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A Bleeding Nuisance: The Educational Implications Of Haemophilia

Published online by Cambridge University Press:  26 February 2016

John Benseman*
Affiliation:
The University of Auckland
Julie Park
Affiliation:
The University of Auckland
*
Address for correspondence: John Benseman, Senior Lecturer in Adult Education. The University of Auckland, P. O. Box 92019, Auckland New Zealand.

Abstract

This article reviews the findings of a comprehensive national study of the social effects of haemophilia in New Zealand, with reference to the educational implications for children with haemophilia. However, these implications go well beyond New Zealand and many apply to children with other medical conditions and disabilities. Although children with haemophilia do make some special demands on schools, the main argument of the report is that schools which provide socially and physically safe environments for their students’ will also meet many of the needs of children with haemophilia.

Type
Research Article
Copyright
Copyright © The Australian Association of Special Education 1997

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References

Brackmann, S., Gerritzen, A., Oldenburg, J., Brackmann, H., & Schneweis, K. (1993). Search for intrafamilial transmission of hepatitis C virus in haemophilia patients. Blood, 81, 10771082.CrossRefGoogle Scholar
Cushman, J., & Laidler, A. (1991). Life in New Zealand Commission Report. Volume IV: Leisure. Dunedin, University of Otago.Google Scholar
Hernandez, J., Gray, D., & Lineberger, H. (1989). Social and economic indicators of well-being among haemophiliacs over a 5-year period. General Hospital Psychiatry, 11, 241247.CrossRefGoogle ScholarPubMed
Kvist, B., Kvist, M., & Rajantie, J. (1990). School absences, school achievements and personality traits of the haemophilic child. Scandanavian Journal of Social Medicine, 18, 125132.CrossRefGoogle ScholarPubMed
Ljung, R., Kling, S., &Tedgard, U. (1995). The impact of prenatal diagnosis on the incidence of haemophilia in Sweden. Haemophilia, 1, 190193.CrossRefGoogle ScholarPubMed
Markova, I., Wilkie, P., Naji, S., & Forbes, C. (1990). Self- and other-awareness of the risk of HIV/AIDS in people with haemophilia and implications for behavioural change. Social Science and Medicine, 31, 7379.CrossRefGoogle ScholarPubMed
New Zealand Haemophilia Society Inc. (1994). Submission to ACC Review. Auckland, Haemophilia Society.Google Scholar
No author. (1994). “I want to play ball with the other guys!”. Echo, 15, 46.Google Scholar
Park, J., Scott, K., Benseman, J., & Berry, E. (1995). A Bleeding Nuisance: Living with Haemophilia in Aoteama New Zealand. Auckland, Department of Anthropology, The University of Auckland.Google Scholar
Rosendaal, F., Smit, C., & Briët, E. (1991). Haemophilia treatment in historical perspective: a review of medical arid social developments. Annals of Haematology, 62, 515.CrossRefGoogle Scholar
Spitzer, A. (1992). Coping processes of school-age children with haemophilia. Western Journal of Nursing Research, 14, 157169.CrossRefGoogle Scholar
Triemstra, A., Smit, C., Van der Ploeg, H., Briët, E., & Rosendaal, F. (1995). Two decades of haemophilia treatment in the Netherlands, 1972-92. Haemophilia, 1, 165171.CrossRefGoogle ScholarPubMed
Wilkie, P., Markova, I., Naji, S., & Forbes, C. (1990). Daily living problems of people with haemophilia and HIV infection: implications for counselling. International Journal of Rehabilitation Research, 13, 1525.CrossRefGoogle ScholarPubMed
Woolf, A., Rappaport L, Reardon, P., Ciborowski, J., D’Angelo, E., & Bessette, J. (1989). School functioning and disease severity in boys with haemophilia. Journal of Developmental and Behavioural Pediatrics, 10, 81-65 CrossRefGoogle Scholar