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Tic of the Iceberg: Strategies to Support Students With Tourette Syndrome in Higher Education

Published online by Cambridge University Press:  15 February 2021

Sandra Elsom*
Affiliation:
University of the Sunshine Coast, Australia
Angela Hansen
Affiliation:
University of the Sunshine Coast, Australia
*
*Corresponding author. Email: selsom@usc.edu.au

Abstract

Tourette syndrome (TS) is a challenging and poorly understood condition that can have a considerable negative effect on an individual’s ability to learn, despite there being little to no impact on their intelligence. In this paper, we detail the experiences of 2 higher education staff who supported a student with severe TS to undertake studies in a university bridging program. We make suggestions and recommendations for teachers who have students with TS. Over the course of 5 semesters, the teaching team researched TS in order to understand what the student was facing and adjusted their teaching strategies and the learning environment to overcome the complications that the condition presented. The design of the learning environment and the embedded accessible pedagogy that we found helpful are framed and discussed using the 3 primary principles of universal design for learning: engagement, representation, and action and expression. The authors utilise the minimal model of Rolfe, Freshwater, and Jasper (2001) to reflect upon and share their practice.

Type
Special Education Perspectives
Copyright
© The Author(s), 2021. Published by Cambridge University Press

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Footnotes

This manuscript was accepted under the Editorship of David Paterson.

References

Archer, A. L., & Hughes, C. A. (2011). Explicit instruction: Effective and efficient teaching. New York, NY: The Guilford Press.Google Scholar
Cavanna, A. E., Critchley, H. D., Orth, M., Stern, J. S., Young, M.-B., & Robertson, M. M. (2011). Dissecting the Gilles de la Tourette spectrum: A factor analytic study on 639 patients. Journal of Neurology, Neurosurgery & Psychiatry, 82, 13201323. https://doi.org/10.1136/jnnp.2010.225029 CrossRefGoogle Scholar
Channon, S., Crawford, S., Vakili, K., & Robertson, M. M. (2003). Real-life-type problem solving in Tourette syndrome. Cognitive and Behavioral Neurology, 16, 315. https://doi.org/10.1097/00146965-200303000-00002 CrossRefGoogle ScholarPubMed
Channon, S., Pratt, P., & Robertson, M. M. (2003). Executive function, memory, and learning in Tourette’s syndrome. Neuropsychology, 17, 247254. https://doi.org/10.1037/0894-4105.17.2.247 CrossRefGoogle ScholarPubMed
Claussen, A. H., Bitsko, R. H., Holbrook, J. R., Bloomfield, J., & Giordano, K. (2018). Impact of Tourette syndrome on school measures in a nationally representative sample. Journal of Developmental & Behavioral Pediatrics, 39, 335342. https://doi.org/10.1097/DBP.0000000000000550 CrossRefGoogle Scholar
Cohen, B. (with Wysocky, L.) (2005). Front of the class: How Tourette syndrome made me the teacher I never had. New York, NY: St Martin’s Griffin.Google Scholar
Davies, N. (2006). Short and to the point! Agora, 41(3), 1317.Google Scholar
Debes, N. M. M. M., Lange, T., Jessen, T. L., Hjalgrim, H., & Skov, L. (2011). Performance on Wechsler intelligence scales in children with Tourette syndrome. European Journal of Paediatric Neurology, 15, 146154. https://doi.org/10.1016/j.ejpn.2010.07.007 CrossRefGoogle ScholarPubMed
Efron, D., & Dale, R. C. (2018). Tics and Tourette syndrome. Journal of Paediatrics and Child Health, 54, 11481153. https://doi.org/10.1111/jpc.14165 CrossRefGoogle ScholarPubMed
Fuchs, L. S., & Fuchs, D. (1986). Curriculum-based assessment of progress toward long-term and short-term goals. The Journal of Special Education, 20, 6982. https://doi.org/10.1177/002246698602000108 CrossRefGoogle Scholar
Giordano, K. (2016). Classroom strategies and techniques for students with Tourette syndrome. Retrieved March 10, 2020, from Tourette Association of America website: https://www.rchsd.org/documents/2016/02/classroom-strategies-tourettes.pdf/ Google Scholar
Hattie, J. A. C. (2009). Visible learning: A synthesis of over 800 meta-analyses relating to achievement. Abingdon, UK: Routledge.Google Scholar
Henderson, M., Selwyn, N., & Aston, R. (2017). What works and why? Student perceptions of ‘useful’ digital technology in university teaching and learning. Studies in Higher Education, 42, 15671579. https://doi.org/10.1080/03075079.2015.1007946 CrossRefGoogle Scholar
Kalsi, N., Tambelli, R., Aceto, P., & Lai, C. (2015). Are motor skills and motor inhibitions impaired in Tourette syndrome? A review. Journal of Experimental Neuroscience, 2015(9), 5765. https://doi.org/10.4137/JEN.S25095 Google Scholar
Kéri, S., Szlobodnyik, C., Benedek, G., Janka, Z., & Gádoros, J. (2002). Probabilistic classification learning in Tourette syndrome. Neuropsychologia, 40, 13561362. https://doi.org/10.1016/S0028-3932(01)00210-X CrossRefGoogle ScholarPubMed
Kim, A.-H., Vaughn, S., Wanzek, J., & Wei, S. (2004). Graphic organizers and their effects on the reading comprehension of students with LD: A synthesis of research. Journal of Learning Disabilities, 37, 105118. https://doi.org/10.1177/00222194040370020201 CrossRefGoogle ScholarPubMed
Konishi, M., Shishikura, K., Nakaaki, S., Komatsu, S., & Mimura, M. (2011). Remembering and forgetting: Directed forgetting effect in obsessive-compulsive disorder. Neuropsychiatric Disease and Treatment, 7(1), 365372. https://doi.org/10.2147/NDT.S21047 CrossRefGoogle ScholarPubMed
Marsh, R., Alexander, G. M., Packard, M. G., Zhu, H., Wingard, J. C., Quackenbush, G., & Peterson, B. S. (2004). Habit learning in Tourette syndrome: A translational neuroscience approach to a developmental psychopathology. Archives of General Psychiatry, 61, 12591268. https://doi.org/10.1001/archpsyc.61.12.1259 CrossRefGoogle ScholarPubMed
Meltzer, L. (2010). Promoting executive function in the classroom. New York, NY: The Guilford Press.Google Scholar
O’Connor, K., St-Pierre-Delorme, M.-È., Leclerc, J., Lavoie, M., & Blais, M. T. (2014). Meta-cognitions in Tourette syndrome, tic disorders, and body-focused repetitive disorder. The Canadian Journal of Psychiatry, 59, 417425. https://doi.org/10.1177/070674371405900804 CrossRefGoogle ScholarPubMed
Rolfe, G., Freshwater, D., & Jasper, M. (2001). Critical reflection for nursing and the helping professions: A user’s guide. Basingstoke, UK: Palgrave Macmillan.Google Scholar
Rose, D. H., & Meyer, A. (2002). Teaching every student in the digital age: Universal design for learning. Alexandria, VA: Association for Supervision and Curriculum Development.Google Scholar
Rose, D. H., Meyer, A., & Hitchcock, C. (Eds.). (2005). The universally designed classroom: Accessible curriculum and digital technologies. Cambridge, MA: Harvard Education Press.Google Scholar
Seligman, A. W., & Hilkevich, J. S. (Eds.). (1992). Don’t think about monkeys: Extraordinary stories by people with Tourette syndrome. Duarte, CA: Hope Press.Google Scholar
Stebbins, G. T., Singh, J., Weiner, J., Wilson, R. S., Goetz, C. G., & Gabrieli, J. D. E. (1995). Selective impairments of memory functioning in unmedicated adults with Gilles de la Tourette’s syndrome. Neuropsychology, 9, 329337. https://doi.org/10.1037/0894-4105.9.3.329 CrossRefGoogle Scholar
Stewart, S. B., Greene, D. J., Lessov-Schlaggar, C. N., Church, J. A., & Schlaggar, B. L. (2015). Clinical correlates of parenting stress in children with Tourette syndrome and in typically developing children. The Journal of Pediatrics, 166, 12971302. https://doi.org/10.1016/j.jpeds.2015.01.041 CrossRefGoogle ScholarPubMed
Svihra, M., & Katzman, M. A. (2004). Behavioural inhibition: A predictor of anxiety. Paediatrics & Child Health, 9, 547550. https://doi.org/10.1093/pch/9.8.547 CrossRefGoogle ScholarPubMed
Swanson, H. L. (with Hoskyn, M., & Lee, C.) (1999). Interventions for students with learning disabilities: A meta-analysis of treatment outcomes. New York, NY: Guilford Press.Google Scholar
Tourettes Action. (2014). Factsheet: Guidance for people with Tourette syndrome going to university. Retrieved from https://www.tourettes-action.org.uk/resource-23-education---guidance-for-people-with-ts-going-to-university.html Google Scholar