and dependency. New York: Routledge.Google Scholar
William, Lamb. 1995. Freedom, the self, and ethical practice according to Michel Foucault. International Philosophical Quarterly XXXV 4 (140): 449–67.Google Scholar
L'Arche, . 1993. North American Mission and Identity, statement. Retrieved 8 November 2000 from the World Wide Web: http://www.larchecanada.org/frsetl.html.Google Scholar
Tanya, Lewis. 1999. Living beside: Performing normal after incest memories return. Toronto: McGilligan.Google Scholar
Lutfiya, Z.M. 1991. A feeling of being connected: Friendships between people with and without learning disabilities. Disability, Handicap and Society, 6 (3), 233–45.CrossRefGoogle Scholar
Miller, Jean Baker. 1976. Toward a new psychology of women. Boston: Beacon Press.Google Scholar
Miller, Jean Baker 1986. What do we mean by relationships? Boston, Mass.: The Stone Center, Wellesley College.Google Scholar
Miller, Jean Baker, and Stiver, Irene. 1991. A relational refraining of therapy. Boston, Mass.: The Stone Center, Wellesley College.Google Scholar
O'Brien, John, and O'Brien, Connie. 1993. Unlikely alliances. In Friendships and community connections between people with and without intellectual disabilities, ed. Amado, Angela N.Baltimore: Paul H. Brookes.Google Scholar
Colin, Pottie. 2000. Narrating friendship: Reciprocal relationships in L'Arche. Master's thesis, Acadia University: Nova Scotia, Canada .Google Scholar
Marcia, Rioux. 1997. Disability: The place of judgment in a world of fact. Journal of Intellectual Disability Research 41(2): 102–11.Google Scholar
Rioux, Marcia, and Bach, Michael, eds. 1994. Disability is not measles: New research paradigms in disability. Toronto: Roeher Institute, York University.Google Scholar
SteinhoffSmith, Roy Herndon. 1999. The mutuality of care. St. Louis, Missouri: Chalice Press.Google Scholar
Peter, Stephenson, and Coughlan, Rory. 2001. Social, demographic and cultural features associated with psychoimmunology and cancer research. Canadian Anthropology Society conference.Google Scholar
Barbara, Swanekamp. 2000. E‐mail communication with the author, 12 December.Google Scholar
Trent, James W. Jr. 1994. Inventing the feeble mind: A history of mental retardation in the United States. Berkeley: University of California Press.Google Scholar
Joan, Tronto. 1993. Moral boundaries: A political argument for an ethic of care. New York: Routledge.Google Scholar
Victor, Turner. 1988. Passages, Margins and Poverty: Religious symbols of communitas. In High Points in Anthropology, 2d edition, ed. Bohannan, P. and Glazer, M.New York: Alfred A. Knopf.Google Scholar
Harvey, Wallace. 1996. Family violence: Legal, medical and social perspectives. Needham Heights, Mass.: Allyn and Bacon.Google Scholar
Susan, Wendell. 1996. The rejected body: Feminist philosophical reflections on disability. New York: Routledge.Google Scholar
Jean, Vanier. 1995. An Ark for the Poor: The story of L'Arche. Toronto: Novalis.Google Scholar
Jean, Vanier 2001. Made for happiness: Discovering the meaning of life with Aristotle. Trans. Spink, Kathryn. Toronto: Anansi Press.Google Scholar