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Perceptions of caregivers following percutaneous endoscopic gastrostomy in children with congenitally malformed hearts

Published online by Cambridge University Press:  25 August 2009

Ramesh Srinivasan ,
Catherine O’Neill ,
Wendy Blumenow  and
A. Mark Dalzell
Ramesh Srinivasan*
Affiliation:
Department of Paediatric Gastroenterology, Alder Hey Children’s NHS Foundation Trust, Liverpool
Catherine O’Neill
Affiliation:
Medical school, University of Liverpool, Liverpool
Wendy Blumenow
Affiliation:
Department of Speech and Language Therapy, Alder Hey Children’s NHS Foundation Trust, Liverpool, United Kingdom
A. Mark Dalzell
Affiliation:
Department of Paediatric Gastroenterology, Alder Hey Children’s NHS Foundation Trust, Liverpool
*
Correspondence to: Dr Ramesh Srinivasan, MD MRCP (UK) DCH MRCPCH, Specialist Registrar in Paediatric Gastroenterology, Alder Hey Children’s NHS Foundation Trust, Eaton Road, Liverpool, L12 2AP, United Kingdom. Tel & Fax: +44 1924816910; E-mail: ramsriniv@doctors.org.uk
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Abstract

Introduction

While the usefulness of percutaneous endoscopic gastrostomy is clearly established in the nutritional support of children with neurodisability, the role in substituting for prolonged nasogastric feeding in children with congenitally malformed hearts is a relatively recent development. There are no previously published experiences of the perceptions of parents or those providing care following the insertion of percutaneous endoscopic gastrostomy in such children.

Methods

Descriptive qualitative survey of parental perceptions using a semi-structured questionnaire.

Results

We obtained completed 27 point semi-structured questionnaires from 38 providers of care for children with congenitally malformed hearts. Time taken to feed their children reduced significantly after the percutaneous endoscopic gastrostomy, from 30 to 60 minutes previously to 15 minutes subsequently. The frequency of feeding also reduced significantly, from 6 times a day to 4 to 5 times a day. Those providing care perceived significant reductions in pre-procedural symptoms, the ease of administering medications, and noted an enhanced level of happiness in their children. Of those providing care, 97% were highly satisfied with the procedure, with 15 parents (40%) wishing that the operation was done earlier, while the remainder considered it had been done at the appropriate time.

Conclusions

Those caring for children with congenitally malformed hearts perceive significant improvements in the symptoms, wellbeing, and ease of administering medication for their children after percutaneous endoscopic gastrostomy. Of the group, 97% regarded the procedure as the appropriate means of assisting nutritional support.

Keywords

Cardiacsatisfactionfeedingnutritional support
Type
Original Article
Information
Cardiology in the Young , Volume 19 , Issue 5 , October 2009 , pp. 507 - 510
Copyright
Copyright © Cambridge University Press 2009

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