Hostname: page-component-76fb5796d-22dnz Total loading time: 0 Render date: 2024-04-26T12:15:43.229Z Has data issue: false hasContentIssue false
  • English
  • Français

Global Leadership in Paediatric and Congenital Cardiac Care: “Coding our way to improved care: an interview with Rodney C. G. Franklin, MBBS, MD, FRCP, FRCPCH”

Part of: CTY Global Leadership in Paediatric and Congenital Cardiac Care

Published online by Cambridge University Press:  02 February 2021

Justin T. Tretter Open the ORCID record for Justin T. Tretter [Opens in a new window]  and
Jeffrey P. Jacobs Open the ORCID record for Jeffrey P. Jacobs [Opens in a new window]
Justin T. Tretter*
Affiliation:
The Heart Institute, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA
Jeffrey P. Jacobs
Affiliation:
Congenital Heart Center, UF Health Shands Children’s Hospital, Gainesville, FL, USA Division of Thoracic and Cardiovascular Surgery, Department of Surgery, University of Florida, Gainesville, FL, USA Cardiology in the Young, Cambridge, UK
*
Author for correspondence: Justin T. Tretter, M.D., The Heart Institute, Cincinnati Children’s Hospital Medical Center, 3333 Burnet Avenue, Cincinnati, OH, 45229, USA. Tel: 513-636-4432; Fax: 513-636-3952. E-mail: justin.tretter@cchmc.org
Get access Rights & Permissions [Opens in a new window]

Abstract

Dr Rodney Franklin is the focus of our third in a planned series of interviews in Cardiology in the Young entitled, “Global Leadership in Paediatric and Congenital Cardiac Care.” Dr Franklin was born in London, England, spending the early part of his childhood in the United States of America before coming back to England. He then attended University College London Medical School and University College Hospital in London, England, graduating in 1979. Dr Franklin would then go on to complete his general and neonatal paediatrics training in 1983 at Northwick Park Hospital and University College Hospital in London, England, followed by completing his paediatric cardiology training in 1989 at Great Ormond Street Hospital for Children in London, England. During this training, he additionally would hold the position of British Heart Foundation Junior Research Fellow from 1987 to 1989. Dr Franklin would then complete his training in 1990 as a Senior Registrar and subsequent Consultant in Paediatric and Fetal Cardiology at Wilhelmina Sick Children’s Hospital in Utrecht, the Netherlands. He subsequently obtained his research doctorate at University of London in 1997, consisting of a retrospective audit of 428 infants with functionally univentricular hearts.

Dr Franklin has spent his entire career as a Consultant Paediatric Cardiologist at the Royal Brompton & Harefield Hospital NHS Foundation Trust, being appointed in 1991. He additionally holds honorary Consultant Paediatric Cardiology positions at Hillingdon Hospital, Northwick Park Hospital, and Lister Hospital in the United Kingdom, and Honorary Senior Lecturer at Imperial College, London. He has been the Clinical Lead of the National Congenital Heart Disease Audit (2013–2020), which promotes data collection within specialist paediatric centres. Dr Franklin has been a leading figure in the efforts towards creating international, pan European, and national coding systems within the multidisciplinary field of congenital cardiac care. These initiatives include but are not limited to the development and maintenance of The International Paediatric & Congenital Cardiac Code and the related International Classification of Diseases 11th Revision for CHD and related acquired terms and definitions. This article presents our interview with Dr Franklin, an interview that covers his experience in developing these important coding systems and consensus nomenclature to both improve communication and the outcomes of patients. We additionally discuss his experience in the development and implementation of strategies to assess the quality of paediatric and congenital cardiac care and publicly report outcomes.

Keywords

cardiologyclassification systemscongenital heart diseaseinterviewnomenclature
Type
Interview
Information
Cardiology in the Young , Volume 31 , Issue 1 , January 2021 , pp. 11 - 19
Check for updates
Copyright
© The Author(s), 2021. Published by Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Tretter, JT, Jacobs, JP. Global leadership in paediatric and congenital cardiac care: “following the ‘golden rule’ in multicentre collaborations - an interview with Jane W. Newburger, MD”. Cardiol Young 2020; 30: 1221–1225.10.1017/S1047951120002267CrossRefGoogle Scholar
Tretter, JT, Jacobs, JP. Global leadership in paediatric and congenital cardiac care: “using data to improve outcomes - an interview with Jennifer S. Li, MD, MHS”. Cardiol Young 2020; 30: 1226–1230.10.1017/S1047951120002875CrossRefGoogle Scholar
Franklin, RC, Spiegelhalter, DJ, Anderson, RH, et al. Double-inlet ventricle presenting in infancy. I. Survival without definitive repair. J Thorac Cardiovasc Surg 1991; 101: 767–776.10.1016/S0022-5223(19)36645-0CrossRefGoogle ScholarPubMed
Franklin, RC, Spiegelhalter, DJ, Rossi Filho, RI, et al. Double-inlet ventricle presenting in infancy. III. Outcome and potential for definitive repair. J Thorac Cardiovasc Surg 1991; 101: 924–934.10.1016/S0022-5223(19)36666-8CrossRefGoogle ScholarPubMed
Franklin, RC, Spiegelhalter, DJ, Sullivan, ID, et al. Tricuspid atresia presenting in infancy. Survival and suitability for the Fontan operation. Circulation 1993; 87: 427–439.10.1161/01.CIR.87.2.427CrossRefGoogle ScholarPubMed
Franklin, RC, Sullivan, ID, Anderson, RH, Shinebourne, EA, Deanfield, JE. Is banding of the pulmonary trunk obsolete for infants with tricuspid atresia and double inlet ventricle with a discordant ventriculoarterial connection? Role of aortic arch obstruction and subaortic stenosis. J Am Coll Cardiol 1990; 16: 1455–1464.10.1016/0735-1097(90)90392-3CrossRefGoogle ScholarPubMed
Franklin, RC, Spiegelhalter, DJ, Anderson, RH, et al. Double-inlet ventricle presenting in infancy. II. Results of palliative operations. J Thorac Cardiovasc Surg 1991; 101: 917–923.10.1016/S0022-5223(19)36665-6CrossRefGoogle ScholarPubMed
Franklin, RC, Anderson, HR, Daniëls, O, et al. Report of the coding committee of the association for European paediatric cardiology. Cardiol Young 1999; 9: 633–658.10.1017/S1047951100005734CrossRefGoogle ScholarPubMed
Franklin, RC. The European paediatric cardiac code long list: structure and function. Cardiol Young 2000; 10 (Suppl 1): 27–146.10.1017/S1047951100007770CrossRefGoogle ScholarPubMed
Mavroudis, C, Jacobs, JP. International congenital heart surgery nomenclature and database project. Ann Thorac Surg 2000; 69 (Suppl 1): 1–372.10.1016/S0003-4975(99)01278-3CrossRefGoogle ScholarPubMed
Mavroudis, C, Jacobs, JP. Congenital heart surgery nomenclature and database project: overview and minimum dataset. Ann Thorac Surg 2000; 69 (Suppl 4): S2–S17.10.1016/S0003-4975(99)01321-1CrossRefGoogle ScholarPubMed
Franklin, RC, Jacobs, JP, Tchervenkov, CI, Béland, MJ. Bidirectional crossmap of the short lists of the European paediatric cardiac code and the international congenital heart surgery nomenclature and database project. Cardiol Young 2002; 12: 431–435.10.1017/S1047951102000744CrossRefGoogle ScholarPubMed
Franklin, RC, Jacobs, JP, Krogmann, ON, et al. Nomenclature for congenital and paediatric cardiac disease: historical perspectives and the international pediatric and congenital cardiac code. Cardiol Young 2008; 18 (Suppl 2): 70–80.10.1017/S1047951108002795CrossRefGoogle ScholarPubMed
Béland, MJ, Franklin, RC, Jacobs, JP, et al. Update from the international working group for mapping and coding of nomenclatures for paediatric and congenital heart disease. Cardiol Young 2004; 14: 225–229.10.1017/S1047951104002239CrossRefGoogle Scholar
Tretter, JT, Windram, J, Faulkner, T, et al. Heart University: a new online educational forum in paediatric and adult congenital cardiac care. The future of virtual learning in a post-pandemic world? Cardiol Young 2020; 30: 560–567.10.1017/S1047951120000852CrossRefGoogle Scholar
Giroud, JM, Jacobs, JP, Spicer, D, et al. Report from the International Society for Nomenclature of Paediatric and Congenital Heart Disease: creation of a visual encyclopedia illustrating the terms and definitions of the International Pediatric and Congenital Cardiac Code. World J Pediatr Congenit Heart Surg 2010; 1: 300–313.10.1177/2150135110379622CrossRefGoogle ScholarPubMed
Franklin, RCG, Béland, MJ, Colan, SD, et al. Nomenclature for congenital and paediatric cardiac disease: the International Paediatric and Congenital Cardiac Code (IPCCC) and the Eleventh Iteration of the International Classification of Diseases (ICD-11). Cardiol Young 2017; 27: 1872–1938.10.1017/S1047951117002244CrossRefGoogle Scholar
Lopez, L, Houyel, L, Colan, SD, et al. Classification of ventricular septal defects for the eleventh iteration of the international classification of diseases-striving for consensus: a report from the international society for nomenclature of paediatric and congenital heart Disease. Ann Thorac Surg 2018; 106: 1578–1589.10.1016/j.athoracsur.2018.06.020CrossRefGoogle ScholarPubMed
Jacobs, JP, Franklin, RCG, Jacobs, ML, et al. Classification of the functionally univentricular heart: unity from mapped codes. In 2006 supplement to cardiology in the young: controversies and challenges in the management of the functionally univentricular heart. Cardiol Young 2006; 16 (Suppl 1): 9–21.10.1017/S1047951105002271CrossRefGoogle Scholar
Tchervenkov, CI, Jacobs, JP, Weinberg, PM, et al. The nomenclature, definition and classification of hypoplastic left heart syndrome. Cardiol Young 2006; 16: 339–368.10.1017/S1047951106000291CrossRefGoogle ScholarPubMed
Jacobs, JP, Anderson, RH, Weinberg, P, et al. The nomenclature, definition and classification of cardiac structures in the setting of heterotaxy. In 2007 supplement to cardiology in the young: controversies and challenges facing paediatric cardiovascular practitioners and their patients. Cardiol Young 2007; 17 (Suppl 2): 1–28.Google Scholar
Jacobs, JP, Franklin, RCG, Wilkinson, JL, et al. The nomenclature, definition and classification of discordant atrioventricular connections. In 2006 supplement to cardiology in the young: controversies and challenges of the atrioventricular junctions and other challenges facing paediatric cardiovascular practitioners and their patients. Cardiol Young 2006; 16 (Suppl 3): 72–84.10.1017/S1047951106000795CrossRefGoogle Scholar
Brown, KL, Rogers, L, Barron, DJ, et al. Incorporating comorbidity within risk adjustment for UK pediatric cardiac surgery. Ann Thorac Surg 2017; 104: 220–226.10.1016/j.athoracsur.2016.12.013CrossRefGoogle ScholarPubMed
Rogers, L, Brown, KL, Franklin, RC, et al. Improving risk adjustment for mortality after pediatric cardiac surgery: the UK PRAiS2 model. Ann Thorac Surg 2017; 104: 211–219.10.1016/j.athoracsur.2016.12.014CrossRefGoogle ScholarPubMed
Bergersen, L, Everett, AD, Giroud, JM, et al. Report from the international society for nomenclature of paediatric and congenital heart disease: cardiovascular catheterisation for congenital and paediatric cardiac disease (Part 1 - Procedural nomenclature). Cardiol Young 2011; 21: 252–259.10.1017/S104795111000185XCrossRefGoogle Scholar
Bergersen, L, Giroud, JM, Jacobs, JP, et al. Report from the international society for nomenclature of paediatric and congenital heart disease: cardiovascular catheterisation for congenital and paediatric cardiac disease (Part 2 - Nomenclature of complications associated with interventional cardiology). Cardiol Young 2011; 21: 260–265.10.1017/S1047951110001861CrossRefGoogle Scholar
Brown, KL, Pagel, C, Brimmell, R, et al. Definition of important early morbidities related to paediatric cardiac surgery. Cardiol Young 2017; 27: 747–756.10.1017/S1047951116001256CrossRefGoogle ScholarPubMed
Brown, KL, Crowe, S, Pagel, C, et al. Use of diagnostic information submitted to the United Kingdom Central Cardiac Audit Database: development of categorisation and allocation algorithms. Cardiol Young 2013; 23: 491–498.10.1017/S1047951112001369CrossRefGoogle ScholarPubMed
Brown, KL, Crowe, S, Franklin, R, et al. Trends in 30-day mortality rate and case mix for paediatric cardiac surgery in the UK between 2000 and 2010. Open Heart 2015; 2: e000157.10.1136/openhrt-2014-000157CrossRefGoogle ScholarPubMed
Crowe, S, Ridout, DA, Knowles, R, et al. Death and emergency readmission of infants discharged after interventions for congenital heart disease: a national study of 7643 infants to inform service improvement. J Am Heart Assoc 2016; 5: e003369.10.1161/JAHA.116.003369CrossRefGoogle ScholarPubMed
Rogers, L, Pagel, C, Sullivan, ID, et al. Interventions and outcomes in children with hypoplastic left heart syndrome born in England and Wales between 2000 and 2015 based on the national congenital heart disease audit. Circulation 2017; 136: 1765–1767.10.1161/CIRCULATIONAHA.117.028784CrossRefGoogle ScholarPubMed
Gardiner, HM, Kovacevic, A, van der Heijden, LB, et al. Prenatal screening for major congenital heart disease: assessing performance by combining national cardiac audit with maternity data. Heart 2014; 100: 375–382.10.1136/heartjnl-2013-304640CrossRefGoogle ScholarPubMed