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Stories from people living with frailty

Published online by Cambridge University Press:  09 August 2019

Anna Lloyd Open the ORCID record for Anna Lloyd [Opens in a new window] ,
Erna Haraldsdottir ,
Marilyn Kendall ,
Scott A. Murray  and
Brendan McCormack
Anna Lloyd*
Affiliation:
St Columba's Hospice, Centre for Education and Research, Edinburgh, UK
Erna Haraldsdottir
Affiliation:
St Columba's Hospice, Centre for Education and Research, Edinburgh, UK
Marilyn Kendall
Affiliation:
Primary Palliative Care Research Group, Usher Institute for Population Health Sciences and Informatics, Edinburgh University, Edinburgh, UK
Scott A. Murray
Affiliation:
Primary Palliative Care Research Group, Usher Institute for Population Health Sciences and Informatics, Edinburgh University, Edinburgh, UK
Brendan McCormack
Affiliation:
Division of Nursing, Queen Margaret University, Edinburgh, UK
*
*Corresponding author. Email: alloyd@stcolumbashospice.org.uk
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Abstract

We describe the findings of a qualitative longitudinal interview study of a group of initially community-dwelling frail older people, and their informal and formal carers. We used a narrative approach to explore the role that narrative may have for people living with frailty. This has been less explored comparative to the experiences of those living with chronic illness. The frail older people told stories of their experiences that revealed three distinct shapes or typologies. These were either stable, unbalancing or overwhelmed, and related to how the person managed to adapt to increasing challenges and losses, and to reintegrate their sense of self into a cohesive narrative. Each is illustrated by an individual case story. Frailty is described as both biographically anticipated yet potentially biographically disruptive as older people may struggle to make sense of their circumstances without a clear single causative factor. Findings are discussed in relation to biographical disruption and reconstruction in chronic illness and the rhetoric around ‘successful ageing’. We conclude by drawing attention to the complex individual and social factors that contribute to the experience of living with frailty in later life.

Keywords

narrativesfrailtyolder peoplequalitative researchlongitudinal research
Type
Article
Information
Ageing & Society , Volume 40 , Issue 12 , December 2020 , pp. 2732 - 2753
Copyright
Copyright © Cambridge University Press 2019

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