Hostname: page-component-848d4c4894-xm8r8 Total loading time: 0 Render date: 2024-06-16T18:02:03.540Z Has data issue: false hasContentIssue false

Decisional Capacity After Dark: Is Autonomy Delayed Truly Autonomy Denied?

Published online by Cambridge University Press:  27 June 2023

Jacob M. Appel*
Affiliation:
Professor of Psychiatry and Medical Education, Director of Ethics Education in Psychiatry, Assistant Director, Academy for Medicine & the Humanities, Attending Physician, Icahn School of Medicine at Mount Sinai, Mount Sinai Health System, New York, NY, USA

Abstract

The model for capacity assessment in the United States and much of the Western world relies upon the demonstration of four skills including the ability to communicate a clear, consistent choice. Yet such assessments often occur at only one moment in time, which may result in the patient expressing a choice to the evaluator that is highly inconsistent with the patient’s underlying values and goals, especially if a short-term factor (such as frustration with the hospital staff) distorts the patient’s preferences momentarily. These challenges are particularly concerning in cases, which arise frequently in hospital settings, in which patients demand immediate self-discharge, often during off-hours, while faced with life-threatening risks. This paper examines the distinctive elements that shape such cases and explores their ethical implications, ultimately offering a model for such situations that can be operationalized.

Type
Research Article
Copyright
© The Author(s), 2023. Published by Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Notes

1. Alfandre, DJ. “I’m going home”: Discharges against medical advice. Mayo Clinic Proceedings 2009;84(3):255–60CrossRefGoogle ScholarPubMed.

2. Glasgow, JM, Vaughn-Sarrazin, M, Kaboli, PJ. Leaving against medical advice (AMA): Risk of 30-day mortality and hospital readmission. Journal of General Internal Medicine 2010;25(9):926–9CrossRefGoogle ScholarPubMed.

3. Ibrahim, SA, Kwoh, CK, Krishnan, E. Factors associated with patients who leave acute-care hospitals against medical advice. American Journal of Public Health 2007;97(12):2204–8CrossRefGoogle ScholarPubMed.

4. Appelbaum PS, Grisso T. Assessing patients’ capacities to consent to treatment [published correction appears in New England Journal of Medicine 1989 Mar 16;320(11):748]. New England Journal of Medicine 1988;319(25):1635–8.

5. Buchanan, AE, Brock, DW. Deciding for Others: The Ethics of Surrogate Decision Making. New York: Cambridge University Press; 1989 Google Scholar.

6. Appel, JM. A values-based approach to capacity assessment. Journal of Legal Medicine 2022;42(1–2):5365 CrossRefGoogle ScholarPubMed.

7. Garrett, WS, Verma, A, Thomas, D, Appel, JM, Mirza, O. Racial disparities in psychiatric decisional capacity consultations. Psychiatric Services 2023;74(1):10–6CrossRefGoogle ScholarPubMed.

8. Mirza, O, Appel, J. Capacity reconceptualized: From assessment tool to clinical intervention. Cambridge Quarterly of Healthcare Ethics 2023;15 Google ScholarPubMed.

9. Palmer, BW, Harmell, AL. Assessment of healthcare decision-making capacity. Archives of Clinical Neuropsychology 2016;31(6):530–40CrossRefGoogle ScholarPubMed.

10. See note 4, Appelbaum, Grisso 1988.

11. Kassirer, S, Levine, EE, Gaertig, C. Decisional autonomy undermines advisees’ judgments of experts in medicine and in life. Proceedings of the National Academy of Sciences of the USA 2020;117(21):11368–78CrossRefGoogle Scholar.

12. Spellecy, R. Reviving Ulysses contracts. Kennedy Institute of Ethics Journal 2003;13(4):373–92CrossRefGoogle ScholarPubMed.

13. Appel JM. “Some people in persistent vegetative states have working minds. Does keeping them in limbo amount to torture?” Stat 2020 Jan 9; available at https://www.statnews.com/2020/01/09/working-mind-body-vegetative-state/ (last accessed 19 December 2022).

14. See note 7, Garrett et al. 2023.

15. See note 4, Appelbaum, Grisso 1988.